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Should Celiac Be Called A Disability? - Daily Beast


Scott Adams

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Scott Adams Grand Master

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Daily Beast

In other words, Chang's is in violation of the ADA, the lawsuit alleges, by charging more to only those people with the disability: the inability to healthfully consume gluten, whether celiac or any number of other diseases identified with gluten ...

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nvsmom Community Regular

Interesting... I never thought to compare a gluten-free menu to having wheel chair ramps in terms of accessibility...they wouldn't charge the handicapped extra to cover the cost of the ramp construction but they charge extra for the extra care needed for making gluten-free food.

I don't really agree with the law suit, or calling celiac disease a disability, but it was an interesting way to spin it.

sunny2012 Rookie

Under the law Celiac is a disability. WE have no choice in if we eat gluten or not. It will kill. While not an allergy, it is not that different from preventing someone with a serious peanut allergy from getting any peanut in their meal. Do they pay more?

 

I don't know if I agree or not. I was diagnosed by biopsy before the blood test was developed. IN fact, I was part of the team that for the blood testing. 

 

I would worry that I don't have the actual results of the biopsy. Does the hospital keep those records?

There is NO WAY that I would eat gluten just so it could be RE-confirmed. I nearly died from Celiac.

StephanieL Enthusiast

Under the law Celiac is a disability. WE have no choice in if we eat gluten or not. It will kill. While not an allergy, it is not that different from preventing someone with a serious peanut allergy from getting any peanut in their meal. Do they pay more?

 

Do not compare apples to oranges here Sunny.  They aren't even close to the same thing.

nvsmom Community Regular

The thing is that we don't have to eat in that restaurant to live, but then again, neither does someone in the wheelchair.

hrenee101 Newbie

I personally don't mind paying a little more when eating out at a restaurant that offers gluten free options. I know its not always the easiest to change what you are making to make gluten free food. I think restaurants that are willing to make accommodations for those of us with celiac disease are few and far between and I am just happy when I can find somewhere to go that is safe to eat at. 

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    • Scott Adams
      Your doctor is most likely correct here, and if you had high tTg-IGA and villous atrophy you likely have celiac disease and need to be gluten-free. If regular small amounts of gluten get in your diet, it will prevent recovery. Eating out in restaurants is the primary source of such contamination.
    • Scott Adams
      Mostly trial and error and noticing the effects of the supplements over time. It's important to look at the bottom of my original post in this thread to see nutrients that can be toxic in higher does, especially over long periods of time.
    • Scott Adams
      As @trents mentioned, removing gluten if you have celiac disease would be key to villi recovery, and if you still are having issues trying to identify other triggers would be the next step, even though the additional intolerances will not likely contribute to villi recovery. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:      
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