Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tell Me About Kidney Stones


Pegleg84

Recommended Posts

Pegleg84 Collaborator

Hi guys!

 

It's been a while, mostly because I've been doing very good in the gluten department. Aside from catching more than a couple cold bugs this year, I've been a-o-kay in the food department.

 

Or at least (possibly) up until this Thursday. I ate some oatmeal for breakfast, and we had an extra long meeting at work and I was getting really hungry (weak and nauseous) by the end of it, so I wolfed down a Macro bar when I got to my office. I was feeling some discomfort before that, but the nausea didn't stop, and I got this HORRIBLE pain in my side. right down in the left side above my hip, too far over to be in my stomach. It was not the usual pain I get from indigestion or anything like that. This was different. I toughed it out for a while, decided to try to eat my lunch (thinking I might still be hungry) and ooooh man, it just kept getting worse. It hurt when I pressed on my side, and I could hardly see straight. Something told me very strongly that this was not normal. So I abandoned my half eaten lunch, told my boss what was going on, and was off to the clinic. It didn't get any worse but not much better while I wated. Doctor thinks its either a stomach bug or food poisoning (unlikely, no fever or vomiting), kidney stones (most likely), or an ovarian cyst.

So, we're treating it like a kindney stone at this point. I did a urine test, have an ultrasound scheduled for Monday, and she gave me a prescription for pain killers. Drinking lots of water. Eating mostly soup.

 

The pain was bad but not horrible the rest of Thursday, was ok Friday morning but came back in the afternoon (right after lunch, oddly enough), so I went home and doped myself up (percocet works! but man does it make you loopy). Today is so far so good. I'm still hoping it's nothing, or just my stomach being a pain and doing weird things, cause if it is a stone it's not going to be fun getting rid of it. There's still a mild ache in my side, a bit tender.

 

Anyway, since this is my first experience with these (possible) suckers, anyone want to share their experiences? Or posit alternatire possibilities? I know the pain is intermittent, but can you tell if the thing has passed or not (ie: is the pain actually gone, or will it be back with a vengence?).

I know this might not be directly related to Celiac, but I have read (very old) threads about stones being common in Celiac sufferers.

 

Anything you can offer would be great!

 

Cheers

Peg

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MycasMommy Enthusiast

I just had this happen for the first and hopefully last time ..last thanksgiving.  It was horrible pain! I hear you!  I went to the E/R, the nurse had mepee in a cup...  it was a cup of blood basically.  They quickly dosed me up with some morphine (which makes me insanely itchy but better than hurting like that) and gave me some filter things to lay over the toilet to pee through so I would know when the stone(s) had passed.  It took 3 days. Thank you vicodin.  I have a really low pain tolerance for some things, and a very high one for others.  Very strange.  But THAT? That hurt.  Before my friend drove me to the E/R I was on all fours on the ground, trying to breath like a woman in labour... twisting myself around and almost upside down to relieve some of the pain. haha It is kind of funny now.  If I ever get those feelings again, you can bet I will be ina race back to the E/R of doctors office (if open) to get pre drugged GAHHH    Happy times...happy times.....

 

 

ETA:  The summer before that happened, I also had to have my gall bladder out. that ended up a 7 day stay in the hospital because it was so bad they had to open me wide. There were stones wedged way down into the bile ducts of my liver?  I think that was what they explained.. it took me mroe than 3 months to recover and then BAM kidney stones...

etbtbfs Rookie

I got stones in 2013. At that point my lifelong celiac symptoms were significantly receding, having been gluten free since 2003. A urologist broke up the stones that would not pass, with a laser device inserted thru the urethra. My biochemistry is much more stable now and I feel quite well; I'm not expecting a reoccurrence of stones. My regular doc has since done imaging; no new stones have appeared at this point.

Pegleg84 Collaborator

Had my ultrasound today. Won't get results for at least a week, but from the horrid pain I had on my left side during the scan, I'll be surprised if something's not up with my kidney.

Did anyone else have really bad tenderness in your side/back when dealing with stones, even when it's not super painful? The pain has been coming and going, but is still in the same spot. No sign of anything "passing" or moving.

MycasMommy Enthusiast

Had my ultrasound today. Won't get results for at least a week, but from the horrid pain I had on my left side during the scan, I'll be surprised if something's not up with my kidney.

Did anyone else have really bad tenderness in your side/back when dealing with stones, even when it's not super painful? The pain has been coming and going, but is still in the same spot. No sign of anything "passing" or moving.

 

Hmm mine was super painful the whole time but I am going to guess that it was because I had to very large ones. They did a CT right there in the E/R because of the amount of blood in my urine. But the area of the pain.. It hurt up and down my back and side like a dull but persistent pain the few days leading up to this fiasco.  It was explained to me as thus:  The stones are actually a crystalline structure whose sharp edges cut the tube leading from your kidney to your bladder. The larger they are the slower and more painful they can be as they are cutting you more. That is why you may get some blood in your urine. Multiple small ones can hurt but you will not necessarily bleed from them.  The only way (as far as I know) that you will know if they have passed or not (besides pain relief) is that little filter tray you lay on the toilet to filter as you pee. (Or another ultrasound or CT I guess too).  I have also heard but have not checked it out, that ultra sound can help to break them up.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Reverse Osmosis (RO) Water

    2. - Yaya replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Great Value Veggies cannot be trusted.

    3. - Known1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Reverse Osmosis (RO) Water

    4. - Known1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

    5. - Scott Adams replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Great Value Veggies cannot be trusted.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,442
    • Most Online (within 30 mins)
      7,748

    Peggy Vorell
    Newest Member
    Peggy Vorell
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      I've heard RO water is bad, too.   Distilled water has all the minerals distilled out of it, so it will pull minerals out of your bones, too.  I only use distilled water to fill up my clothes iron so it won't get mineral deposits inside and quit working. I drink mineral or spring water.  
    • Yaya
      Scott.  Thank you for your reply. I'm still having symptoms, but significantly better.  I will go back to batch cooking and freezing vegetables.  I have had success with Pict Sweet frozen, single item (not mixed) vegetables.  My Kroger carries very little Pict Sweet variety. Regards, Yaya
    • Known1
      I am hesitant to post this as I have seen many people here recommending RO water.  With that said, I want to share my experience and how RO water now impacts me.  Three or four years ago a local store installed a RO water refill station.  I had been buying gallons of distilled and spring water prior to that.  I switched over to using the RO water refill station saving money by brining in my own clean empty gallon jugs.  Every 6-months I would replace the jugs by buying new gallons of distilled water.  This RO water is the only water I would drink while at home.  Two huge glasses every morning before work and two more after work.  I would also use the RO water to make coffee and hot coco. This past December, prior to my celiac diagnosis, my gut was making more noise than anything I had ever experienced.  Seriously, it was crazy, almost like fire works going off in my stomach.  I happened to pick up some distilled water for my 6-month jug rotation.  Literally, as soon as I started drinking the distilled water my stomach settled a great deal.  I could honestly feel the difference after the first glass of water.  I thought that maybe the RO water from the store's refill station was contaminated with some sort of cleaning agent.  I swore to myself I would never drink from that RO refill station again.  Instead I went back to buying distilled along with gallon jugs of spring water.  No issues with either of those as far as an upset stomach is concerned.  Cost, well that's a different story all together. After being diagnosed marsh 3c, I went shopping at Aldi's for the first time in my life.  I noticed they also sell water by the gallon.  Over the course of the last few weeks, I have purchased a total of 6-gallons of their water.  (Thankfully they were out on two of my visits.)  After having my stomach starting to make noises similar to mid-December again, it dawned on me, maybe its the Aldi water?  Initially I had contributed my bubble gut to some sort of gluten exposure or cross contamination.  Even though everything I have put into my stomach is naturally gluten-free or has been labeled gluten-free / certified gluten-free.  I had assumed that the Aldi water was spring water.  Come to find out, that was a bad assumption.  Looking close at the label it says purified by RO or distillation (or something like that). Again, I switched to different water.  Just like last December, the non-RO water instantly calmed my stomach and even felt better going down the hatch.  This was earlier today by the way.  Prior to creating this post, I did a few searches via Uncle Google.  I bumped into a thread on Reddit (where I am not a member) that has multiple people complaining of GI issues related to RO water.  So my initial thoughts on a cleaning agent in the refill station RO water were likely not correct.  Unfortunately, it seems the RO water itself causing me problems.  I am not sure if we are allowed to post links to other sites and hopefully I will not get into trouble for doing so.  I did try printing the Reddit thread to a PDF file.  Unfortunately, the file is 2MB in size, which is well over the 500KB file attachment limit here on this amazing forum.  Again, hopefully this is ok.  🤞  Here is the Reddit thread. This may not be a popular opinion here, but personally, I will not willingly drink another glass of RO water for the remainder of my life.  Who knows, maybe drinking RO water for the past several years is part of what activated my celiac?  No proof, but just a thought.  Come to find out RO water is well known to leech minerals from your body.  With people like us often lacking minerals to begin with, RO water does not seem like a wise choice.  As the Reddit thread mentions, there are RO water filtration systems that will inject minerals back into the water.  However, those systems are likely not being used at the grocery store refill stations nor by the bottling companies producing RO water for sale at your local store. Please do not shoot the messenger as I am just sharing my personal experience and letting others know that most RO water will leech minerals from your body. God bless and stay well, Known1
    • Known1
      My neighbor's mom was diagnosed with celiac disease 16 years ago.  She is a very kind person and has shared some info about local grocery stores and daily (soon to expire) meat deals.  This evening she brought over 2 slices of Papa Murphy's gluten-free pizza.  It looks to be topped with chicken and spinach.  I asked, "aren't you concerned with cross contamination"?  She said no and apparently eats it on a somewhat regular basis. I found an old article here along with another thread pertaining to Papa Murphy's gluten-free pizza.  The article is quite old, so I do not think it holds much weight nowadays.  The thread I found was also a bit dated, but certainly more recent and relevant.  The information in the thread I found was a bit inconclusive.  Some said they trust Papa Murphy's gluten-free pizza and others were a big no way.  One person even took time to train their local franchise on how to ensure the pizza remains gluten-free without cross contamination. Anyway, being recently diagnosed as marsh 3c, I am currently working on week 3 or 4 in my new gluten-free journey.  I do not want to be rude and toss the pizza out, but I also do not want to have a reaction.  Since she has celiac and obviously ate much or at least some of the pizza, I am leaning towards eating the two slices for lunch tomorrow.  As this thread's title states, what would you do?  Would you eat it or toss it out?  I suppose I could also just give it back to my neighbor to polish off. I look forward to reading your thoughts. Thanks, Known1
    • Scott Adams
      That must have been really upsetting to discover, especially after relying on a product you believed was safe. Labeling can change at any time due to supplier shifts or shared equipment, so it’s always important to double-check packaging—even on products we’ve trusted for years. A “may contain wheat” statement usually indicates potential cross-contact risk rather than an added ingredient, but for people with celiac disease that risk can still be significant. If you’ve been having symptoms, it may take days to weeks to fully settle, depending on the level and duration of exposure. In the meantime, switching to fresh produce or brands that clearly state gluten-free status is a reasonable step. It may also help to contact the manufacturer directly to ask when the labeling changed and what their current cross-contact controls are.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.