Recommendation On Dr. To Treat Celiac-Induced Neuro Symptoms?

[Integrous]

After 15 months gluten free, my antibody numbers have finally normalized and a biopsy shows marked gut healing (from a Marsh 3C to "between 1 & 2").  However, I continue to have severe (crippling) brain fog and memory loss that have not improved, despite a clean bill of health from my neurologist.  

 

If you're aware of a doctor or practice in the U.S. that is particularity good at treating the neuro effects of celiac disease, would you please share?  Thanks

[cyclinglady]

From what I understand (being a celiac and diabetic who has had Neuropathies and brain fog), neurological damage takes a long time to heal and sometimes damage is permanent. Leading researchers are now aware that gluten can affect the brain and nervous system but they are not sure how. Science is trying to catch up.

Your last biopsy has improved but it does not seem like it is completely healed yet. Are you deficient in anything?

Personally, I think you need more time!

[sunny2012]

Neuro symptoms take a long long LONG time to heal. I finally was able to walk a short distance unaided after 9 months. It took 5 years to notice real improvement in brain funcions.

[sunny2012]

Some body systems are very reactive to even minor changes in vitamin mineral, fat, and protein absorption. And some "symptoms" appear minor to the medical profession. I recently had very severe dizzy spells which were written off as minor inner ear infection. A short time later, I was in hospital needing blood for severe low iron. The dizzy spells were early warning that something was off and getting worse.

 

We have to accept that most “normal” ranges for testing are based on a lot of information from people who are actually sick.