Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Found Out I Have Dh? I Am Desperate Itching


Guest ellyntoomey

Recommended Posts

Guest ellyntoomey

:( I have found out that I have DH and have been following a gluten-free diet for 2 weeks, I am constantly itching. I have the rash still, it seemd worse at night. I have been prescribed hydroxizine anti itch pills and steriod cream.

How long will the rash last? Is there anything else I can take or have my doctor prescribe? I am going out of my mind with the itching.

Please help....

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



zebrajeb Newbie
:( I have found out that I have DH and have been following a gluten-free diet for 2 weeks, I am constantly itching. I have the rash still, it seemd worse at night. I have been prescribed hydroxizine anti itch pills and steriod cream.

How long will the rash last? Is there anything else I can take or have my doctor prescribe? I am going out of my mind with the itching.

Please help....

<{POST_SNAPBACK}>

It can last a while. Ask your doctor about dapsone. It relieves the itching within 24 hours. It must be taken carefully and your liver function monitered. (An easy periodic blood test.) Worked great for me!

John

Idahogirl Apprentice

I agree. Dapsone is a miracle drug! I've been on the gluten-free diet for about 3 weeks, and my bumps cleared up about a week ago. And I was miserable, covered in welts. It would hurt if my husband accidentally touched one of my knees.

Make sure you have eliminated all sources of gluten. Cross-contamination and household products are easily overlooked. Also vitamins can be a culprit. Someone told me that it is a good idea to clean out your cutlery tray, as there are probably crumbs in there. If you can find a place that is not below a food-preparation area, it is a good idea to move it there. Also, licking envelopes, I've learned, is a place where you can get gluten by accident.

There is so much to learn about the gluten-free diet, and I think it takes time to increase your awareness, but once you have eliminated all gluten, your rash should clear up.

  • 2 weeks later...
missylynn1 Newbie
:( I have found out that I have DH and have been following a gluten-free diet for 2 weeks, I am constantly itching. I have the rash still, it seemd worse at night. I have been prescribed hydroxizine anti itch pills and steriod cream.

How long will the rash last? Is there anything else I can take or have my doctor prescribe? I am going out of my mind with the itching.

Please help....

i am taking an antibiotic called dapsone i cleared in less than a week. it was more like two days but i still have to be very careful not to eat any gluten.

  • 1 month later...
Guest JlazyH
:( I have found out that I have DH and have been following a gluten-free diet for 2 weeks, I am constantly itching. I have the rash still, it seemd worse at night. I have been prescribed hydroxizine anti itch pills and steriod cream.

How long will the rash last? Is there anything else I can take or have my doctor prescribe? I am going out of my mind with the itching.

Please help....

I have found a way to just about stop the itching altogether. You may be turned of by my advice but look it up on the net to confirm my sugestion. Here in Colorado we use Bag Balm on our hands and on our cow's tits when we milk. Pick up a little can (green) at the drug store and give it a try. You won't be disapointed. You will however have the urge to eat grass and hay. I'm kidding of course, but do give it a try.

My Best, Jess

  • 2 weeks later...
Silver-naki Rookie
I have found a way to just about stop the itching altogether. You may be turned of by my advice but look it up on the net to confirm my sugestion. Here in Colorado we use Bag Balm on our hands and on our cow's tits when we milk. Pick up a little can (green) at the drug store and give it a try. You won't be disapointed. You will however have the urge to eat grass and hay. I'm kidding of course, but do give it a try.

My Best, Jess

ECELLENT advice here on the "Bag Balm" Jess!!! I use this stuff for EVERYTHING, and have for many years... Living on a Ranch, one has alot of this kind of stuff around. Even my Doctor told me that his DAD used BAG BALM for everything! It's just a really good product, it really is. I use it for "Chapstick," and my husband uses it on his Hemmroids! Laugh! (no kidding!) "It'll cure what ailes you!" Yep! :D

teebs in WV Apprentice

For those of you who have had DH for years, and been on dapsone.....have you ever had other skin rashes after the worst of the DH cleared up? I know that it can take a few months to get it all out of your system and for the itching to go away completely, but I have been getting large welts for the past few days. Just wondering if this is typical or if maybe I am having some other type of allergic reaction. These are nothing like my DH blisters.......but I am itching like crazy! As far as I know, I have not been glutened - I've become a fanatic and am watching everything.

Any advice would be appreciated.

Thanks,


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Pegster Apprentice

I was diagnosed almost two years ago, but never went on dapsone. I am on a strict gluten free diet, but I still get rashes sometimes. My dermatologist says it is something other than DH. Like you, I get welts, especially around my waist. I use free and clear detergents for my clothes, mild cleansers for my skin and topical steroid creams when I have these break outs. I have always had very sensitive skin, and this winter has been really hard on me. I have read a little about yeast overgrowth and I try to eat lots of yogurt when I'm really itchy. It may be all in my mind, but it seems to help me! There is nothing worse than feeling itchy. I take Benadryl at night when I'm bad and that helps. I can't take it during the day, because it knocks me out.

teebs in WV Apprentice

Peggy,

Thanks for sharing your experience. I'm about to go nuts over this itching. I have been on dapsone since end of October which has helped so much. But this newest itch is different than what I had from my DH outbreaks. There really isn't any rash until I start scratching and then it looks almost like hives. A couple of weeks ago I thought maybe the sulfites in wine were making me itch so I quit drinking wine. I think I should start a food diary and see if I can pinpoint anything that may be causing my issue.

Thanks,

casnco Enthusiast
I was diagnosed almost two years ago, but never went on dapsone. I am on a strict gluten free diet, but I still get rashes sometimes. My dermatologist says it is something other than DH. Like you, I get welts, especially around my waist. I use free and clear detergents for my clothes, mild cleansers for my skin and topical steroid creams when I have these break outs. I have always had very sensitive skin, and this winter has been really hard on me. I have read a little about yeast overgrowth and I try to eat lots of yogurt when I'm really itchy. It may be all in my mind, but it seems to help me! There is nothing worse than feeling itchy. I take Benadryl at night when I'm bad and that helps. I can't take it during the day, because it knocks me out.

What brand of yogurt do you use? I wrote Dannon and they told me they use wheat gluten as a thickener/binding agent in their yogurt.

  • 2 weeks later...
Harpo Newbie
:( I have found out that I have DH and have been following a gluten-free diet for 2 weeks, I am constantly itching. I have the rash still, it seemd worse at night. I have been prescribed hydroxizine anti itch pills and steriod cream.

How long will the rash last? Is there anything else I can take or have my doctor prescribe? I am going out of my mind with the itching.

Please help....I would llike to say tha tDh is a short term deal, but it is not. I have had Dh going on 11 years and was not diagnosed with it for 10 years. I still itch terrilby but i can see it is getting better. The doctors have to get with it and learn more about it. I saw 3 interist, 3 dermatoligist, 1 allergist and many many ,many blood test. There was also 2 GPs. tay with it perhaps they got you early enough tput a halt to it. Of all of the creams i have used the one i like the best is ST Ives. : Harpo

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,223
    • Most Online (within 30 mins)
      7,748

    Samantha 23
    Newest Member
    Samantha 23
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.