Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brand New To Gluten Intolerance

Chelspaz

Recommended Posts

Chelspaz Newbie
Chelspaz
Posted

Unfortunately, I've never been a healthy eater. I've always had occasional stomach problems according to the bad things I'd eat, but usually my stomach was okay and normal. Lately, though, I've had constant diarrhea, gas, and a rumbling stomach. It all started when my husband and I ate at Olive Garden (May 5th according to bank records)...we both felt pretty bad after that for a couple of days, but waited it out. He gradually got back to normal whereas I never did. Since then, no matter what I tried to eat, I always had some form of discomfort. I've finally gotten so fed up, and actually quite scared, and made an appointment with a doctor to figure out what the heck is going on. 

 

My Mom and I were talking about my symptoms and we first were thinking maybe I was lactose intolerant. I've always been a huge milk drinker and I LOVE ice cream. There were a few days where my husband and I ran out of milk, and didn't get more until a few days later. I seemed somewhat okay those few days, and when we finally got more milk, I had a bowl of cereal for breakfast, and my stomach didn't react well AT ALL. So after that bowl of cereal, I've been avoiding dairy. But even after this, I'm still experiencing stomach issues. 

 

Now my Mom and I (I talk to my Mom every day lol) are now thinking that I may have a gluten intolerance. I believe my paternal Grandmother has a gluten intolerance. I never did ask her more about her experience with this, but I think I will now, especially since I've noticed in my research that it could be genetic also. 

 

My theory to my sudden change is that I've basically always eaten poorly, and even though I might not have had this intolerance before now...my stomach has been through so much with the not-so-good food I eat, that I've now developed this intolerance. 

 

I'm not sure if the symptoms can come and go literally by what you eat and change as quickly as what you eat...but yesterday my husband and I went to Trader Joes and got some gluten free food. Throughout the day I had a granola bar for breakfast, caesar salad for lunch, and then we went to the store and I came home and had a gluten free hot dog with gluten free bread and a small glass of lactose free milk. I actually hadn't experienced a bowel movement at all yesterday, but considering all the diarrhea I'd been enduring lately, I was ok with that lol. So basically I was fine all day yesterday until friends called my husband and I to go out to eat. I had only a few pieces of pizza and a small scoop of gelato. I of course expected that would give me tummy issues this morning, and it did. To me, yesterday seemed like a direct correlation of eating gluten free and feeling fine, and then venturing out and having an upset stomach again. I'll reiterate again, I'm not sure if the gluten intolerance can act that selectively and if you can, in the span of a few meals, see the direct results of eating gluten free and having food with gluten...but if that's a possibility, then I'm pretty sure I have a gluten intolerance.

 

I have my doctor's appointment on Thursday and I'm hoping that I can get them to maybe do the blood test to see what those results would say.

 

I'd love ANY feedback from anyone who is well-versed in this and who has had any similar experiences as mine. Thanks in advance!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Welcome!

Please go to the University of Chicago's celiac website to get currnet information about celiac disease. You HAVE to be consuming gluten or blood tests will be invalid. So, do not go gluten free yet! I know you went to TJ's and bought some gluten-free stuff, but set it aside in case the doctor wants to test you for celiac disease.

Best wishes!

Chelspaz Newbie
Chelspaz
Posted
  • Author

Yes I've seen in my research how I have to be consuming gluten, it just sucks because I feel SO terrible. I will try to endure this until Thursday though. Thank you for your reply!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rogol72
      - Rogol72 replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying...
    2. Scott Adams
      - Scott Adams replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      8

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin. In the early 1900s, refined white flour replaced whole grains, and people began...
    3. Scott Adams
      - Scott Adams replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted...
    4. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      CT with contrast.

      Thank you.
    5. deanna1ynne
      - deanna1ynne replied to deanna1ynne's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Inconclusive results

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased int...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,441
    • Most Online (within 30 mins)
      7,748
    Linda Boxdorfer
    Newest Member
    Linda Boxdorfer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Rogol72 · Posted

      @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying it once. It's fortified with Calcium and Iron. https://www.warburtonsglutenfree.com/warbs_products/white-loaf/ The only other gluten-free bread that I've come across that is fortified is Schar with Iodized salt, nothing else.
    • Scott Adams
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Scott Adams · Posted

      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
    • JoJo0611
      CT with contrast.

      By JoJo0611 · Posted

      Thank you. 
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      Thank you all so much for your advice and thoughts. We ended up having another scope and more bloodwork last week. All serological markers continue to increase, and the doc who did the scope said there villous atrophy visible on the scope — but we just got the biopsy pathology report back, and all it says is, “Duodenal mucosa with patchy increased intraepithelial lymphocytes, preserved villous architecture, and patchy foveolar metaplasia,” which we are told is still inconclusive…  We will have her go gluten free again anyway, but how soon would you all test again, if at all? How valuable is an official dx in a situation like this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.