Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Abnormal Results On Gluten Test, Have A Few Questions.


Alpinist

Recommended Posts

Alpinist Newbie

Hi, I found this forum after doing a bunch of reading.  I'm a 34 year old male, long story short, after finding out I had Hashimotos thyroiditis last year I ended up seeing a Naturopathic Dr. who sent me for the Cyrex gluten test.  These are the results I got back.  I haven't seen the naturopath yet, but my primary care doc seems to think this indicates Celiac and has offered to sent me to a GI for endoscopy.  Does this mean I have Celiac or would it point to a non Celiac gluten sensitivity?  I've read so much the past few days I'm a little confused.  I appreciate any help you can offer.  Thank you. 

 

 

Screenshot_2015-07-20-21-33-46-1_zpsucs6


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I am not familiar with these tests and am not sure if they are accurrate or not. It is good that your GP is willing to send you to a GI doctor. Keep eating gluten until all testing is complete.

A biopsy via endoscopy can confirm a celiac diagnosis. There is no test to identify a gluten sensitivity at this time. I would recommend researching the University of Chicago's celiac website for testing information.

I wish you well!

kareng Grand Master

I think you should get the Celiac blood tests. There isn't a lot of scientific evidence that these tests by this company are accurate for much.

Open Original Shared Link

nora-n Rookie

By the way, the tissue trasnglutaminase-3 is the antibody involved with DH. (celiac in the skin)
(and the ttg-6 is for antibodies in the CNS)
Those cross react sometimes a bit with the ordinary celiac test Ttg-2, sometimes not.

 

Interesting tests.

 

By they way, do you have DH? 

The diagnosis is via skin biopsy of healthy skin while you still eat gluten

Alpinist Newbie

Thanks for the answers.  I don't have DH-but I do have acne I think is diet related.

 

I did not know the test I got would not test for Celiac.  I guess I will ask my primary care to give me the standard test for Celiac.  I was eating low-gluten for about 2 weeks before this test and as of 3 days ago I have been gluten free, but I will start eating gluten again starting today until all testing is done.  Do you think I am good to take the blood test or do I need to wait?

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,204
    • Most Online (within 30 mins)
      7,748

    JaymeC
    Newest Member
    JaymeC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.