Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Newb On Gluten This Month For Testing

edgymama

Recommended Posts

edgymama Apprentice
edgymama
Posted

My story is like many from what I have read, I am 36 and have had seasonal allergies all my life, mom claims I was anemic off and on and had allergies to dairy and soy as a baby (have had it all my life though so I don't think those cause issues). IN 2003 I believe it was they gave me some blood test and said I didn't have celiac and I had IBS (alternating C and D). Along the way lots of other things have stood out to me especially fatigue, and increasing anxiety the past few years. I just figured that I had an IBS reaction to MSG since it seemed every time I had take out or can soup etc...I was in the bathroom within about 30 minutes of eating it. 

 

More reading got me to thinking that perhaps the test they did back in 2003 wasn't all that great and maybe I do have at least a gluten sensitivity but never pursued it just dealt with it. In July this summer I had HORRID bloating occur that lasted almost a week. I felt as if I was on my due date with a child type bloating! I went to the doctor and they ran some tests for a bacteria and UTI/Bladder infections and an ultrasound, all came back normal. I let them know I was still having issues and wanted answers. They sent me to a surgeon because they found polyps on my gall bladder. I KNEW it was not my gall bladder and luckily the surgeon listened to me and said he was in total agreement that the tiny polyps they saw were NOT the cause and were not anything they needed to be concerned about. 

 

Got in with a GI doctor and although I just met with the NP she heard my heart murmur straight away (impressive as so many doctors miss it on me) then she ordered me to eat gluten this month (I had been off it since the bloating issue so maybe a month off of it). I go for my blood tests on October 25th and that day cannot come soon enough. Actually the day cannot come soon enough for me to go off gluten again I should say! 

 

The month I was off of it I was regaining energy, I only had D maybe once or twice which was linked to panic attack over my 4 year old (she has asthma and I am highly wondering if she too doesn't have gluten issues!). I just felt better. Oh and the biggest thing for me, I wasn't hungry! See I am overweight (actually obese by today's standards being 5'2 and in the 180's currently) and I am pretty much always open to eating and the month off of gluten I was finding myself not snacking during my normal snack attack time (right after work). 

 

I know now that even if my tests are negative that I am going off gluten 100% as the proof was in the pudding with how much better I felt!!! 

 

Oh and now with being back on it for only 2 weeks so far I am bloated, my stomach is almost always gassy, my eyes have horrible bags under them even though I am getting a decent amount of sleep, my tummy just aches almost daily, the brain fog is bad, and I just feel swollen everywhere not just my stomach! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SuzLin Newbie
SuzLin
Posted

I tested positive for celiac and still have issues. One thing I've read a lot about is intestinal yeast overgrowth. I read some tips for minimizing this and am going to try. I too had polyps visible in my endoscopy, but in my stomach. They came back totally benign, but consistent with inflammation from celiac.

SuzLin Newbie
SuzLin
Posted

Oh....My insane hunger went away after being gluten free too. I used to get "episodes" where I thought I had low blood sugar. It was awful.

edgymama Apprentice
edgymama
Posted
  • Author

Oh....My insane hunger went away after being gluten free too. I used to get "episodes" where I thought I had low blood sugar. It was awful.

Good glad I am not alone! I am having it like crazy today! Only a few more weeks hopefully......

cyclinglady Grand Master
cyclinglady
Posted

Hang in there! The weeks will fly by and you will be glad that you did it! It will be nice to have a definitive answer.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,691
    • Most Online (within 30 mins)
      7,748
    Gigi2025
    Newest Member
    Gigi2025
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Symptoms that get worse if you don't supplement is a sign of malabsorption, possibly due to Celiac disease. Blood tests for nutritional deficiencies are not very accurate, and should be done when you have been off of supplements for eight to twelve weeks, otherwise the vitamin supplements you've taken will be measured.  The blood circulation system is a transportation system.  It transports the vitamins you've absorbed around the body, but blood tests don't give an accurate picture of the vitamin and mineral stores inside organs and tissues where they are actually used.  You can have "normal" blood levels but still have deficiencies.  This is because the brain demands stored nutrients be put into the blood stream to supply important organs, like the brain and heart, while other organs do without.   If you are taking Thiamine Mononitrate in your supplements, you are probably low in thiamine.  Thiamine Mononitrate is used in many supplements because it won't break down sitting on a shelf.  This also means Thiamine Mononitrate is difficult for the body to utilize.  Only thirty percent of Thiamine Mononitrate on the label is absorbed and even less is able to be utilized by the body.  A different form of Thiamine called Benfotiamine has been shown to promote intestinal healing.   Talk to your doctor about doing a genetic test to look for Celiac markers.   I'm concerned that if you do a gluten challenge (10 grams of gluten per day for a minimum off two weeks) in your weakened state, the nutritional deficiencies will become worse and possibly life threatening.  
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello, good afternoon!   I apologize, I didn’t see a notification and I’m just reading this. Thank you so much for sharing your thoughts and the link. Yes you are absolutely right, even so trying to get a response from them has been extremely difficult. They don’t answer but I will your practice of “guilty until proven innocent.”   I like and have a sense of trust here in this website, everyone is honest and thoughts are raw. The mutual understanding is amazing!   thank you Scott!
    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.