Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brand New To Gluten Intolerance

Chelspaz

Recommended Posts

Chelspaz Newbie
Chelspaz
Posted

Unfortunately, I've never been a healthy eater. I've always had occasional stomach problems according to the bad things I'd eat, but usually my stomach was okay and normal. Lately, though, I've had constant diarrhea, gas, and a rumbling stomach. It all started when my husband and I ate at Olive Garden (May 5th according to bank records)...we both felt pretty bad after that for a couple of days, but waited it out. He gradually got back to normal whereas I never did. Since then, no matter what I tried to eat, I always had some form of discomfort. I've finally gotten so fed up, and actually quite scared, and made an appointment with a doctor to figure out what the heck is going on. 

 

My Mom and I were talking about my symptoms and we first were thinking maybe I was lactose intolerant. I've always been a huge milk drinker and I LOVE ice cream. There were a few days where my husband and I ran out of milk, and didn't get more until a few days later. I seemed somewhat okay those few days, and when we finally got more milk, I had a bowl of cereal for breakfast, and my stomach didn't react well AT ALL. So after that bowl of cereal, I've been avoiding dairy. But even after this, I'm still experiencing stomach issues. 

 

Now my Mom and I (I talk to my Mom every day lol) are now thinking that I may have a gluten intolerance. I believe my paternal Grandmother has a gluten intolerance. I never did ask her more about her experience with this, but I think I will now, especially since I've noticed in my research that it could be genetic also. 

 

My theory to my sudden change is that I've basically always eaten poorly, and even though I might not have had this intolerance before now...my stomach has been through so much with the not-so-good food I eat, that I've now developed this intolerance. 

 

I'm not sure if the symptoms can come and go literally by what you eat and change as quickly as what you eat...but yesterday my husband and I went to Trader Joes and got some gluten free food. Throughout the day I had a granola bar for breakfast, caesar salad for lunch, and then we went to the store and I came home and had a gluten free hot dog with gluten free bread and a small glass of lactose free milk. I actually hadn't experienced a bowel movement at all yesterday, but considering all the diarrhea I'd been enduring lately, I was ok with that lol. So basically I was fine all day yesterday until friends called my husband and I to go out to eat. I had only a few pieces of pizza and a small scoop of gelato. I of course expected that would give me tummy issues this morning, and it did. To me, yesterday seemed like a direct correlation of eating gluten free and feeling fine, and then venturing out and having an upset stomach again. I'll reiterate again, I'm not sure if the gluten intolerance can act that selectively and if you can, in the span of a few meals, see the direct results of eating gluten free and having food with gluten...but if that's a possibility, then I'm pretty sure I have a gluten intolerance.

 

I have my doctor's appointment on Thursday and I'm hoping that I can get them to maybe do the blood test to see what those results would say.

 

I'd love ANY feedback from anyone who is well-versed in this and who has had any similar experiences as mine. Thanks in advance!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Welcome!

Please go to the University of Chicago's celiac website to get currnet information about celiac disease. You HAVE to be consuming gluten or blood tests will be invalid. So, do not go gluten free yet! I know you went to TJ's and bought some gluten-free stuff, but set it aside in case the doctor wants to test you for celiac disease.

Best wishes!

Chelspaz Newbie
Chelspaz
Posted
  • Author

Yes I've seen in my research how I have to be consuming gluten, it just sucks because I feel SO terrible. I will try to endure this until Thursday though. Thank you for your reply!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,702
    • Most Online (within 30 mins)
      7,748
    Coach Chris
    Newest Member
    Coach Chris
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Inconclusive results

      By Wends · Posted

      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      The first negative biopsy in 2021 just said "no pathological change" for all the samples, and the second one in 2022 said "Duodenal mucosa with mild reactive change (focal foveolar metaplasia) and preserved villous architecture." So I think Marsh score 0 in both cases, though it's not actually written in the pathology reports. I'm really hoping to get a clear positive result this time, just for her sake.  
    • Wends
      Blood results

      By Wends · Posted

      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.