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Just Found Out I Have Dh? I Am Desperate Itching

Guest ellyntoomey

By Guest ellyntoomey
in Dermatitis Herpetiformis

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Guest ellyntoomey
Guest ellyntoomey
Posted

:( I have found out that I have DH and have been following a gluten-free diet for 2 weeks, I am constantly itching. I have the rash still, it seemd worse at night. I have been prescribed hydroxizine anti itch pills and steriod cream.

How long will the rash last? Is there anything else I can take or have my doctor prescribe? I am going out of my mind with the itching.

Please help....

  • 2 weeks later...
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zebrajeb Newbie
zebrajeb
Posted
:( I have found out that I have DH and have been following a gluten-free diet for 2 weeks, I am constantly itching. I have the rash still, it seemd worse at night. I have been prescribed hydroxizine anti itch pills and steriod cream.

How long will the rash last? Is there anything else I can take or have my doctor prescribe? I am going out of my mind with the itching.

Please help....

<{POST_SNAPBACK}>

It can last a while. Ask your doctor about dapsone. It relieves the itching within 24 hours. It must be taken carefully and your liver function monitered. (An easy periodic blood test.) Worked great for me!

John

Idahogirl Apprentice
Idahogirl
Posted

I agree. Dapsone is a miracle drug! I've been on the gluten-free diet for about 3 weeks, and my bumps cleared up about a week ago. And I was miserable, covered in welts. It would hurt if my husband accidentally touched one of my knees.

Make sure you have eliminated all sources of gluten. Cross-contamination and household products are easily overlooked. Also vitamins can be a culprit. Someone told me that it is a good idea to clean out your cutlery tray, as there are probably crumbs in there. If you can find a place that is not below a food-preparation area, it is a good idea to move it there. Also, licking envelopes, I've learned, is a place where you can get gluten by accident.

There is so much to learn about the gluten-free diet, and I think it takes time to increase your awareness, but once you have eliminated all gluten, your rash should clear up.

  • 2 weeks later...
missylynn1 Newbie
missylynn1
Posted
:( I have found out that I have DH and have been following a gluten-free diet for 2 weeks, I am constantly itching. I have the rash still, it seemd worse at night. I have been prescribed hydroxizine anti itch pills and steriod cream.

How long will the rash last? Is there anything else I can take or have my doctor prescribe? I am going out of my mind with the itching.

Please help....

i am taking an antibiotic called dapsone i cleared in less than a week. it was more like two days but i still have to be very careful not to eat any gluten.

  • 1 month later...
Guest JlazyH
Guest JlazyH
Posted
:( I have found out that I have DH and have been following a gluten-free diet for 2 weeks, I am constantly itching. I have the rash still, it seemd worse at night. I have been prescribed hydroxizine anti itch pills and steriod cream.

How long will the rash last? Is there anything else I can take or have my doctor prescribe? I am going out of my mind with the itching.

Please help....

I have found a way to just about stop the itching altogether. You may be turned of by my advice but look it up on the net to confirm my sugestion. Here in Colorado we use Bag Balm on our hands and on our cow's tits when we milk. Pick up a little can (green) at the drug store and give it a try. You won't be disapointed. You will however have the urge to eat grass and hay. I'm kidding of course, but do give it a try.

My Best, Jess

  • 2 weeks later...
Silver-naki Rookie
Silver-naki
Posted
I have found a way to just about stop the itching altogether. You may be turned of by my advice but look it up on the net to confirm my sugestion. Here in Colorado we use Bag Balm on our hands and on our cow's tits when we milk. Pick up a little can (green) at the drug store and give it a try. You won't be disapointed. You will however have the urge to eat grass and hay. I'm kidding of course, but do give it a try.

My Best, Jess

ECELLENT advice here on the "Bag Balm" Jess!!! I use this stuff for EVERYTHING, and have for many years... Living on a Ranch, one has alot of this kind of stuff around. Even my Doctor told me that his DAD used BAG BALM for everything! It's just a really good product, it really is. I use it for "Chapstick," and my husband uses it on his Hemmroids! Laugh! (no kidding!) "It'll cure what ailes you!" Yep! :D

teebs in WV Apprentice
teebs in WV
Posted

For those of you who have had DH for years, and been on dapsone.....have you ever had other skin rashes after the worst of the DH cleared up? I know that it can take a few months to get it all out of your system and for the itching to go away completely, but I have been getting large welts for the past few days. Just wondering if this is typical or if maybe I am having some other type of allergic reaction. These are nothing like my DH blisters.......but I am itching like crazy! As far as I know, I have not been glutened - I've become a fanatic and am watching everything.

Any advice would be appreciated.

Thanks,

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Pegster Apprentice
Pegster
Posted

I was diagnosed almost two years ago, but never went on dapsone. I am on a strict gluten free diet, but I still get rashes sometimes. My dermatologist says it is something other than DH. Like you, I get welts, especially around my waist. I use free and clear detergents for my clothes, mild cleansers for my skin and topical steroid creams when I have these break outs. I have always had very sensitive skin, and this winter has been really hard on me. I have read a little about yeast overgrowth and I try to eat lots of yogurt when I'm really itchy. It may be all in my mind, but it seems to help me! There is nothing worse than feeling itchy. I take Benadryl at night when I'm bad and that helps. I can't take it during the day, because it knocks me out.

teebs in WV Apprentice
teebs in WV
Posted

Peggy,

Thanks for sharing your experience. I'm about to go nuts over this itching. I have been on dapsone since end of October which has helped so much. But this newest itch is different than what I had from my DH outbreaks. There really isn't any rash until I start scratching and then it looks almost like hives. A couple of weeks ago I thought maybe the sulfites in wine were making me itch so I quit drinking wine. I think I should start a food diary and see if I can pinpoint anything that may be causing my issue.

Thanks,

casnco Enthusiast
casnco
Posted
I was diagnosed almost two years ago, but never went on dapsone. I am on a strict gluten free diet, but I still get rashes sometimes. My dermatologist says it is something other than DH. Like you, I get welts, especially around my waist. I use free and clear detergents for my clothes, mild cleansers for my skin and topical steroid creams when I have these break outs. I have always had very sensitive skin, and this winter has been really hard on me. I have read a little about yeast overgrowth and I try to eat lots of yogurt when I'm really itchy. It may be all in my mind, but it seems to help me! There is nothing worse than feeling itchy. I take Benadryl at night when I'm bad and that helps. I can't take it during the day, because it knocks me out.

What brand of yogurt do you use? I wrote Dannon and they told me they use wheat gluten as a thickener/binding agent in their yogurt.

  • 2 weeks later...
Harpo Newbie
Harpo
Posted
:( I have found out that I have DH and have been following a gluten-free diet for 2 weeks, I am constantly itching. I have the rash still, it seemd worse at night. I have been prescribed hydroxizine anti itch pills and steriod cream.

How long will the rash last? Is there anything else I can take or have my doctor prescribe? I am going out of my mind with the itching.

Please help....I would llike to say tha tDh is a short term deal, but it is not. I have had Dh going on 11 years and was not diagnosed with it for 10 years. I still itch terrilby but i can see it is getting better. The doctors have to get with it and learn more about it. I saw 3 interist, 3 dermatoligist, 1 allergist and many many ,many blood test. There was also 2 GPs. tay with it perhaps they got you early enough tput a halt to it. Of all of the creams i have used the one i like the best is ST Ives. : Harpo

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