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Update On 2 Year Old, Some New Questions!

absullivan6

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absullivan6 Rookie
absullivan6
Posted

Thanks to you all who answered my post two months ago when my son was diagnosed.  We immediately stopped gluten and the changes have been truly amazing - he's gained 3.5 pounds in 8 weeks, has SO much more energy, eats a ton and is just so happy.
This is a bit of a TMI topic, but I feel like someone may have some insight!  Before the diagnosis, his stools were always light colored, mostly yellow.  He was breastfed until 13 months, so this was never odd for me, but once we stopped gluten, they became a normal brown color.  In the past few days they have been very loose again and yellow.  He has not had any gluten, but now I'm worried.  Could this be something else?  Or did people notice that things were up and down for the first few months?  We are super careful with cross contamination, but I'm worried he could be extremely sensitive and getting trace amounts now.

Thank you as always!

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nvsmom Community Regular
nvsmom
Posted

I'm so glad that he is doing so much better! Wonderful!  

 

My guess is that this is just a blip on his road to recovery.  I found that the first 6 months or so was very much of the "2 steps forward and 1 step back" variety.  It can take a few months for the autoantibodies to stop being made and even longer to recover after that.  If you are sure that he is gluten-free, then this is probably a temporary step backwards. Keep an eye out for possible gluten or signs of illness (flu season is approaching) and keep doing what you are doing,  Chances are that it will pass soon.  :)

 

That being said, its always a good idea to recheck labels and possibilities for cc.

 

Best wishes.

SMRI Collaborator
SMRI
Posted

I just posted a similar post about me.  I'm a little over 2 months into this and seem to have gone backwards.  I know I haven't had anything with gluten as well.  Others replied that they had a similar experience around the same time so I just let it slide that it was normal.

psawyer Proficient
psawyer
Posted

Healing the gut takes time. During the healing phase, random reactions are common and do not necessarily mean you have ingested gluten. It is just part of the process. Timing varies with the degree of damage and the age of of the person, but it will usually take several months and maybe as much as two years. Be patient.

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