Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Michelle In Utah?


anjayrose

Recommended Posts

anjayrose Newbie

I saw a post from a Michelle in Utah saying that she had a GI doc at the U of U. This was back in June. I was hoping she is still around to tell me who that doc is. I need a doc and have the U insurance. The way I found that post is Google. What a wonderful thing that is. HELP! :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skbird Contributor

She hasn't been posting lately but I"ll send her an email and see if she can get back to you.

Take care

Stephanie

Emme999 Enthusiast

Hello :)

(Michelle has changed her major to Health Promotion & Education & is SLAMMED writing a research proposal paper! And then there's the rest of my stuff... ugh :P )

ANYWAY!

The doctor/nurse practitioner who helped me the most at the Student Health Services is Suzanne Martin. She is AWESOME and helped me to figure out all of my stuff - directing me to all the right providers. If you see her, tell her that Michelle with Celiac says hi ;) She's probably know who you're talking about! (Poor woman!)

If you need help with Celiac or anything like that (from a local U student, please email me :) I could always use a local Celiac friend ;)) But - I'm not going to be any help to anyone until after the 18th when I hand in this hellish paper. Ugh!

Also - I am seeing Dr. Hugo Rodier now (who teaches nutrition at the U. Med School) and is brilliant. He even has his own radio show :o (Does this mean anything? I don't know ;)) Anyway, he's helping me get through my decade long (okay, not really) battle with Candida that seems to have overtaken my intestines. His focus for health is the intestines - so if you need a general practitioner (who is great, but not covered completely by the student health insurance and prescribes unbelievably costly supplements) - he's your man. His office is located in Draper.

Contact me (email) if you need anything else. Best wishes ;)

- Michelle :wub:

P.S. HI EVERYBODY!!! I MISS YOU ALL :)

anjayrose Newbie
:D Thank you so much for getting back to me. I am not sure if the U insurance covers the school of medicine but I will definately check. I dont want to go to some GI doc that thinks I have IBS again. I feel better on the diet but I just need some things answered and would like to have a positive diagnosis. This maybe my last thanksgiving as a real person. People at work dont understand me and I am starting to get really angry everytime they do something that involves food but leave me out. BTW I work for the U, but I dont go to school there. Thanks for all your help! I hope to be posting more. :wacko:
celiac3270 Collaborator

Yay! You're back--sort of--will be back.

  • 3 weeks later...
bknutson Apprentice

Bean, or Mehielle, in Utah, this is Barb in Utah, I have a Dr. Pederson in SLC and he is the on who diagnosed me right off the bat the first time I went to him. I have not made it into the dietision yet but hope to soon. Are you doing really good with your celiac disease? How old are you? Have you heard all the skuttle but here in Utah about it all being such bull and another lyme desiese thing. That there is no such thing and so on? I had a lady at my work say that and I told her to have my stomach for a week and then tell me it was bull..

Any way it is nice to know that someone nearby has the same thing.

Barb

Emme999 Enthusiast

Hey Barb,

Is Dr. Pederson the gastroenterologist at St. Marks? I've met him before (he spoke at one of the GIG meetings) and he seems like a really cool guy.

I never met with a dietician but went to a few presentations on Celiac by dieticians who totally sucked. You'll find much better info. here ;)

I am doing *really* well with my Celiac. Well, except for the fact that I have intestinal candida that wont go away *sigh* :(

BUT! I have not been glutened in months and feel fantastic :wub: I'm 32 years old and feel better than I have through most of my life. Before I was diagnosed (and during the first months after I was diagnosed) I suffered from a lot of depression/anxiety/irritability & such. Now I am finally a happy woman and not so exhausted all of the time. :) Life is good. (And hopefully will keep getting better! - I've only been gluten-free since May)

I *haven't* heard anything about Celiac being a joke here. In fact, over the past couple of months there have been two huge articles in the papers (Tribune & Deseret News) about Celiac disease. A new store also just opened in West Valley called "Against the Grain" that caters specifically to Celiac people :) I haven't been there yet but I'm thrilled at the mere thought of it ;)

Best wishes to you!

- Michelle :wub:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shayesmom Rookie
Hey Barb,

I am doing *really* well with my Celiac. Well, except for the fact that I have intestinal candida that wont go away *sigh* :(

What have you tried for getting rid of the intestinal candida?

I know there is Nystatin and a host of other drugs but I have found that supplements such as Candex are one of the best products in killing off candida. Probiotics also are helpful (but seem to take longer). And the only other thing is diet. No refined sugars and fermented foods. Also cut back on mushrooms for a while until the bacteria is under control. You could also throw in some yogurt with live bacterial cultures if you don't want to take a pill. Sorry if any of this is a repeat of what you've been doing.

Your story is wonderful and I'm glad that you feel so well.

Emme999 Enthusiast

Thanks for the suggestions but (yup) I've already tried all of them.

Fortunately, I've found a doctor who addresses intestinal issues and is furious that few other doctors acknowledge intestinal candida.

I have done numerous courses of Diflucan, damn near every alternative method you can think of, and diet too.

Currently, we are attempting to fight it with Lamisil (part of it isn't absorbed and goes into the intestine - which some think may address intestinal candida), oral gentamycin (a broad spectrum antibiotic to kill anything else that might be in there causing trouble), probiotics, a no sugar/grain/processed foods diet, and tomorrow I pick up my prescription for an anti-parasite drug. (I don't know the name of it yet.) I figure if all this stuff doesn't kill the Candida it will probably kill me and then I wont have to worry about it anymore anyway ;)

Thank you for your concern and suggestions though. Compassion is always greatly appreciated :wub:

And - like I said - despite the Candida, I am feeling exceptionally well. (Sadly) I've become used to this infection and it doesn't irritate me like it used to. I would, however, love to be rid of it and find out who a truly healthy me is ;)

- Michelle :wub:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to AnneBSunflower's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      mystery gluten?

    2. - knitty kitty replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Struggling to get into a good pattern

    3. - knitty kitty replied to kopiq's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      almost a year in recovery - so many questions about to give up

    4. - Rejoicephd replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Struggling to get into a good pattern

    5. - trents replied to junell's topic in Related Issues & Disorders
      1

      Help!


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,649
    • Most Online (within 30 mins)
      7,748

    Ryan Bannon
    Newest Member
    Ryan Bannon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @AnneBSunflower, I have Hashimoto's, too.  I've learned some things that have helped with mine. This study says it's common to find anti gluten antibodies in Hashimoto's.  So antibodies aren't necessarily due to gluten ingestion.   https://pubmed.ncbi.nlm.nih.gov/31149170/   Take a B Complex supplement and Benfotiamine, a form of thiamine shown to promote intestinal healing, and Vitamin C.  This study found a higher rate of thiamine and Vitamin C deficiencies in people with Hashimoto's.   https://pubmed.ncbi.nlm.nih.gov/37278003/   Try cutting back on the amount of iodine in your diet.  Iodine, even in small amounts, can stimulate the thyroid which in turn stimulates the immune system which increases antibody production.   Dairy and eggs are high in iodine.  Switch from iodized salt to Pink Himalayan salt.   https://pubmed.ncbi.nlm.nih.gov/9703374/   Supplement with Selenium, a mineral that helps the thyroid function and calms the immune response in the thyroid.   https://pubmed.ncbi.nlm.nih.gov/37033262/ Hope this helps!  Keep us posted on your progress!
    • knitty kitty
      @Rejoicephd, Would you consider adding a B Complex to your supplements?   I was taking a multivitamin and still became deficient.  There's a question as to how well multivitamins dissolve in the digestive system.   I found taking a B Complex and Benfotiamine, a form of thiamine shown to promote intestinal healing, very beneficial in my recovery.   Some B Complex supplements use Thiamine Mononitrate which is not well absorbed nor utilized by the body.  Thiamine Hydrochloride is better.  Benfotiamine is easily absorbed.  If not needed, the B vitamins are easily excreted. High B12 out of the blue could be masking a lack of other vitamins that work with B12, like Folate B 9, Pyridoxine B 6, and Thiamine B 1. Meats and liver are great sources of B vitamins.  B vitamins are needed to make digestive enzymes that digest protein, fats, and carbohydrates.   Do keep in mind that most gluten free processed facsimile foods are not required to be enriched with vitamins and minerals lost in processing like their gluten containing counterparts.  The more carbohydrates you eat, the more Thiamine is needed to process them into energy instead of storing them as fat.   Hope this helps!  Keep us posted on your progress.
    • knitty kitty
      @kopiq,  Your case is not hopeless.  Doctors are not required to learn much about nutrition.  Celiac Disease causes damage to the lining of the small intestines resulting in malabsorption of essential vitamins and minerals.  The eight essential B vitamins  and the four fat soluble vitamins (A, D, E, and K) are chemical compounds that our bodies cannot make, so we must get them from what we eat.  If we're not absorbing sufficient amounts from our food, then supplementing with vitamins and minerals help boost our ability to absorb them.  The B vitamins are safe and water soluble, easily excreted in urine if not needed or not absorbed.  Essential minerals are important, too.  Magnesium and Thiamine make life sustaining enzymes together.   Blood tests for the B vitamins are notoriously inaccurate.  By the time a deficiency shows up in the blood, you've been deficient for a few years. The best way to tell is to try taking a  B Complex and looking for health improvements. Taking a B Complex and Benfotiamine, a form of thiamine shown to promote intestinal healing, helped me immensely.  I also took Vitamin D and Magnesium Glycinate and others. Did your doctor offer any treatment to correct your critically low Vitamin D level?   Mine was lower than yours.  My doctor prescribed the less bioavailable form D2.  Our bodies utilize the D3 form better.  I bought over the counter Vitamin D3 supplements (1000 IU) and took several with each meal.  Taking high doses of Vitamin D to correct a deficiency is safe and very effective at improving health.  I started feeling better quickly.  Vitamin D helps regulate the immune system and lower inflammation, as well as makes hormones. Laying out in the sun cannot correct a Vitamin D deficiency unless you're below the 33rd parallel (on a tropical island with abundant exposed skin for several months).  Ultraviolet rays from the sun destroy the thiamine in the body.  That feeling of lethargy is because the sun exposure broke down thiamine into unusable pieces.  Thiamine and the B vitamins make ATP, the energy currency the body requires to function, to make digestive enzymes, to regulate body temperature, to think, to heal itself.  We need more Thiamine when we're outdoors in hot weather, working or exercising.  Thiamine deficiency doesn't cause heat stroke, but thiamine deficiency can make heat stroke symptoms worse.  We need more Thiamine when we're physically ill or injured or undergoing medical procedures.  We need more Thiamine when we're emotionally stressed or traumatized.  Anxiety and depression are very early symptoms of thiamine and other nutritional deficiencies.   Rashes can be caused by deficiencies in Niacin B3, Vitamin A, or Vitamin C.  Some rashes can become worse with exposure to sunlight.   The B vitamins are needed to make digestive enzymes that will help you digest fat and proteins better.  Meats are an excellent source of B vitamins.  Sweet potato and plantain are high in carbohydrates.  The more carbohydrates one eats, there is a greater metabolic need for thiamine to turn them into energy, ATP. Can your doctor refer you to a dietician or nutritionist?
    • Rejoicephd
      Thank you @cristiana.  Its really helpful to hear your experience, thanks for sharing.  8 years is a long time!  And its also good to know that others have experienced worsening before it gets better.  I've just started doing the food diary recently, and I'll keep that going. It's at least helping me try to get a handle on this, and also helps increase my overall awareness of what I'm putting in my body. I will also message my GI doc in the meantime too.  Thanks, it's really helpful to talk through this.  
    • trents
      Yes, the development of additional food intolerances is a common spinoff of celiac disease. To ensure valid testing after beginning a "gluten challenge" you would need to be consuming at least 10g of gluten daily (about the amount in 4-6 slices of wheat bread) for at least two weeks. Many cannot follow through with this regimen, however, as their intolerance reactions are just too strong and present too much health risk.
×
×
  • Create New...