Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Else With Lymphoma?

fran641

By fran641
in Related Issues & Disorders

Recommended Posts

fran641 Contributor
fran641
Posted

I was DX with celiac in 2009 (undiagnosed for 30 yrs) then in 2010 fNHL was found in colon during colonoscopy. PET scan showed it had spread to most of my body from ribs down. In 2011 After chemo and 3 month follow up testing it had returned in more aggressive form of DLBC lymphoma In my pancreas. Chemo again and radiation beat it back. I was wondering if anyone else around these boards had similar problems.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

Glad you are giving it a beating, Fran.  :) Best wishes.

GF Lover Rising Star
GF Lover
Posted

Hi Fran and Welcome!

 

It seems to me that the longer one goes un-diagnosed, the more damage does not reverse and the body does not completely recover.  I have cancer also, Metastatic Melanoma, diagnosed just 5 months after Celiac Diagnosis and also 4 AI Diseases diagnosed before Celiac diagnosis and 1 more diagnosed after Celiac and Cancer.  Things seem to keep going downhill at this point.  My AI system seems to always be flaring now.  I have Angina and COPD, arteries are thickening and my quality of life has gone to s$#&.  I also have granulomas growing on internal organs and more growing faster on my thyroid.  I've had surgeries and immunotherapy treatments with my Cancer and just can't seem to get to a point where I feel good and have kinda given up ever feeling good again.  When our health goes its gets depressing and exhausting and its a whole other fight to stay positive.  I have had to give up a lot of activities but have  picked up a few, like painting that are not so exerting.  

 

Just keep doing your best  :D , that's all we can do.

 

Wishing you well,  Colleen

icelandgirl Proficient
icelandgirl
Posted

((((Hugs)))) Fran and Colleen.

Gemini Experienced
Gemini
Posted

Fran and Colleen are the type of people who inspire so much inspiration and courage when we hear of your struggles. I went a long time undiagnosed also and ended up with 4 AI diseases but they pale in comparison with what you both deal with on a daily basis. Just keep on swinging that bat and don't give in! I hope 2015 is an uplifting and healthier year for you both!

nvsmom Community Regular
nvsmom
Posted

Well said.  :)

GF Lover Rising Star
GF Lover
Posted

Fran and Colleen are the type of people who inspire so much inspiration and courage when we hear of your struggles. I went a long time undiagnosed also and ended up with 4 AI diseases but they pale in comparison with what you both deal with on a daily basis. Just keep on swinging that bat and don't give in! I hope 2015 is an uplifting and healthier year for you both!

 

2015 is already better.  First full day of vacation in Florida starts today  B)

 

We all have our battles and all do our best.  I always told my kids....Just Keep Swimming!!!!  :D

 

Colleen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted

2015 is already better.  First full day of vacation in Florida starts today  B)

 

We all have our battles and all do our best.  I always told my kids....Just Keep Swimming!!!!  :D

 

Colleen

Would you, by chance, be planning a visit to that rabble rouser Irish on your Florida vacation?  :P   I hope you have a wonderful time, whatever you do! As the Rolling Stones say....get your ya-ya's out!!!!!!!  :D

GF Lover Rising Star
GF Lover
Posted

Would you, by chance, be planning a visit to that rabble rouser Irish on your Florida vacation?  :P   I hope you have a wonderful time, whatever you do! As the Rolling Stones say....get your ya-ya's out!!!!!!!  :D

 

She's on my list !!!  So excied  :D .  This is the good stuff in life that makes the rest tolerable.  I walked 2 miles today, had a long break between the two and 1 mile was more of a stroll, but it felt great !!!  Ya-Ya's  ;)

Gemini Experienced
Gemini
Posted

She's on my list !!!  So excied  :D .  This is the good stuff in life that makes the rest tolerable.  I walked 2 miles today, had a long break between the two and 1 mile was more of a stroll, but it felt great !!!  Ya-Ya's  ;)

You two stay out of trouble, but of course, we will want details!  ;)  This trip will do you a world of good so enjoy every minute of it.

fran641 Contributor
fran641
Posted
  • Author

Colleen my dance with C pales in comparison with your on going fight. It is hard to keep that smile going at times. Glad you are going on vacation and hope you have a blast even if it is a slow stroll. Thanks everyone for your kind words. All of you have to keep putting one foot in front of the other to get to the other side when dealing with celiac and all is baggage.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,536
    • Most Online (within 30 mins)
      7,748
    Flibertygibbet
    Newest Member
    Flibertygibbet
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.