Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First Time Being Glutened Or ... ?


sweetpomme

Recommended Posts

sweetpomme Newbie

Hi everyone :)

So I am gluten free since November 1st. I don't know how much time it usually takes before you start to feel better, but I started immediately feeling better and have more energy. For the first three weeks I was feeling very good. Then I had a few days of training where I had to eat outside and even with all the precautions I started having symptoms again, and now for the last few days I feel very tired and I sleep a lot, and just not feeling very good overall. I was wondering, do you think I was glutened, or my body is just not ''healed'' yet, because I've been gluten free for a few weeks only? I just wanted to share this with you because this makes me feel very depressed and frustrated right now...

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

At this early point in your recovery, there is no way to know for sure if you are glutened or f it was just a blip in your recovery.  The first 6 months gluten-free can have a bunch of ups and downs.  When you feel poorly it is always a good idea to recheck all of your food labels and recheck for cc, but if you find no gluten culprits, the you know it's just part of your recovery... Recheck those labels though, most of us made more mistakes early on until we learned what brands were safe.

 

You might want to consider dairy too. About half of all celiacs are lactose intolerant when they are diagnosed.  That often changes as you heal, but many of us find it helpful to drop dairy for 6 months or so.

 

Hope you feel better soon.

Japonpoko Newbie

I was exactly in the same situation (felt a lot better, then went down) 2 months ago, except I know I was glutened. I still feel bad, even though I stopped everything which could have gluten in it, but I haven't dropped dairy (might be the reason now that I think about it, as I'm eating soyjoy snacks which are not dairy free).

Pretty hard, and I really know how you feel. But I guess we have no choice but to wait.

Can't give you much advice, as I'm a "beginner" as well, but I just wanted you to know you're not the only one feeling that way, if that can be of any help ^^

1desperateladysaved Proficient

I had 4 days of great bliss after going gluten free followed by trouble.  I now think it was due to cross contamination of things I was using for the family.  It also likely was cleanout.  Hang on, learn as you are trying to do.  My lowest lows have often been followed by my highest highs.  Don't give up!

 

Dee

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,488
    • Most Online (within 30 mins)
      7,748

    Debruary
    Newest Member
    Debruary
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.