Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Low Stomach Acid? Need Advice!

bakergirl90

By bakergirl90
in Related Issues & Disorders

Recommended Posts

bakergirl90 Apprentice
bakergirl90
Posted

So I was diagnosed with Celiac back in July. Been gluten free ever since. Had several glutenings for a while and I am sure those set me back. But for several months now, I have completely stopped going out to eat. And I also cut out all dairy. It is just not worth the risk for me right now.

I had an endoscopy in the fall to confirm my celiac diagnosis. and ever since then I am having problems with Acid reflux! I have never had chronic problems with it before diagnosis. My main symptom of acid reflux is a really sore throat, earache and headache. I get heartburn also of course.. but the worst part is the throat ache. For a while i couldn't swallow. 

A couple weeks ago I took a look back in my throat with a flashlight, And I have bumps in the back of my throat! I went to the doctor who told me it was most likely from my acid reflux, So of course they are giving me acid suppressing meds. I tried Nexium (40 mg) for literally a day, and had the worst nausea that I couldn't even go about my day normally at all. So I went back to the doctor and they gave me Zantac (300 mg a day), I am not getting nausea, but it is making the throat pain slowly get worse!!! 

I have been taking it almost a week now. I stopped for now...because I don't want my problem to be worse. 

I have been reading all about Low Stomach Acid, and all the research that has been done on it, and I am starting to think that may be what is causing my acid reflux. I match most if not all of the symptoms. I also still suffer from stomach/abdomen pain after eating, my abdomen is always tender. I have back pain, headaches, I am depressed and anxious, I am ALWAYS tired (Very rarely do I have energy and I take a multivitamin every day!), I can't concentrate on things very well at all, my vision is almost blurry (having brain fog still on a consistent basis) I feel as if my bowel movements always have undigested food in them (sorry for the TMI), I can barely get out of bed in the morning because I am just so exhausted from all these ailments. 

I really want to try Betaine HCL supplements, because I really feel they may help me. I want to know if any of you have tried this with success? Or what you think my problem may be. I am going to of course go back to the doctor... I am just SO sick of being sick! And so sick of going into the doctor every damn week with problems. Does it ever end?? :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Have they ruled out Eosinophilic esophagitis (EoE)? But the reality is that you are still healing. It has taken me almost two years to feel well and normal. I had to hit the first year mark before I really saw any improvement. I also lived with a gluten-free husband (gluten-free for 13 years) so I really knew the drill of avoiding gluten. There is a huge learning curve and I did not have to suffer through that! Glutened hubby early on though!

Has your doctor checked for deficiencies, a low thyroid, anemia?

You will improve. It just takes time.

kellysensei Apprentice
kellysensei
Posted

My doctors think I have acid reflux, too, and have tried to put me on PPIs. I tried Omeprozole for 30 days last year, and it was one of the worst months of my life - acid reflux got worse, plus I got nausea, headaches, diarrhea, fatigue, sinus infections...ugh. Now every time I tell a doctor I think maybe I have *low* stomach acid, they scoff or get defensive and try to put me on different PPIs. No, thank you.

 

I haven't tried HCL yet, and my doctors thus far have either not heard of it or don't know much about it. I'm going to a cough specialist next week and will ask her about it (my main reflux symptom is a terrible, chronic cough). I have asthma, too, so the reflux and asthma are probably related.

 

A strict Paleo diet seems to help me (I do eat some white rice) ,but I'm still having symptoms, so next I'm going to try reading "Fast Track Digestion" by Norm Robillard. Check it out on Amazon; many reviewers say it changed their life and their acid reflux went away.

 

Whatever you do, get off the acid reflux meds, IMO.

1desperateladysaved Proficient
1desperateladysaved
Posted

I used HCL under the guidance of a functional medicine nurse.  These helped me break down my food better and after some time I didn't need them any more. 

 

Dee

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rogol72
      - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying...
    2. Scott Adams
      - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin. In the early 1900s, refined white flour replaced whole grains, and people began...
    3. Scott Adams
      - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted...
    4. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      CT with contrast.

      Thank you.
    5. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased int...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,441
    • Most Online (within 30 mins)
      7,748
    Linda Boxdorfer
    Newest Member
    Linda Boxdorfer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Rogol72
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Rogol72 · Posted

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.