Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Sure If This Is Truly Celiac Related, But...

BethM55

Recommended Posts

BethM55 Enthusiast
BethM55
Posted

A friend asked me the following, and I'm not sure what to tell her.  I did suggest she look in to leaky gut syndrome.  Other than that, any suggestions?  (Yes, I know... I'm puzzled also about her use of  the term 'regular bread products', as opposed to whole grains.)  Thank you in advance!

 

"Nutrition question:  do you know of anything in the outer coating (the rough parts) of grains like wheat that would be an irritant or allergen?  Sean has never been good with whole grains, but he has no trouble with regular bread products.  It finally became obvious when we shared a whole-grain muffin that was very soft and finely-ground, but still made his stomach upset.  It has me baffled."

 

Thanks, 

-Beth.

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Lover Rising Star
GF Lover
Posted

Is this person Celiac.  It sounds like he does not know what to avoid to be gluten-free.  If he is a silent Celiac he may be starting to get reactions as it sounds like he had eaten gluten regularly and continuing to incur damage.  If she has allergies to a food, that is complete different.  If she is NCGI then I would question if a problem exists.

 

At any rate, it is hard to be sure of what she is actually talking about.

 

Colleen

BethM55 Enthusiast
BethM55
Posted
  • Author

gluten-free Lover, he is not celiac that I'm aware of, although he's not been tested.  I've suggested in the past that the entire family try being gluten free because of multiple health problems, but they're not amenable to this.  NCGI is a possibility too.  If he is NCGI, why do you question if a problem exists?

GF Lover Rising Star
GF Lover
Posted

do you know of anything in the outer coating (the rough parts) of grains like wheat that would be an irritant or allergen

Wheat Grass?  My opinion is that you should not eat it due to possible contamination.  What other rough parts would you eat...I don't know of any.

 

he has no trouble with regular bread products

What regular bread products is eating?  Does he have any other intolerances?  Is he eating gluten free bread?

 

 we shared a whole-grain muffin that was very soft and finely-ground, but still made his stomach upset.

A whole grain muffin?  Was is gluten free?  What was in the muffin?  the grinding of grains should make no difference.

 

It seems unclear exactly what he is eating...rough parts?  The comparison of bread products to a finely ground product?  I'm not sure they understand exactly what they need to do to be gluten free.  I emphasize 'understand'.  Is only the one person eating gluten-free with the rest of the family kind of gluten-free?  That will make a difference right there.  There really is not enough information to figure out what exactly is going on.  Basically, It is unclear to me if the person in question is eating gluten-free  or just does not like 'whole grains'.

 

Colleen

cyclinglady Grand Master
cyclinglady
Posted

I would never recommend for someone to go gluten free without first getting tested for celiac disease. If the tests are negative and the person wants to try the gluten-free diet to see if it eliminates their symptoms, then fine. The gluten-free diet is a huge commitment not only to food changes but lifestyle changes as well. I can see why your friends would resist.

There is no way that I would have gone gluten free to resolve my life-long anemia. Heck, it took me over a year of being on the diet to see results. I personally needed proof that gluten-free was the cure for my illness. There was also no way that I would have given up so many carbs after my celiac disease diagnosis without proof that I had diabetes either. It is hard to disregard lab results!

BethM55 Enthusiast
BethM55
Posted
  • Author

Thank you all for your responses.  I will have to talk more with my friend to get more specific information.  Her son may be gluten intolerant, or there may be other issues to address.  Hard to tell.  Again, thanks!

RMJ Mentor
RMJ
Posted

I think the outer coating would be the wheat bran?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,129
    • Most Online (within 30 mins)
      7,748
    Maeghan
    Newest Member
    Maeghan
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • NoriTori
      Celiac symptoms but negative endoscopy and antibody test + family history of gastro problems

      By NoriTori · Posted

      @Scott Adams No one said anything about eating gluten consistently until testing, the appointment was scheduled and an address was given. I don't even have access to the results as it stands. I was just told "everything looks fine, but slight irritation." I don't know if they took a biopsy because I have no access to the results. I don't know how many samples they took (I recently learned they're supposed to take more than one), I don't know what things looked like internally, it was just word of mouth and I didn't know any better to pry and get copies of everything. And I know! I also have chronic Anemia, never truly resolved UNTIL I went gluten free, and low vitamin D (fairly normal in black community), and low creatine (also resolved with gluten free diet). I plan to request a new dermatologist! As well as a referral to Gastro. Food/symptom diary is a great idea though. I have no way of cooking as it stands, so even just the basics wouldn't work for me.
    • trents
      Celiac symptoms but negative endoscopy and antibody test + family history of gastro problems

      By trents · Posted

      @NoriTori, "gluten intolerance" is a general term that can refer to either celiac disease or NCGS. NCGS is often referred to as "gluten sensitivity" for short. Though, admittedly, there is still a great deal of inconsistency in the use of terms by the general public.
    • NoriTori
      Celiac symptoms but negative endoscopy and antibody test + family history of gastro problems

      By NoriTori · Posted

      @trents A gluten intolerance is a real possibility! I never ruled it out, but am keen on finding out the EXACT cause. I'd want testing done again to be sure it's not celiac, or SIBO (which I've considered) or other digestive disorder. Celiac seems the most pertinent considering its implications.
    • sillyac58
      Recurring flu like symptoms after being precribed immune system stimulating drug

      By sillyac58 · Posted

      Thanks so much Scott. I would be incredibly grateful to the gluten gods if eliminating oats was the magic cure. In the meantime, it's nice to have moral support! 
    • trents
      Eating gluten before blood test

      By trents · Posted

      Understood. And don't beat yourself up about this. Many are in the same boat as you, having experimented with the gluten-free diet before getting formerly tested. It is a logical, common sense approach when you don't have the knowledge about how testing works or you don't have the healthcare resources to afford testing. And some experience such severe reactions to gluten that it is impossible to get through the gluten challenge in order to get tested. So, they must live with the ambiguity of not knowing for sure if they suffer from celiac disease or NCGS. But at the end of the day, the antidote is the same for both. Namely, life-ling abstinence from gluten. Recently there was an article on posted on this forum about the develop of a new testing method for diagnosing celiac disease that do not require a gluten challenge. It is still in the developmental stage and probably years away from becoming main streams even if it pans out. But there is hope at least.
×
×
  • Create New...