Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Diet Has Had Unexpected Side Effects


Gatomon

Recommended Posts

Gatomon Newbie

I'm a 25 year old white female. I am really worried about this problem now.

 

I have had diarrhea nearly all the time since sometime in my (late?) teens (I can't remember when exactly it started). I am 25 now. I have had trouble really getting doctors to listen to me regarding it (so never had any tests or anything), and I had originally suspect lactose as a cause as whenever I ate it, I'd have explosive diarrhea within minutes. But that didn't solve the problem.

 

More recently I wondered if gluten was the cause. For about the last 2 months I've tried to maintain a low gluten diet as the doctor said there is little difference between no gluten and low gluten and that no gluten is really difficult to achieve. It seemed to help a bit (i.e.I've had more energy and bizarely a lot less period pain (not something I was expecting at all)), but I still had the diarrhea. My tolerance to lactose seemed to be up (i.e. no immediate effect) so I started eating more of that.

 

So I decided to try do a full gluten avoidance diet. I started that about a week ago. I now have the opposite problem; no diarrhea at all, but very little comes out. As the week has gone on, I have felt more and more blocked up. The weight gain from it is noticable.

 

I don't think my fibre intake is any less than a few weeks; I'd cut out pasta/bread/ other high gluten and high fibre foods weeks ago. It seems that my intenstines are just spectacularly lazy and just don't want to move at all without me nagging at them a lot! What could cause this? Is it possible that because they were so used to just diarrhea to get rid of waste, that now that it isn't getting triggered for some reason they just don't want to do their "normal" job? (I only rarely had "normal" output previously)

 

still not entirely sure if I am gluten intolerant. But it is weird that avoiding gluten leads to the opposite problem. From what I've read of celiac disease though, it seems unlikely that it is the problem?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

First of all, that doctor was 100% wrong! The difference between low gluten and no gluten is this: If you have celiac disease and eat low gluten, you might as well eat full gluten for all the good it will do you. Even on a low gluten diet, you are damaging your body tremendously.

 

Second of all, if you do have celiac, you are probably having trouble because of the dairy. The part of our body that digests dairy is the same part that is damaged by gluten. If it is damaged it can't digest dairy and that could well be why you are having trouble.

 

Also, you need to watch out for cross-contamination. Go to the coping section here and read the Newbie 101 thread. Click on all the links provided in that thread too. It will teach you a LOT.

 

And finally, you may want to go back on gluten and get tested. If you stay gluten-free and decide later to get tested you will have to do a gluten challenge and that is HARD. You will most likely find that your reactions to gluten are more severe than they were before.

 

And for the constipation? Try eating nuts. Planter's nuts in the blue cans are safe.  I eat their peanuts and cashews every day.

 

Now, go read that Newbie 101 thread and then come back with any questions you might have. :)

nvsmom Community Regular

Ditto Bartfull. If you think you will ever want to be tested for celiac disease it is best to get it out of the way now.  A gluten challenge is around 1-2 slices of bread per day for 2-3 months - that's incredibly hard to go through if you have started feeling better. KWIM?

 

Nuts are really good to get you going. I find coconut will do it too. Coffee too.... I suffered from the reverse of your problem, I was constipated for a few decades and then when I went gluten-free (and had my thyroid treated) I eventually switched to the runs for a few months. It has evened out now (yeah!) but the extremes were annoying for a while.

 

Oh! Also be aware that many prepackaged gluten-free foods, like breads and muffins, will not have the same fibre or vitamins that items made with fortified wheat flour will have.  If you stay gluten-free and use gluten-free substitute foods, you may need extra fibre and vitamins.

 

Best wishes and welcome to the board.  :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748

    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...