Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wondering If I Have Celiac?

ssMarilyn

Recommended Posts

ssMarilyn Newbie
ssMarilyn
Posted
I've studied up on this alot and know that the tests done at the clinic aren't always 100% and you can get a false positive. I stopped all gluten, but am still experiencing the discomfort in my abdomen area. Sometimes bloat, gas and I also have fatigue, which is no doubt part of my hypothyroidism, which my MD/DO and I are working on. Can one part of the intestinal area feel worse than another? On occasion I get an aching sensation in my lower right abdomen. It goes away for awhile, then comes back. Feels like the way I used to get before I would get my period. I had a partial-hyst years ago, so no longer have that to deal with. I would think that if this was a appendix issue it would not go away?

I've also read that if you do have celiac, it can take some people years to get better after they have stopped all gluten? Any insight?

______________

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Yes, it can take one to here years depending on the severity of intestinal damage and damage to other parts of your body (e.g. Bone loss). It is shame that you have not been tested. Any doctor can order a celiac blood panel. Out-of-pocket costs are $450 which may be a small price to pay compared to giving up gluten and finding out that gluten was not the issue. I should know, I was formally diagnosed and my husband was not. He has been gluten-free for thirteen years. In retrospect, he wishes he had a diagnosis.

In any case, I wish you well.

mommy2emma2003 Newbie
mommy2emma2003
Posted

Ty cyclinglady my dr thinks its all in my head ....I have thought about buying the test that you can do over the

Counter and if it comes up positive tell now you need to do a full celiac disease test

cyclinglady Grand Master
cyclinglady
Posted

It is NOT in your head!

How long have you been gluten free? You have to have been eating it for a few months to get an accurate result on the antibody tests for celiac disease.

ssMarilyn Newbie
ssMarilyn
Posted
  • Author

Thank you so much! I just called and have an appt with my MD on Tues to get tested!

nvsmom Community Regular
nvsmom
Posted

You need to start eating gluten again immediately or it could affect your test results.  An accurate blood test requires around 8-12 weeks of gluten consumption, if you were previously gluten-free for quite a while, in the weeks prior to testing.  If you were only gluten-free a week or so you might be fine, but if it was longer, I would not test immediately.

 

And yes, stomach pain  can come back even if you are eating safely.  I've been sick this week and had too many cough drops, and then I made the mistake of having some coffee before eating anything - I've been almost doubled over for a good 20 minutes now.  :rolleyes: We can still have other foods bother us, or just an "off" week.

 

Best wishes.

ssMarilyn Newbie
ssMarilyn
Posted
  • Author

I knew I would have to start eating gluten again. I figured I'd have a slice of toast every day. That just leaves me 4 days to eat gluten. My stomach is okay, it's my abdomen/intestines that scream at me!! If the test result comes back negative, I'll just wait a few weeks and do it again... also with eating toast every day.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

I knew I would have to start eating gluten again. I figured I'd have a slice of toast every day. That just leaves me 4 days to eat gluten. My stomach is okay, it's my abdomen/intestines that scream at me!! If the test result comes back negative, I'll just wait a few weeks and do it again... also with eating toast every day.

Just an FYI - your insurance probably won't pay for the same test twice in a couple of months. You might want to wait a while for the blood test.

Open Original Shared Link

cyclinglady Grand Master
cyclinglady
Posted

How long have you been gluten free exactly?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,995
    • Most Online (within 30 mins)
      7,748
    Jojolina14
    Newest Member
    Jojolina14
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wends
      Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results

      By Wends · Posted

      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies?” To me it reads.that you carry the high risk HLADQ2.5 haplotype.      
    • AnnaNZ
      Gluten Sensitivity

      By AnnaNZ · Posted

      Hello. Do you mind saying what symptoms led the doctors to test for bacteria in your blood?
    • trents
      Gluten Sensitivity

      By trents · Posted

      So you you ate wheat products every single day for 50 years without a problem but then in the 90's you discovered that wheat was your problem. That's confusing to me. It seems contradictory. Did you have a problem or not?
    • The Logician
      Gluten Sensitivity

      By The Logician · Posted

      I spent my first 50 years eating wheat products every single day with no ill affects. Being a 6’2” Italian you can imagine what my diet was like and believe me I had an appetite that wouldn’t quit. In the 90’s once I discovered the wheat was my problem I avoided it and no longer had IBS.  I seriously doubt I have celiac but I appreciate your input and will let you know if I have a problem with wheat again. I’ve been eating things I’ve longed for for decades and have never felt better.
    • trents
      Gluten Sensitivity

      By trents · Posted

      I would say two things and then I'm done. Many celiacs have been misdiagnosed for years with IBS. Testing for celiac disease requires regular and significant consumption of gluten for weeks/months in order to be valid.
×
×
  • Create New...