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Biopsy Results

AJO21

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AJO21 Newbie
AJO21
Posted

I just wanted some other opinions about some testing I have had done, about a year ago I had blood tests which showed low IgA but positive IgG for celiac, I then had a biopsy which was negative but I went on the gluten free diet anyways (after all testing was complete). About 6 months after going gluten free I had to follow up with a hematologist about the  low IgA and elevated IgG. After 6 months gluten fee and follow up blood tests my IgG had returned to normal, but my IgA was still very low and he diagnosed me with IgA deficiency. I have been gluten free for about 8 months now and I feel amazing, much better than I have felt in years, no diarrhea, no headaches, I am significantly less fatigued, i used to nap every day and now I almost never need a nap, I am no longer losing weight and I have not had GERD since changing my diet, which was a weekly occurrence before. So basically the blood tests were positive for celiac, and from my understanding IgA deficiency is far more common in those with celiac than those without, and I have definitely responded well to the diet, the only thing that was negative was the biopsy. Is it possible that the Biopsy was a false negative? Has anyone here been diagnosed despite a negative biopsy, or is this just a gluten sensitivity? My gastro seems convinced it is not celiac and called it IBS and said that the IgA deficiency could be a root cause of food sensitivities. Thank you all for your input and advice!

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ravenwoodglass Mentor
ravenwoodglass
Posted

" Is it possible that the Biopsy was a false negative?" 

 

Yes it is possible. There are many reasons for a false negative on the biopsy including but not limited to the fact that celiac damage can be patchy and it is possible for damaged spots to be missed and also some doctors will call a biopsy negative if the villi are not totally destroyed. 

cyclinglady Grand Master
cyclinglady
Posted

Raven is right.  The size of your small intestines is about the size of a tennis court.  Easy to miss a damaged spot.  I think the proof is also in your response to the gluten-free diet.  

 

Please do not accept an IBS diagnosis (aka "I Be Stumped!").  

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