Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Digestive Enzymes, Specifically Pancreatic Enzymes, Advice On Tolerance/introduction Phase, Even Worth It?


ezgoindude

Recommended Posts

ezgoindude Explorer

Evening guys,

 

kk I'm undiagnosed still (I'm working on it) but my stools always float, tend to smell, and sometims slide in the bowl (sorry had to describe folks!)   and I can't gain any weight for the life of me.

 

My mom says she has a coworker who discovered they had exocrine pancreatic insufficiency, which looks very common in dogs but so much humans.

 

Anyways, I read the symptoms Im thinking its gotta be worth a shot on enzymes right?  I have to wait for a doctor until January so I was gonna give it a shot.

I bought Digestive basic from enzymatica at sprouts and my stomach can barely tolerate a half a capsule every few days, it looks like people take like several full capsules with every meal?

Did anyone slowly work there way into this?  Should I take one specific enzyme rather instead a full spectrum blend? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I think that enzymes can be necessary for some celiac patients -- and they work. My doctor recommended them but unfortunately for me, I am intolerant to papaya and pineapple (sources of many of the enzymes) so I can not take them. They make me sicker!

ezgoindude Explorer

yea, last year I tried the papaya extract and it felt like i'd drank battery acid (idk what thats like, assuming burning and terrible).   I'm just very surprised that off of half an enzyme capsule every couple days still puts me in a funk, like i've noticed i get alot more gassy, which isn't a bad thing I guess.

 

I'm as usual being impatient and want to hear others experiences with them and how they improved/changed their lifestyle while I ride this out for a couple weeks

1desperateladysaved Proficient

Enzymes have been helpful for me.  They were recommended by an MD, 2 chiropractors, Functional Medicine nurse and Naturopathic physician over the last few years.  The doctors can do a stool test to see if they are needed or not.  I recently stopped taking them for a while and saw some pieces of food coming through in the stool.  Before enzyme use I use to have entire capsules come through unchanged, so I found a variety of enzymes that is in powder form.  One can sprinkle it over their food, or I just add it to a small amount of water before they eat it.  My variety contains Amylase, Protease, Lipase and cellulose.  It is called Genuine N Zimes Dr. Howell's Original Formula Extra-Strength.  I order it through Azure Standard and my container lasts one person a few months.  With shipping the bottle is just under 30 dollars, I believe.  I have tried other varieties from a health food store and any of them seemed to work for me.  I make sure that all three kinds of enzymes are in the ones I buy to help break down fat, protein, and carbs.  After my last experience stopping enzymes, I think I may take them for life.  I need a predictable high enough level of energy.

 

Dee

ezgoindude Explorer

afternoon lady!

 

thank you for the reply, much appreciated.  Yea, the digestive basic capsules i bought have powder in them, I've been pouring a little out so it balances as half a capsule.

Im desperate and bored in terms of trying to improve my health.  My insurance doesn't kick in until january and with all the holiday meals coming up (autoimmune recipies for now) I really think I need the extra kick.

That and EVERY stool I've had in the past four months (well even before that, but the past four months I've seemed to reach a plateau of health),

 

my stools always:

 

float in the toliet (doesn't bug me but people say....)

they smell

are well formed, but will smear on the sides of the toliet when I flush sometimes. 

 

 

my body does not seem to process much if it is too much fat, too much fiber, and too much complex carbs (even sweet potatos I can only have on rare occassion),  it only makes sense my body could use the help, you know?

 

 

If you have time for another question in your regimen lady, I would like to ask:

Can your body handle enzymes with every meal?  do you tend to take more than the recommended dosage if its a heavy meal? Would it matter what time of day if at all?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd commented on Scott Adams's article in Origins of Celiac Disease
      8

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

    2. - knitty kitty replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Reverse Osmosis (RO) Water

    3. - Yaya replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Great Value Veggies cannot be trusted.

    4. - Known1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Reverse Osmosis (RO) Water

    5. - Known1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,445
    • Most Online (within 30 mins)
      7,748

    JamesM
    Newest Member
    JamesM
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      I've heard RO water is bad, too.   Distilled water has all the minerals distilled out of it, so it will pull minerals out of your bones, too.  I only use distilled water to fill up my clothes iron so it won't get mineral deposits inside and quit working. I drink mineral or spring water.  
    • Yaya
      Scott.  Thank you for your reply. I'm still having symptoms, but significantly better.  I will go back to batch cooking and freezing vegetables.  I have had success with Pict Sweet frozen, single item (not mixed) vegetables.  My Kroger carries very little Pict Sweet variety. Regards, Yaya
    • Known1
      I am hesitant to post this as I have seen many people here recommending RO water.  With that said, I want to share my experience and how RO water now impacts me.  Three or four years ago a local store installed a RO water refill station.  I had been buying gallons of distilled and spring water prior to that.  I switched over to using the RO water refill station saving money by brining in my own clean empty gallon jugs.  Every 6-months I would replace the jugs by buying new gallons of distilled water.  This RO water is the only water I would drink while at home.  Two huge glasses every morning before work and two more after work.  I would also use the RO water to make coffee and hot coco. This past December, prior to my celiac diagnosis, my gut was making more noise than anything I had ever experienced.  Seriously, it was crazy, almost like fire works going off in my stomach.  I happened to pick up some distilled water for my 6-month jug rotation.  Literally, as soon as I started drinking the distilled water my stomach settled a great deal.  I could honestly feel the difference after the first glass of water.  I thought that maybe the RO water from the store's refill station was contaminated with some sort of cleaning agent.  I swore to myself I would never drink from that RO refill station again.  Instead I went back to buying distilled along with gallon jugs of spring water.  No issues with either of those as far as an upset stomach is concerned.  Cost, well that's a different story all together. After being diagnosed marsh 3c, I went shopping at Aldi's for the first time in my life.  I noticed they also sell water by the gallon.  Over the course of the last few weeks, I have purchased a total of 6-gallons of their water.  (Thankfully they were out on two of my visits.)  After having my stomach starting to make noises similar to mid-December again, it dawned on me, maybe its the Aldi water?  Initially I had contributed my bubble gut to some sort of gluten exposure or cross contamination.  Even though everything I have put into my stomach is naturally gluten-free or has been labeled gluten-free / certified gluten-free.  I had assumed that the Aldi water was spring water.  Come to find out, that was a bad assumption.  Looking close at the label it says purified by RO or distillation (or something like that). Again, I switched to different water.  Just like last December, the non-RO water instantly calmed my stomach and even felt better going down the hatch.  This was earlier today by the way.  Prior to creating this post, I did a few searches via Uncle Google.  I bumped into a thread on Reddit (where I am not a member) that has multiple people complaining of GI issues related to RO water.  So my initial thoughts on a cleaning agent in the refill station RO water were likely not correct.  Unfortunately, it seems the RO water itself causing me problems.  I am not sure if we are allowed to post links to other sites and hopefully I will not get into trouble for doing so.  I did try printing the Reddit thread to a PDF file.  Unfortunately, the file is 2MB in size, which is well over the 500KB file attachment limit here on this amazing forum.  Again, hopefully this is ok.  🤞  Here is the Reddit thread. This may not be a popular opinion here, but personally, I will not willingly drink another glass of RO water for the remainder of my life.  Who knows, maybe drinking RO water for the past several years is part of what activated my celiac?  No proof, but just a thought.  Come to find out RO water is well known to leech minerals from your body.  With people like us often lacking minerals to begin with, RO water does not seem like a wise choice.  As the Reddit thread mentions, there are RO water filtration systems that will inject minerals back into the water.  However, those systems are likely not being used at the grocery store refill stations nor by the bottling companies producing RO water for sale at your local store. Please do not shoot the messenger as I am just sharing my personal experience and letting others know that most RO water will leech minerals from your body. God bless and stay well, Known1
    • Known1
      My neighbor's mom was diagnosed with celiac disease 16 years ago.  She is a very kind person and has shared some info about local grocery stores and daily (soon to expire) meat deals.  This evening she brought over 2 slices of Papa Murphy's gluten-free pizza.  It looks to be topped with chicken and spinach.  I asked, "aren't you concerned with cross contamination"?  She said no and apparently eats it on a somewhat regular basis. I found an old article here along with another thread pertaining to Papa Murphy's gluten-free pizza.  The article is quite old, so I do not think it holds much weight nowadays.  The thread I found was also a bit dated, but certainly more recent and relevant.  The information in the thread I found was a bit inconclusive.  Some said they trust Papa Murphy's gluten-free pizza and others were a big no way.  One person even took time to train their local franchise on how to ensure the pizza remains gluten-free without cross contamination. Anyway, being recently diagnosed as marsh 3c, I am currently working on week 3 or 4 in my new gluten-free journey.  I do not want to be rude and toss the pizza out, but I also do not want to have a reaction.  Since she has celiac and obviously ate much or at least some of the pizza, I am leaning towards eating the two slices for lunch tomorrow.  As this thread's title states, what would you do?  Would you eat it or toss it out?  I suppose I could also just give it back to my neighbor to polish off. I look forward to reading your thoughts. Thanks, Known1
    • Scott Adams
      That must have been really upsetting to discover, especially after relying on a product you believed was safe. Labeling can change at any time due to supplier shifts or shared equipment, so it’s always important to double-check packaging—even on products we’ve trusted for years. A “may contain wheat” statement usually indicates potential cross-contact risk rather than an added ingredient, but for people with celiac disease that risk can still be significant. If you’ve been having symptoms, it may take days to weeks to fully settle, depending on the level and duration of exposure. In the meantime, switching to fresh produce or brands that clearly state gluten-free status is a reasonable step. It may also help to contact the manufacturer directly to ask when the labeling changed and what their current cross-contact controls are.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.