Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosis?


rpbelize

Recommended Posts

rpbelize Newbie

Okay, so I am just now researching this, but three months ago my doctor diagnosed me with Celiac. I immediately went off gluten. Now I am questioning...

 

I don't have classic gut issues, except on very rare occasions. I mainly have hormone imbalances (estrogen, progesterone, and thyroid), severe migraine headaches, lots of pelvic pain, tiredness, etc. In a panel that tested for a lot of other things my doctor pointed out the following:

 

Gliadin Antibody, IgA - 19

Gliadin antibody,IgG - 54

Tissue Transglutaminase antibody, IgA - 36

tTG, IgG - 7

 

I also have insulin resistance, Lots of inflammation (Lp-PLA - 244, hs-CRP - 1.4), and low Iron (Ferritin - 10)

 

She didn't say anything about a biopsy, and at 3 months gluten-free, I don't suppose I could have a biopsy without a gluten challenge. Are the numbers high enough to be Celiac without a biopsy?

 

I just don't want to go down the road of thinking this is causing all my problems, only to discover no change and years down the road try to figure what really is the source.

 

She felt that the reason why I was having such hormonal issues was the Celiac was blocking my absorption of the hormones. This was also causing the insulin resistance. Does that sound reasonable?

 

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Yes,I think you are on the right track. Based on your lab results (helps to have the lab ranges as each lab varies though), I would say that you have Celiac Disease. I had the biopsy because only one of my celiac disease blood tests was positive. I was "on the fence". Plus, I was scheduled for a routine colonoscopy anyway......and I need a firm diagnosis as my husband has been gluten-free for thirteen years and I knew what it meant! I could not believe that we would both have it.

My insulin resistance did not improve on a gluten-free diet. It just got worse. I am a diabetic diagnosed a year after my celiac disease diagnosis (type not determined). I suggest you do some research on diabetes. I was shocked! What give up more foods? But I bought a cheap meter right away and began testing. Yep, I had issues with carbs. I took all my data into my doctor who agreed that I had diabetes. I went on a LCHF diet that keeps my meter readings in a safe zone. My doctor is even more impressed with my cholesterol results (increase my HDL that was way too low). We are continuing our "clinical study" on my husband who does not have an insulin resistance problem but has high cholesterol and could stand to lose some weight.

I am hoping that when I need diabetes meds (Metformin) my gut will be healed as most wreak havoic on your gut and mine is already damaged.

I, too hoped that my insulin resistance was related to celiac disease, but it appears that it is not.

Carpool time!

frieze Community Regular

insulin resistance, is commonly  a carb issue.  not just celiac.....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,692
    • Most Online (within 30 mins)
      7,748

    Linda M Rush
    Newest Member
    Linda M Rush
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Gigi2025
      Since 2015 we've spent extensive time in Italy and I've been able to eat their wheat products without incident. Initially, I was practically starving thinking foods in Sicily were not gluten-free.  An Italian friend who had lived in the US for over 20 years said she had celiac/gluten-free friends from the US who could eat Italian wheat products without problems. Hesitantly, I tried little by little without issues.  A few years later at a market, I asked a bread vendor if they had gluten-free loaves. Turns out she had lived in LA, said groups believe it's not the gluten that's causing our bodies harm, but potassium bromate; these groups have been trying to ban it.  Bromines and other halogens wreaks havoc to our endocrine system and, more specifically, our thyroids and immune systems. When bromines are ingested/absorbed into the body, it displaces iodine causing other health issues. Potassium bromate is a powerful oxidizing agent (dough 'conditioner') that chemically changes flour to enhance elasticity, bleaches the dough, and ages the flour much faster than open air.   Shortly thereafter while visiting friends in California, one family said they had gone gluten-free and the difference was incredible. The reason they choose this path was due them (a biologist/chemist/agriculturist scientist) having to write a portion of a paper about a certain product for the company he worked. Another company's scientist was directed to write the other portion. All was confidential, they weren't allowed to know the other company/employee.  After the research, they learned gluten was being removed from wheat, sent elsewhere, returned in large congealed blocks resembling tofu, and then added to wheat products. Potassium bromate has been banned for use in Europe, China, and other countries, but not in the US. Then we have the issues of shelf preservatives and stabilizers. What are we eating?  Why? We spend long periods of time in Italy and all has been good.  We just returned from an extended time in Greece;  no issues there either.  There is a man there we learned about on a travel show about Greece who walks the hills, picking herbs, pods, etc.  He is a very learned scholar, taught at the university level in Melbourne. It took a few days to locate him, but were finally successful. He too, is concerned about the additives and preservatives in American food (many of his customers are Americans, haven't been in the best of health, and have become healthier after visiting him). He suggested taking a food product from the US and the same product in Europe, and compare the different ingredients. Then ask why these things are being allowed in the US by the 'watch dog' of our foods and drugs. It would be amuzing if it weren't tragic. I'm presently looking for flour from Europe that I can make my own bread and pasta as the gluten-free bread is now $7.99 a (small) loaf.  BTW, studies are showing that many gluten-free individuals are becoming diabetic. My guess is because the gluten-free products are high in carbs. This is only my experience and opinion garnished by my personal research.  I hope it helps.  
    • knitty kitty
      Symptoms that get worse if you don't supplement is a sign of malabsorption, possibly due to Celiac disease. Blood tests for nutritional deficiencies are not very accurate, and should be done when you have been off of supplements for eight to twelve weeks, otherwise the vitamin supplements you've taken will be measured.  The blood circulation system is a transportation system.  It transports the vitamins you've absorbed around the body, but blood tests don't give an accurate picture of the vitamin and mineral stores inside organs and tissues where they are actually used.  You can have "normal" blood levels but still have deficiencies.  This is because the brain demands stored nutrients be put into the blood stream to supply important organs, like the brain and heart, while other organs do without.   If you are taking Thiamine Mononitrate in your supplements, you are probably low in thiamine.  Thiamine Mononitrate is used in many supplements because it won't break down sitting on a shelf.  This also means Thiamine Mononitrate is difficult for the body to utilize.  Only thirty percent of Thiamine Mononitrate on the label is absorbed and even less is able to be utilized by the body.  A different form of Thiamine called Benfotiamine has been shown to promote intestinal healing.   Talk to your doctor about doing a genetic test to look for Celiac markers.   I'm concerned that if you do a gluten challenge (10 grams of gluten per day for a minimum off two weeks) in your weakened state, the nutritional deficiencies will become worse and possibly life threatening.  
    • ElisaAllergiesgluten
      Hello, good afternoon!   I apologize, I didn’t see a notification and I’m just reading this. Thank you so much for sharing your thoughts and the link. Yes you are absolutely right, even so trying to get a response from them has been extremely difficult. They don’t answer but I will your practice of “guilty until proven innocent.”   I like and have a sense of trust here in this website, everyone is honest and thoughts are raw. The mutual understanding is amazing!   thank you Scott!
    • Scott Adams
    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.