Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Dh People


doc white

Recommended Posts

doc white Newbie

Hi Dh sufferers i want to try and help a many Dh people as i can. I have dh it's one of the worst things you can get. My arms were covered and legs, head I'd have to get shower 4 times a night it would drive me crazy I'd itch all day. I was on dapsone for a short time until my wife told me about coconut oil.i started with on heat spoonful for the first week, the second week two spoonful keep on tha until the blisters have gone. You still need to eat gluten free also my wife uses it for cooing to I have no blisters unless cross contamination. The coconut oil has to be Virgin unrefined the blisters will start disappearing in a few months it works for me and I hope it works for you all.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Do you eat the coconut oil or put it on the lesions? I find it useful for dry skin and hair also when applied topically. 

Do you know you should limit iodine until your lesions are healed? Iodine can keep the antibodies active in the skin. I only had to drop iodized salt but others have had to limit high iodine foods also. I stopped getting lesions unless glutened within a couple months and within a couple years my lesions became just one or two tiny blisters when glutened. If your breakouts are still severe if you get CCd you may want to limit iodine for a bit. Do add it back in after your skin has calmed down as iodine is a needed nutrient. 

doc white Newbie

Sorry you eat the coconut oil you can have it of the spoon in drinks . I just have it of the spoon ps you can put it on the blisters as we'll

notme Experienced

i have been putting a spoonful in my hot tea in the mornings :)  trying to gain weight, but if it's helping the skin, then, win-winning!  i also use it in a salve i make with tea tree oil, also good for hair, lolz - i use it like the old lady on the frank's red hot commercial!  haha  :D

doc white Newbie

i have been putting a spoonful in my hot tea in the mornings :)  trying to gain weight, but if it's helping the skin, then, win-winning!  i also use it in a salve i make with tea tree oil, also good for hair, lolz - i use it like the old lady on the frank's red hot commercial!  haha  :D

if you want to gain the weight with coconut oil have it three times a day with a protein shake. Good luck

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - bold-95 replied to Mrs Wolfe's topic in Related Issues & Disorders
      10

      Cartilage and rib pain.

    2. - Scott Adams replied to CJF's topic in Traveling with Celiac Disease
      5

      European travel with Celiac Disease

    3. - CJF replied to CJF's topic in Traveling with Celiac Disease
      5

      European travel with Celiac Disease

    4. - Oldturdle replied to CeliacPI's topic in Related Issues & Disorders
      7

      Lymphocytic Colitis with Celiac

    5. - Scott Adams replied to maryannlove's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Yasso frozen yogurt bars - be careful


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,418
    • Most Online (within 30 mins)
      7,748

    Debra W
    Newest Member
    Debra W
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • bold-95
    • Scott Adams
      It's great to hear that the trip went well, and the general consensus I hear about gluten-free travel in Europe, including my own experiences, is that it is much easier done in comparison to traveling and eating gluten-free in the USA. 
    • CJF
      Safely home from my recent trip to the UK. I had zero gut issues while traveling around this pretty country. Our tour leader was very good at making sure the 2 of us with gluten issues on our tour were well taken care of.  We often got our meals before the rest of the group and adaptations to the menu for us were well thought out and very tasty. I just wish restaurants here in the USA took as much pride in making food that everyone can enjoy. Many of the hotels and pubs we ate at had numerous options that were safe for us with wheat/gluten restrictions to eat.  
    • Oldturdle
      I am 73 years old and was diagnosed with Celiac disease, and started the gluten free diet 4 years ago.  This past spring,  I experienced sudden onset diarrhea, which was persistent for several weeks, before I had a colonoscopy.  I was told my colon looked normal, but the biopsy showed microscopic lymphocytic colitis.  I was asked at that time if I was still experiencing the diarrhea, and when I said yes, I was prescribed an 8 week course of Budesonide, which included the weaning off phase.  Budesonide is a steroid, but it is allegedly specific for the bowel, and has very few systemic side effects.  I must say, I experienced no side effects, except a couple little spots of persistent psoriasis went away.  I have one week of treatment left, and other than one loose stool very early in treatment, I have had no further bowel issues.  I was told that 80 percent of people go into an extensive, or even permanent, remission after taking Budesonide.  During the colonoscopy, two polyps were removed, and one was precancerous.  I know that colon cancer risks are higher in people with Celiac disease, so it was recommended that I have another coloscopy in five years.      Like your husband, I probably had untreated Celiac disease for years.  It makes one wonder if the chronic irritation and inflammation could lead to the development of microscopic lymphocytic colitis.  This disease is usually diagnosed in people over 50 years old, and occurs approximately in one out of every 1,000 people.        Incidentally, If your husband is prescribed Budesonide, it can be purchased significantly cheaper by using GoodRX.
    • Scott Adams
      Thanks for sharing this! Talk about frustrating! It is complicated enough to try to keep track of which products are safe, but the concept of the same product sold at 2 different stores--one that is certified gluten-free and one that isn't--that is exactly why having celiac disease is still so difficult, and it is so easy to make mistakes!
×
×
  • Create New...