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Years Without Testing Dr Says No Bother

Jessnfelix

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Jessnfelix Newbie
Jessnfelix
Posted

I have a nine year old who was diagnosed with Celiac before her second birthday. Due to life circumastances she was out of my care for the past five years. Now that I have her back, her primary care doctor says there is no need for any follow up on the celiac.  I have strong suspicion that she has been exposed to gluten for years. can this doctor be right!? Souldn't I be following up from square one to insure she does not need to start again with a dairy free diet or other protective measures? Doesnt she need follow up every two years with a GI?

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BlessedMommy Rising Star
BlessedMommy
Posted

I think that your instinct to want follow up blood tests is correct. You really don't know how careful her other caregivers were being.

mamaw Community Regular
mamaw
Posted

Yes, you should check her medical history out esp. if you are not sure what she has been doing in those five years....I would want a full history work-up so you know for sure what her needs maybe now besides celiac....Bodies change quickly at that age for a female....Plus I'm fairly sure she could have a few emotional issues with a major change at that age...I know it would have thrown me off at that age! That is a lot for a nine year old to deal with....

cyclinglady Grand Master
cyclinglady
Posted

I would get a new GP and arm yourself with research!

Here is a link regarding celiac disease dietary compliance testing:

Open Original Shared Link

There is more supportive data to Google too!

  • 4 months later...
absullivan6 Rookie
absullivan6
Posted

Yes, you need to see someone new!  Our pediatric GI has us come in every 6 months for weight/height checks and yearly blood work.

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