Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kind Of Down.

Amina82

Recommended Posts

Amina82 Rookie
Amina82
Posted

I posted a few weeks back about possible Celiac disease as well as elevated liver enzymes. I saw my new primary today and after reading my ultrasound diagnosed me with Fatty liver ...I told her all my symtoms and she told me to eliminate gluten,dairy and sugar. I have been gluten free about 3 weeks and feel so much better. She said she will test my liver enzymes in 3 weeks, if they are higher I do need to keep my GI appointment. She told me according to my numbers my liver is "pretty stressed" ...my question is could the fatty liver have something to do with Celiac disease ?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Elevated liver enzymes are part of Celiac.

Open Original Shared Link

ravenwoodglass Mentor
ravenwoodglass
Posted

Yes celiac can impact the liver. Did your doctor do any celiac testing before telling you to try the gluten free diet? If not it was pretty irresponsible of her to tell you to go gluten free as you will now have to do a challenge before you can be tested. 

Amina82 Rookie
Amina82
Posted
  • Author

I went gluten free (again ) about 3 weeks ago. What concerns me is now I have fatty liver disease, although the Doctor did not say "disease" just fatty liver. I am at my heaviest right now. This Dr. Is my mother's doctor and saw her through her ulcerative colitis that was caused by a gluten intolerance. I have had issues with my liver for a long time now. Gallbladder removed at 21, elevated enzymes in 2011 that eventually normalized but I had a normal ultrasound back then. Now, after more elevated enzymes my recent ultrasound revealed a fatty liver...I have to do not only gluten free but a no carb diet. Im just at the end of my rope with all my constant health issues.

ravenwoodglass Mentor
ravenwoodglass
Posted

Try not to worry too much. If the liver issues are gluten related then the issues may well resolve gluten free. It could take a bit of time though. Please be sure not to drink any alcohol whatsoever if you do drink. 

nvsmom Community Regular
nvsmom
Posted

I would talk to you doctor about testing for celiac disease ASAP.  You need to be eating gluten (ideally in the 2-3 months) prior to testing for the most accurate results.  If they want to test you in the future you would have to resume eating gluten for about 12 weeks - not good for your health.  Resuming gluten for a short time and testing SOON. may be better for you.

 

Request the tTG IgA, tTG IgG, DGP IgA, DGP IgG, EMA IgA, total serum IgA, and the AGA IgA and AGA IgG if the DGP tests are unavailable.

 

There are a few people who are eating lowcarb high fat (LCHF) around here.  You'll have some company as you go through this.(hug) 

 

Best wishes.

Amina82 Rookie
Amina82
Posted
  • Author

Thank you all for the feedback...my Dr. Seems to think the fatty liver is the cause for my elevated liver enzymes. She seems very open to gluten being a culprit for me. I think I will call to ask for Celiac testing. At this time I will not do a gluten challenge because my liver is really stressed according to the bloodwork and my Dr. Has put me on a very strict diet. I am a little sad by all this especially the fatty liver diagnoses. I have never been a heavy drinker.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Get the celiac testing done ASAP. I would consider going back on gluten. Do the research to confirm what we all have said.

That gallbladder? Most likely linked to celiac disease. Mine was removed because it was not functioning. It is a family curse -- just like Celiac Disease!

Your liver should improve on a gluten-free diet, but an official diagnosis will not only help you, but your kids and the rest of your family.

nvsmom Community Regular
nvsmom
Posted

Test immediately if you are not doing a gluten challenge.  The tTG IgG test can remain elevated for weeks, and even months, so you could get an accurate result, but the tTG IgG misses about half of all celiacs anyways.  The DGP IgG and EMA IGG will go down to normal faster so test them immediately.

 

How are your blood glucose and insulin levels?  A high carb diet can sometimes cause this too. 

Amina82 Rookie
Amina82
Posted
  • Author

All of my other blood work is perfect. The only thing really wacked out is my liver. My doctor seems convinced the fatty liver is what's causing all of this. They have tested everything including vitamin levels. . I know there is something more. My first go around gluten free I ate very high carb including tons of candy to make up for the cravings ...in December 2014 I resumed eating gluten , after about 7 months gluten free. .

nvsmom Community Regular
nvsmom
Posted

So fasting blood glucose and insulin was fine?  No prediabetes or anything?  That's good.

 

If there are no other issues that could cause the fatty liver, it could be celiac disease.  Are you going to do those celiac tests that were not done?  If so, do them soon.

 

The doctor being "convinced that the fatty liver is causing all this" is fine, but what is causing the fatty liver?  That's the question that would stick with me.  

 

Best wishes.

Amina82 Rookie
Amina82
Posted
  • Author

It's funny you ask about the blood sugar. I was convinced I developed diabetes. Constant sugar cravings, exhaustion after eating and carb craving. Yes I had my blood sugar tested while fasting. My Dr told me that fatty liver leads to diabetes or goes together with it. The reason for my fatty liver is my weight. I'm 5'4 and 220 down from 260. I have been overweight my whole life but at my heavyset right now.

nvsmom Community Regular
nvsmom
Posted

The wieght and high insulin levels could cause some of that.  Try googling it and see if it rings a bell for you.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Oliverg
      - Oliverg posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Glutened

      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar. 2 hours later I was throwing up violently on my hands and knees over the loo. .horrendous stomach pains, My hair was wet fro...
    2. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      19

      My journey is it gluten or fiber?

      Yes, do take your B Complex with Benfotiamine or Thiamax. Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day. Taking them too close to bedtime can keep you too energetic to go to sleep. The Life Extension Benfotiamine with Thiamine is Benfotiamine and...
    3. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      19

      My journey is it gluten or fiber?

      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state...
    4. olivia11
      - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      suggest gluten free food

      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    5. knitty kitty
      - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      GI DX celiac despite neg serology and no biopsy

      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent. People of Mediterranean descent have HLA DQ 7. People of Asian descent have HLA DQ 9. There's other Indigenous populations that have other HLA genes that code for Celiac disease. Are you still having symptoms? What do...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,762
    • Most Online (within 30 mins)
      7,748
    Nana 75
    Newest Member
    Nana 75
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Oliverg
      Glutened

      By Oliverg · Posted

      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar.   2 hours later I was throwing up violently on my hands and knees over the loo.  .horrendous stomach pains,  My hair was wet from sweat every part of my body was wet. What an awful experience, just had a bad headache today  fortunately.    Is their any products/pills anyone takes if they have realised they have just been glutened to make the symptoms a little less worse.  thanks  
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      Yes, do take your B Complex with Benfotiamine or Thiamax.  Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day.  Taking them too close to bedtime can keep you too energetic to go to sleep.   The Life Extension Benfotiamine with Thiamine is Benfotiamine and Thiamine Hydrochloride, another form of thiamine the body likes.  The Thiamine HCl just helps the Benfotiamine work better.   Read the label for how many milligrams are in them.  The Mega Benfotiamine is 250 mgs.  Another Benfothiamine has 100 mgs.  You might want to start with the 100 mg.    I like to take Thiamax in the morning with a B Complex at breakfast.  I take the Benfotiamine with another meal.  You can take your multivitamin with Benfotiamine at lunch.   Add a magnesium supplement, too.  Thiamine needs magnesium to make some important enzymes.  Life Extension makes Neuro-Mag, Magnesium Threonate, which is really beneficial.  (Don't take Magnesium Oxide.  It's not absorbed well, instead it pulls water into the digestive tract and is used to relieve constipation.)  I'm not a big fan of multivitamins because they don't always dissolve well in our intestines, and give people a false sense of security.  (There's videos on how to test how well your multivitamin dissolves.).  Multivitamins don't prevent deficiencies and aren't strong enough to correct deficiencies.   I'm happy you are trying Thiamax and Benfotiamine!  Keep us posted on your progress!  I'm happy to answer any questions you may have.  
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.
    • olivia11
      suggest gluten free food

      By olivia11 · Posted

      Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.
    • knitty kitty
      GI DX celiac despite neg serology and no biopsy

      By knitty kitty · Posted

      There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.