Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Antibodies And Inflammation


gilligan

Recommended Posts

gilligan Enthusiast

 It's been a year since diagnosis and my latest blood work shows "no detectable antibodies".  It was a rough year, and I'm finally turning this around, but I'm still 18 lbs. underweight, and I can't seem to put it back on.  My question is this:  Without a presence of antibodies, does this mean that the inflammation is gone and intestinal damage has healed?  Am I not gaining weight because of malabsorption due to intestinal damage?  I thought it took years to repair the damage, so I'm very confused about this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Congratulations! It appears that your body is no longer attacking your intestines but chances are your intestines need more time to heal.

I am coming up to my two year anniversary and I am still struggling with some issues. But my anemia has resolved and my fractures have healed. I am eating some foods that I was not able to tolerate two years ago. Things are looking up!

Please be patient!

ezgoindude Explorer

sup gilligan!

 

You helped me greatly in describing a true SIBO test (i'm still waiting until Jan for insurance, but you bet i'll be asking the doc to do it right the second time)

 

Again I  can only say part of my experience, I didn't test positive for Celiac, or Crohns, or thyroid problems, our current concrete fact is a have chronic minimal levels of inflammation in my bowels, doc is going for EGID or food intolerance/ leaky gut ( i don't care for diagnosis at this point )

 

Like cyclinglady pointed out, my aunt said even if you didn't have any anitbodies that only represents your body has thought to stop attacking itself,  there is still damage and inflammation, possibly leaky gut and areas other food particles are able to leak through and cause havoc as food intolerances.

My coworker firmly believes anyone who has problems with food needs to take digestive enzymes.  I'm not good with the research, but there are several public gov journals that point out close to 30% of celiacs or IBD/IBS can have signs of exocrine pancreatic insufficiency,  or problems with bile absorption.  You could be eating a perfect diet but if the enzymes aren't there it goes right through ya.

 

I have lost 22 pounds since last year leaving me stuck at 140pounds, i am currently contemplating entering enzymes in while waiting for insurance for other testing.... just thoughts!

nvsmom Community Regular

I agree with the others.  Normal antibodies just means that your intestines are no longer under attack.  There could still be other symptoms that still need to heal and your gut may not be all better yet.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748

    Jen72
    Newest Member
    Jen72
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.