Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Digestive Enzymes, Specifically Pancreatic Enzymes, Advice On Tolerance/introduction Phase, Even Worth It?


ezgoindude

Recommended Posts

ezgoindude Explorer

Evening guys,

 

kk I'm undiagnosed still (I'm working on it) but my stools always float, tend to smell, and sometims slide in the bowl (sorry had to describe folks!)   and I can't gain any weight for the life of me.

 

My mom says she has a coworker who discovered they had exocrine pancreatic insufficiency, which looks very common in dogs but so much humans.

 

Anyways, I read the symptoms Im thinking its gotta be worth a shot on enzymes right?  I have to wait for a doctor until January so I was gonna give it a shot.

I bought Digestive basic from enzymatica at sprouts and my stomach can barely tolerate a half a capsule every few days, it looks like people take like several full capsules with every meal?

Did anyone slowly work there way into this?  Should I take one specific enzyme rather instead a full spectrum blend? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I think that enzymes can be necessary for some celiac patients -- and they work. My doctor recommended them but unfortunately for me, I am intolerant to papaya and pineapple (sources of many of the enzymes) so I can not take them. They make me sicker!

ezgoindude Explorer

yea, last year I tried the papaya extract and it felt like i'd drank battery acid (idk what thats like, assuming burning and terrible).   I'm just very surprised that off of half an enzyme capsule every couple days still puts me in a funk, like i've noticed i get alot more gassy, which isn't a bad thing I guess.

 

I'm as usual being impatient and want to hear others experiences with them and how they improved/changed their lifestyle while I ride this out for a couple weeks

1desperateladysaved Proficient

Enzymes have been helpful for me.  They were recommended by an MD, 2 chiropractors, Functional Medicine nurse and Naturopathic physician over the last few years.  The doctors can do a stool test to see if they are needed or not.  I recently stopped taking them for a while and saw some pieces of food coming through in the stool.  Before enzyme use I use to have entire capsules come through unchanged, so I found a variety of enzymes that is in powder form.  One can sprinkle it over their food, or I just add it to a small amount of water before they eat it.  My variety contains Amylase, Protease, Lipase and cellulose.  It is called Genuine N Zimes Dr. Howell's Original Formula Extra-Strength.  I order it through Azure Standard and my container lasts one person a few months.  With shipping the bottle is just under 30 dollars, I believe.  I have tried other varieties from a health food store and any of them seemed to work for me.  I make sure that all three kinds of enzymes are in the ones I buy to help break down fat, protein, and carbs.  After my last experience stopping enzymes, I think I may take them for life.  I need a predictable high enough level of energy.

 

Dee

ezgoindude Explorer

afternoon lady!

 

thank you for the reply, much appreciated.  Yea, the digestive basic capsules i bought have powder in them, I've been pouring a little out so it balances as half a capsule.

Im desperate and bored in terms of trying to improve my health.  My insurance doesn't kick in until january and with all the holiday meals coming up (autoimmune recipies for now) I really think I need the extra kick.

That and EVERY stool I've had in the past four months (well even before that, but the past four months I've seemed to reach a plateau of health),

 

my stools always:

 

float in the toliet (doesn't bug me but people say....)

they smell

are well formed, but will smear on the sides of the toliet when I flush sometimes. 

 

 

my body does not seem to process much if it is too much fat, too much fiber, and too much complex carbs (even sweet potatos I can only have on rare occassion),  it only makes sense my body could use the help, you know?

 

 

If you have time for another question in your regimen lady, I would like to ask:

Can your body handle enzymes with every meal?  do you tend to take more than the recommended dosage if its a heavy meal? Would it matter what time of day if at all?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      322

      Terrible Neurological Symptoms

    2. - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

    3. - knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

    4. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      322

      Terrible Neurological Symptoms

    5. - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,594
    • Most Online (within 30 mins)
      7,748

    Deedeewhiteside
    Newest Member
    Deedeewhiteside
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      Thiamine Mononitrate is "shelf stable" and won't break down easily when exposed to heat, light and over time.  This makes it very hard for the body to absorb and utilize it.  Only thirty percent is absorbed, less is utilized because it takes additional thiamine to break it down.   Thiamine Hydrochloride is great.  Benfotiamine is wonderful, too.   Retaining water, edema, is a symptom of low thiamine.  I'd bloat up like a puffer fish.   The ingrown toenail problems I had that I attribute to Niacin deficiency and Vitamin C deficiency.  My toenails curled in and grew thick and yellow, thickened heels.  It was awful.   So glad you're going to give thiamine hydrochloride a try!   Let me know how it goes.  You may feel worse before you feel better, the thiamine paradox, but it does clear up.  It's like a car back firing if it hasn't been run for a while.   Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • Known1
      Thanks again, I'll keep pressing on.  🤞
    • knitty kitty
      @Known1, Search for "niacin flush fades the longer you use it" and "Niacin flush worse if deficient".   It takes a couple to three weeks for the body to adjust and you're at that point now, so things should improve. Riboflavin makes the neon color, which glows under black light.  If not absorbed, excreted.  Absorption of riboflavin will improve as the body starts healing the intestinal lining and villi grow back.   You could skip the multivitamin instead.  
    • HectorConvector
      The conversion factor for mg/dl and mmol/L is 18. So 5 = 90, 7 = 126, and so on. In the US, blood sugar regulations now are the same as what we use in the UK except for this difference in units. In terms of how they compare in the past, the numbers today that I quoted are stricter than they used to be. Blood sugar numbers for +1 and +2 hour postprandial are measured from the beginning of a meal in these official numbers. In regards to the thiamin supplement I have: it says it is thiamine mononitrate. I had not until now been aware there were different types (it seems I find that is the case with everything, including the magnesium I take!) and this one I have is the only one available in my local stores. I know it makes my pee smell strong when I take it which would seem to indicate my body is absorbing enough that the remainder gets ejected, but I could be wrong. Of course, I'm willing to try anything reasonable to correct this long standing condition, whatever it might be so I will try and get thiamin hydrochloride. Back on the note of diabetes (potentially) I haven't had the blood test for a while and I did notice ingrown toenail type infections a few times in the last 3 years that kept coming back. I heard that diabetes caused high urination. But eating sugar and elevated blood sugar causes the opposite in me. If I eat a lot of sugar I retain water, like big time. If I ate a bunch o sugar in the afternoon say, I can produce little enough urine that I can go over 12 hours and have nowhere near enough urine to need to void in that time or longer which seems abnormal.       
    • Known1
      @knitty kitty For me, the flushing lasts about 10 hours and not just 60-90 minutes after consuming the vitamins.  I am 10-days into taking this already.  My urine is neon colored around the clock and I drink between 1/2 to 3/4 of a gallon of water per day.  I'll stick with 2 a day for now, but am honestly quite hesitant to do so. I am curious, where are you reading "the worse the flush, the more your body needs the niacin"?  I have been searching for that, but haven't found that anywhere.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.