Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tell Me About Kidney Stones


Pegleg84

Recommended Posts

Pegleg84 Collaborator

Hi guys!

 

It's been a while, mostly because I've been doing very good in the gluten department. Aside from catching more than a couple cold bugs this year, I've been a-o-kay in the food department.

 

Or at least (possibly) up until this Thursday. I ate some oatmeal for breakfast, and we had an extra long meeting at work and I was getting really hungry (weak and nauseous) by the end of it, so I wolfed down a Macro bar when I got to my office. I was feeling some discomfort before that, but the nausea didn't stop, and I got this HORRIBLE pain in my side. right down in the left side above my hip, too far over to be in my stomach. It was not the usual pain I get from indigestion or anything like that. This was different. I toughed it out for a while, decided to try to eat my lunch (thinking I might still be hungry) and ooooh man, it just kept getting worse. It hurt when I pressed on my side, and I could hardly see straight. Something told me very strongly that this was not normal. So I abandoned my half eaten lunch, told my boss what was going on, and was off to the clinic. It didn't get any worse but not much better while I wated. Doctor thinks its either a stomach bug or food poisoning (unlikely, no fever or vomiting), kidney stones (most likely), or an ovarian cyst.

So, we're treating it like a kindney stone at this point. I did a urine test, have an ultrasound scheduled for Monday, and she gave me a prescription for pain killers. Drinking lots of water. Eating mostly soup.

 

The pain was bad but not horrible the rest of Thursday, was ok Friday morning but came back in the afternoon (right after lunch, oddly enough), so I went home and doped myself up (percocet works! but man does it make you loopy). Today is so far so good. I'm still hoping it's nothing, or just my stomach being a pain and doing weird things, cause if it is a stone it's not going to be fun getting rid of it. There's still a mild ache in my side, a bit tender.

 

Anyway, since this is my first experience with these (possible) suckers, anyone want to share their experiences? Or posit alternatire possibilities? I know the pain is intermittent, but can you tell if the thing has passed or not (ie: is the pain actually gone, or will it be back with a vengence?).

I know this might not be directly related to Celiac, but I have read (very old) threads about stones being common in Celiac sufferers.

 

Anything you can offer would be great!

 

Cheers

Peg

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MycasMommy Enthusiast

I just had this happen for the first and hopefully last time ..last thanksgiving.  It was horrible pain! I hear you!  I went to the E/R, the nurse had mepee in a cup...  it was a cup of blood basically.  They quickly dosed me up with some morphine (which makes me insanely itchy but better than hurting like that) and gave me some filter things to lay over the toilet to pee through so I would know when the stone(s) had passed.  It took 3 days. Thank you vicodin.  I have a really low pain tolerance for some things, and a very high one for others.  Very strange.  But THAT? That hurt.  Before my friend drove me to the E/R I was on all fours on the ground, trying to breath like a woman in labour... twisting myself around and almost upside down to relieve some of the pain. haha It is kind of funny now.  If I ever get those feelings again, you can bet I will be ina race back to the E/R of doctors office (if open) to get pre drugged GAHHH    Happy times...happy times.....

 

 

ETA:  The summer before that happened, I also had to have my gall bladder out. that ended up a 7 day stay in the hospital because it was so bad they had to open me wide. There were stones wedged way down into the bile ducts of my liver?  I think that was what they explained.. it took me mroe than 3 months to recover and then BAM kidney stones...

etbtbfs Rookie

I got stones in 2013. At that point my lifelong celiac symptoms were significantly receding, having been gluten free since 2003. A urologist broke up the stones that would not pass, with a laser device inserted thru the urethra. My biochemistry is much more stable now and I feel quite well; I'm not expecting a reoccurrence of stones. My regular doc has since done imaging; no new stones have appeared at this point.

Pegleg84 Collaborator

Had my ultrasound today. Won't get results for at least a week, but from the horrid pain I had on my left side during the scan, I'll be surprised if something's not up with my kidney.

Did anyone else have really bad tenderness in your side/back when dealing with stones, even when it's not super painful? The pain has been coming and going, but is still in the same spot. No sign of anything "passing" or moving.

MycasMommy Enthusiast

Had my ultrasound today. Won't get results for at least a week, but from the horrid pain I had on my left side during the scan, I'll be surprised if something's not up with my kidney.

Did anyone else have really bad tenderness in your side/back when dealing with stones, even when it's not super painful? The pain has been coming and going, but is still in the same spot. No sign of anything "passing" or moving.

 

Hmm mine was super painful the whole time but I am going to guess that it was because I had to very large ones. They did a CT right there in the E/R because of the amount of blood in my urine. But the area of the pain.. It hurt up and down my back and side like a dull but persistent pain the few days leading up to this fiasco.  It was explained to me as thus:  The stones are actually a crystalline structure whose sharp edges cut the tube leading from your kidney to your bladder. The larger they are the slower and more painful they can be as they are cutting you more. That is why you may get some blood in your urine. Multiple small ones can hurt but you will not necessarily bleed from them.  The only way (as far as I know) that you will know if they have passed or not (besides pain relief) is that little filter tray you lay on the toilet to filter as you pee. (Or another ultrasound or CT I guess too).  I have also heard but have not checked it out, that ultra sound can help to break them up.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      10

      Related issues

    2. - Known1 replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

    3. - Wheatwacked commented on Scott Adams's article in Origins of Celiac Disease
      11

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

    4. - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      1

      Barilla gluten free pasta

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,451
    • Most Online (within 30 mins)
      7,748

    croiduire
    Newest Member
    croiduire
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      I've added NAC, N-Acetyl Cysteine; "crucial for replenishing glutathione—the body's master antioxidant." I used Clear Eyes 1% NAC lubricating eye drops for several years until the FDA forced them off the market.  In 2015 I had cataracts in bofh eyes.  In 2019 my left eye was clear, right eye was improved.  They are back now.  I discovered new companies with the drops at higher NAC but went with 500 mg NAC capsules.  Spread the cheer 🤓. My impression so far is the NAC is doing good.  Best with meal.
    • Known1
      When the pizza was dropped off she told me it had a Udi's certified gluten-free crust.  Even so, I am trying to play things as safe as possible for at least the next 6-months.  With that said, I returned the two slices to my neighbor and asked her to thank her mom for the pizza.  😊  I will likely bump into my neighbor's mom sometime next week.  She shuttles my neighbor's son, a freshman, to and from high school.  As mentioned, she is very kind so I am sure she will understand.  Heck, at least it went back to her family members and not in the trash.
    • Jmartes71
    • knitty kitty
      @Colleen H, How are you doing?  I hope you're improving. Yes, I react to gluten free products with corn in them.  Segments of the protein in corn are the same as protein segments in gluten.  So I react as though I've eaten gluten if I eat anything with corn.   I take a combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 together.  These act as a pain reliever as good as any over the counter pain reliever.  They won't hurt the stomach like aspirin or acetaminophen.   Thiamine will help nausea, anxiety, constipation, and headache.  Pyridoxine B6 and B12 will help with the pins and needles.  Magnesium helps work with thiamine to relieve symptoms. I also take a B Complex to boost absorption not absorbed from foods.  Niacin B3 helps with the anxiety, too.   Best wishes.
    • Jmartes71
      I APPRECIATE you validating everything because this is a nightmare and the only reason why im fighting is because I don't want future generations to deal with this bs and medical should take responsibility for their lack of actions. Autoimmune disorder aka " food allergies " should be a mandated reportable disease for the safety of the patients. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.