Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated

Breezy

Recommended Posts

Breezy Newbie
Breezy
Posted

I wanted to say hello to all.  I am new to this forum.  

 

My subject is not one of 'how to' it is more about money.  I am curious if everyone is struggling like I am with the money situation involved with celiacs. 

 

Here is my or should I say my granddaughter's story.  After returning from a foreign country I learned that my granddaughter was adopted without notification to me.  I won custody after a long court case and soon after she was diagnosed with Celiacs.  We have struggled with cross contamination to dangerous temper tantrums and after a long process I believe our 'system' is working for the better good of her.  However, most of my finances go toward her food costs.  I make all of her food at home and DO NOT use the frozen processed gluten free items in the grocery store.  So my question is does anyone on this forum have resources or sites that will reduce the amount of money I am spending.  

 

I would appreciate any suggestions also.

 

Thank you

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

Unfortunately eating gluten-free costs a bit more, even if you do use whole foods and do your own cooking. If you had chosen to use processed or boxed foods, it would cost even more.  About all you can do is buy the gluten-free flours and ingredients in bulk. Don't use mixes. Try to find inexpensive sources of fruits, veggies and meats - maybe a farmer's market?

 

Stick with staples that are naturally gluten-free like rice. Mashed potatoes are cheap. I buy generic frenc fries for my boys - probably one of their favourite junk foods.

 

I do most of my baking with coconut flour, which calls for ridiculous amounts of eggs ($$) so I substitute in applesauce or bananas or cream. It's still more expensive than regular muffins but waaaay cheaper than what you would buy in the store.

 

Best wishes.

beth01 Enthusiast
beth01
Posted

I was told that you could deduct the cost of your gluten free food on your taxes.  Keep your receipts, it all adds up.  This is coming from my GI I haven't checked into it yet but I am saving my receipts.

 

I have been buying stuff in bulk when it's on sale if I can freeze it, dehydrate it, or can it.  I also bought a food sealer, that has helped a lot.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      35

      results from 13 day gluten challenge - does this mean I can't have celiac?

      link works but you may have enhanced security blocking it. In Edge you have to click on continue to site when the security warning opens. Other browsers or antivirus may just block it because it is not https.
    2. Known1
      - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      10

      Diagnosed Marsh stage 3C in January 2026

      It looks like she has a couple of books that share "The Paleo Approach" in the title. I ordered this one, as the other is a cookbook. The Paleo Approach: Reverse Autoimmune Disease and Heal Your Body Thanks again for the info.
    3. Kimmy88
      - Kimmy88 commented on Scott Adams's article in Product Labeling Regulations
      3

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      Thank you so much for sharing!! I did submit a message to the government urging strong stricter labeling!
    4. knitty kitty
      - knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff
      10

      Diagnosed Marsh stage 3C in January 2026

      @Known1, I understand you have had your B12, Folate B 9, and Vitamin D level checked. However there are other B vitamins that are not routinely checked because blood tests for other B vitamins are terribly unreliable, expensive, or cumbersome to use frequently. Results can take a long time to get back, delaying proper treatment and risking permanent...
    5. Known1
      - Known1 replied to oceangirl's topic in Gluten-Free Foods, Products, Shopping & Medications
      21

      Lubriderm-gluten-free?

      Thanks, I had already sent you a direct message regarding bananas. Maybe just reply to that?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,423
    • Most Online (within 30 mins)
      7,748
    Jennie s
    Newest Member
    Jennie s
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By Wheatwacked · Posted

      link works but you may have enhanced security blocking it.  In Edge you have to click on continue to site when the security warning opens.  Other browsers or antivirus may just block it because it is not https.
    • Known1
      Diagnosed Marsh stage 3C in January 2026

      By Known1 · Posted

      It looks like she has a couple of books that share "The Paleo Approach" in the title.  I ordered this one, as the other is a cookbook. The Paleo Approach: Reverse Autoimmune Disease and Heal Your Body Thanks again for the info.
    • knitty kitty
      Diagnosed Marsh stage 3C in January 2026

      By knitty kitty · Posted

      @Known1,  I understand you have had your B12, Folate B 9, and Vitamin D level checked.  However there are other B vitamins that are not routinely checked because blood tests for other B vitamins are terribly unreliable, expensive, or cumbersome to use frequently.  Results can take a long time to get back, delaying proper treatment and risking permanent damage.  It's easiest to supplement and look for health improvement. Blood tests can reflect how much of a certain vitamin was consumed in the past twenty-four to forty-eight hours.  Vitamins released by digestion is absorbed by villi, anemone like projections that increase the surface area of the small intestine, and then pass into the blood stream for distribution around the body.  A Marsh score of 3C indicates severe damage to the villi lining the small intestine.  Absorption of nutrients is definitely affected.   Blood tests don't reflect the amount of a vitamin  that is stored inside cells before being used.  You can have "normal" blood levels but have deficiency within cells of organs and tissues.  Tissues and organs will relinquish their stored vitamins into the blood stream in order to keep the brain and heart working while tissues and organs are depleted.   It's possible to have a localized deficiency of Thiamine B1 in different organs which cause the organ to malfunction.  Gastrointestinal Beriberi is caused by Thiamine deficiency in the gastrointestinal tract.  Gallbladder dysfunction, thyroid dysfunction, heart attack, and cognitive dysfunction can be caused by Thiamine deficiency.   Most of the B vitamins cannot be stored for very long, maybe six weeks. B12 can be stored for as long as a year in the liver.  So having "normal" B 12 levels does not mean all your other vitamins are "normal" as well.   Thiamine can be stored for eighteen days, however  Thiamine can be depleted within three days.  We have a greater metabolic demand for Thiamine when we're physically ill, emotionally stressed or are physically active (work out regularly) or work outdoors (or ride bikes).  Because most B vitamins can become low within a month or two under the best of circumstances, many newly diagnosed feel great on the gluten free diet at first.  After that, they seem to start going downhill.   The nutritional deficits start making themselves known.   Keep in mind that processed gluten free foods are not enriched nor fortified with vitamins and minerals to replace nutrients lost in processing like their gluten containing counterparts are.  You have to replace them yourself by taking supplements at least until the villi regrow and absorption improves. The eight B vitamins are water soluble.  They are easily lost if one has diarrhea or constipation or in those with a high Marsh score.  Because they are water soluble, the body can easily excrete excess through the kidneys.  Recommended Daily Amounts are based on experiments done on humans to find the minimum dose required to prevent disease.  Levels for optimal health are much higher.   Doctors are trained in medical learning institutions which are funded by pharmaceutical companies.  Requirements for nutritional education have been reduced to twenty class hours over the course of the seven years of medical school.   Three-day weekend seminars earn ten hours.  Vitamins cannot be patented as they are natural substances, so there is more profit for doctors to prescribe pharmaceuticals.  They are taught to cover symptoms with pharmaceutical bandaids.  They may not look for what caused symptoms to appear in the first place.   Doctors are taught nutritional deficiencies don't occur except in impoverished or drought stricken countries.  This is not accurate.  Nutritional deficiencies can occur if you eat a High Carbohydrate Diet, eat the Standard American Diet, and if you have malabsorption problems as occur with Celiac Disease.   You can check out my blog for the challenges I faced due to vitamin deficiencies that went unrecognized by doctors.   Talk to your doctor and new dietician about supplementing with vitamins, minerals and essential nutrients while your villi are healing.  My favorite Celiac book is The Paleo Approach by Dr. Sarah Ballantyne.  She explains the AutoImmune Protocol Diet.  It has been shown to reduce inflammation and promote healing in the gastrointestinal tract. Best wishes!
    • Known1
      Lubriderm-gluten-free?

      By Known1 · Posted

      Thanks, I had already sent you a direct message regarding bananas.  Maybe just reply to that?
    • knitty kitty
      Lubriderm-gluten-free?

      By knitty kitty · Posted

      @Known1, I'm sure you can find a shelter or community service group that would appreciate your lotion donation.   I've replied to the topic of your bloodwork as it relates to vitamins in your "Introduce Yourself" post so as not to high jack this thread.   Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.