Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Celiac Make A Kid Sick Enough That He Stops Going To School?


cwnhokie

Recommended Posts

cwnhokie Rookie

I'm just grasping for answers while we try to figure out what is going on with my 12 year old son.  He has been getting progressively sicker over the last 6 months to a year.  He complains of nausea, vomiting, headache, diarrhea, chills, hot flashes, fatigue and he just got over a kidney stone.  His episodes have been more and more frequent.  6 months ago it was for a few days every few weeks, then for a few days every week, now he feels good maybe a day or two a week.  He is now on home bound instruction for school.  Could it be Celiac that is making him feel this lousy?  Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

is he under a doctor's care?  

 

yes, celiac *can* make a person that sick.   if you suspect he may have it, you should get him tested BEFORE removing gluten from his diet, because it will make the testing inaccurate.  good luck :/  sorry that your son is feeling so ill :(

Ginkgo100 Rookie

I'm just grasping for answers while we try to figure out what is going on with my 12 year old son.  He has been getting progressively sicker over the last 6 months to a year.  He complains of nausea, vomiting, headache, diarrhea, chills, hot flashes, fatigue and he just got over a kidney stone.  His episodes have been more and more frequent.  6 months ago it was for a few days every few weeks, then for a few days every week, now he feels good maybe a day or two a week.  He is now on home bound instruction for school.  Could it be Celiac that is making him feel this lousy?  Thanks!

 

It definitely could be celiac disease. Kids with this disease died on a pretty routine basis (I seem to remember reading that 1/3 of all celiac kids died in any given year) before the role of gluten, and the importance of the gluten-free diet, was discovered. Most of the deaths were slow and painful due to malnutrition (malabsorption from damaged intestines). My own son was hospitalized for symptoms when he was barely a year old, which is how he was initially diagnosed.

 

I second the other person who said to NOT go gluten-free until after all testing is completed. Testing and formal dx are important for this disease because it affects your life so profoundly, and if a person stops eating gluten before testing, they could get a false negative. (It was the hardest thing in the world for me, when my son was 12 months old and in the hospital, after his antibody test was positive and we knew it was probably celiac, but he hadn't had the biopsy yet... because I had to make sure the poor kid ate at least some of the bread that came with his meals. Knowing it was probably making him sicker, but also knowing it would prevent a false negative test. Now I'm glad I did it. That positive biopsy result means I never have to second-guess myself when he cries over not getting a treat that has gluten, or when I'm explaining the gluten-free diet to a teacher.)

nvsmom Community Regular

Celiac symptoms can be quite severe in some - there are many adults around here who missed work because of it.  Getting him tested sounds like a good idea.

 

Best wishes.
 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,117
    • Most Online (within 30 mins)
      7,748

    rubyterrapin
    Newest Member
    rubyterrapin
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.