Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tell Me About Kidney Stones


Pegleg84

Recommended Posts

Pegleg84 Collaborator

Hi guys!

 

It's been a while, mostly because I've been doing very good in the gluten department. Aside from catching more than a couple cold bugs this year, I've been a-o-kay in the food department.

 

Or at least (possibly) up until this Thursday. I ate some oatmeal for breakfast, and we had an extra long meeting at work and I was getting really hungry (weak and nauseous) by the end of it, so I wolfed down a Macro bar when I got to my office. I was feeling some discomfort before that, but the nausea didn't stop, and I got this HORRIBLE pain in my side. right down in the left side above my hip, too far over to be in my stomach. It was not the usual pain I get from indigestion or anything like that. This was different. I toughed it out for a while, decided to try to eat my lunch (thinking I might still be hungry) and ooooh man, it just kept getting worse. It hurt when I pressed on my side, and I could hardly see straight. Something told me very strongly that this was not normal. So I abandoned my half eaten lunch, told my boss what was going on, and was off to the clinic. It didn't get any worse but not much better while I wated. Doctor thinks its either a stomach bug or food poisoning (unlikely, no fever or vomiting), kidney stones (most likely), or an ovarian cyst.

So, we're treating it like a kindney stone at this point. I did a urine test, have an ultrasound scheduled for Monday, and she gave me a prescription for pain killers. Drinking lots of water. Eating mostly soup.

 

The pain was bad but not horrible the rest of Thursday, was ok Friday morning but came back in the afternoon (right after lunch, oddly enough), so I went home and doped myself up (percocet works! but man does it make you loopy). Today is so far so good. I'm still hoping it's nothing, or just my stomach being a pain and doing weird things, cause if it is a stone it's not going to be fun getting rid of it. There's still a mild ache in my side, a bit tender.

 

Anyway, since this is my first experience with these (possible) suckers, anyone want to share their experiences? Or posit alternatire possibilities? I know the pain is intermittent, but can you tell if the thing has passed or not (ie: is the pain actually gone, or will it be back with a vengence?).

I know this might not be directly related to Celiac, but I have read (very old) threads about stones being common in Celiac sufferers.

 

Anything you can offer would be great!

 

Cheers

Peg

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MycasMommy Enthusiast

I just had this happen for the first and hopefully last time ..last thanksgiving.  It was horrible pain! I hear you!  I went to the E/R, the nurse had mepee in a cup...  it was a cup of blood basically.  They quickly dosed me up with some morphine (which makes me insanely itchy but better than hurting like that) and gave me some filter things to lay over the toilet to pee through so I would know when the stone(s) had passed.  It took 3 days. Thank you vicodin.  I have a really low pain tolerance for some things, and a very high one for others.  Very strange.  But THAT? That hurt.  Before my friend drove me to the E/R I was on all fours on the ground, trying to breath like a woman in labour... twisting myself around and almost upside down to relieve some of the pain. haha It is kind of funny now.  If I ever get those feelings again, you can bet I will be ina race back to the E/R of doctors office (if open) to get pre drugged GAHHH    Happy times...happy times.....

 

 

ETA:  The summer before that happened, I also had to have my gall bladder out. that ended up a 7 day stay in the hospital because it was so bad they had to open me wide. There were stones wedged way down into the bile ducts of my liver?  I think that was what they explained.. it took me mroe than 3 months to recover and then BAM kidney stones...

etbtbfs Rookie

I got stones in 2013. At that point my lifelong celiac symptoms were significantly receding, having been gluten free since 2003. A urologist broke up the stones that would not pass, with a laser device inserted thru the urethra. My biochemistry is much more stable now and I feel quite well; I'm not expecting a reoccurrence of stones. My regular doc has since done imaging; no new stones have appeared at this point.

Pegleg84 Collaborator

Had my ultrasound today. Won't get results for at least a week, but from the horrid pain I had on my left side during the scan, I'll be surprised if something's not up with my kidney.

Did anyone else have really bad tenderness in your side/back when dealing with stones, even when it's not super painful? The pain has been coming and going, but is still in the same spot. No sign of anything "passing" or moving.

MycasMommy Enthusiast

Had my ultrasound today. Won't get results for at least a week, but from the horrid pain I had on my left side during the scan, I'll be surprised if something's not up with my kidney.

Did anyone else have really bad tenderness in your side/back when dealing with stones, even when it's not super painful? The pain has been coming and going, but is still in the same spot. No sign of anything "passing" or moving.

 

Hmm mine was super painful the whole time but I am going to guess that it was because I had to very large ones. They did a CT right there in the E/R because of the amount of blood in my urine. But the area of the pain.. It hurt up and down my back and side like a dull but persistent pain the few days leading up to this fiasco.  It was explained to me as thus:  The stones are actually a crystalline structure whose sharp edges cut the tube leading from your kidney to your bladder. The larger they are the slower and more painful they can be as they are cutting you more. That is why you may get some blood in your urine. Multiple small ones can hurt but you will not necessarily bleed from them.  The only way (as far as I know) that you will know if they have passed or not (besides pain relief) is that little filter tray you lay on the toilet to filter as you pee. (Or another ultrasound or CT I guess too).  I have also heard but have not checked it out, that ultra sound can help to break them up.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.