Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Synthyroid For Thyroid Contains Gluten


Karli bose

Recommended Posts

Karli bose Newbie

Hello all, I have been diagnosed with celiac last September and I should admit it is a hell road for me .. From severe acid reflux to difficulty in breathing, brain fog and fatigue... Beside that once I got diagnosed with celiac I did my best to go for gluten free but I lost 20+ pounds and look sick . I am trying my level best to eat more calories but seems it is not helping.. Last week I went for a check up and then the doc said " let me change your medicine synthyroid... The binding of the medicine contains gluten.. She prescribed me some gel form capsules... Also seems dairy brings my breathing issue and after all this it seems to start over from beginning and I am already tired ... With two kids and job everything seems to be so hard...I feel like it's like never ending.. Can anyone of you tell me what should I include in my diet that given me energy and extra calories and also gluten and dairy free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

So you have been taking a thyroid replacement all this time and it contains gluten? No wonder you are so sick! Please make sure to call the manufacturer each time you get a prescription filled or purchase an OTC supplement/med. Hard to do when you are so sick, I know!

You should feel better soon. In the meantime eat fat! Add coconut oil to your coffee. Eat the fattiest cuts of meat, eat that crispy chicken skin, add oils where you can (olive oil on roasted asparagus, for example). Do not worry about cholesterol levels now. You need to gain weight! Your thyroid meds should help you with the fatigue. Try to rest as much as possible. Not sure how old your kids are, but get them to help even with little tasks.

Hang in there!

bartfull Rising Star

And avoid dairy at all costs! While it's true that many of us can't digest dairy until we are healed, it sounds to me that you may have an allergy to dairy. It often does cause problems with folks who have asthma and is known to increase mucus in the respiratory system.

StephanieL Enthusiast

Synthroid isn't not gluten free- it's just "not guaranteed" to be gluten-free any more.  I don't think there was gluten in it from my memory and checking the list but I think they have just gone CYA and are now saying they won't guarantee it. 

 

FWIW- We use Mylan brand here.  There are also many adults on here who really prefer the more natural (Thyroid Shield I believe) for thyroid issues. 

etbtbfs Rookie

Use.levoxyl. Guaranteed gluten-free. See glutenfreedrugs.com. Add T3 if necessary, to get your FT3 at least to mid-range. I use T3 as cytomel, cuz it is also gluten-free.

Karli bose Newbie

So you have been taking a thyroid replacement all this time and it contains gluten? No wonder you are so sick! Please make sure to call the manufacturer each time you get a prescription filled or purchase an OTC supplement/med. Hard to do when you are so sick, I know!

You should feel better soon. In the meantime eat fat! Add coconut oil to your coffee. Eat the fattiest cuts of meat, eat that crispy chicken skin, add oils where you can (olive oil on roasted asparagus, for example). Do not worry about cholesterol levels now. You need to gain weight! Your thyroid meds should help you with the fatigue. Try to rest as much as possible. Not sure how old your kids are, but get them to help even with little tasks.

Hang in there!

Karli bose Newbie

Thank you so much @cyclinglady... Yes they says most of the binding in medicine contains gluten so she changed it to Tirosint gel capsules... It does feel a little good now and but the blood work came with the result of low iron she ashes me to work with the pharmacist and get a glutenfree supplement for 300... Do you know any brands that is good iron supplement and glutenfree


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Country life is at least certified gluten-free. I am sure there are others, but with what you have been through, I think an iron tablet that is certified is best instead of relying on the statement "no gluten". Just my opinion.

kareng Grand Master

I am just going to remind people that saying something is gluten free doesn't mean it is " certified" or even tested. Some companies do their own testing. Some just label things with no gluten ingredients " gluten free".

Also, according to a recent study, and it made sense to me, almost no medications use gluten as a binder. I will see if I can find that.

https://www.celiac.com/forums/topic/110762-chance-of-gluten-in-meds-very-low/

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    3. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Are Lindt chocolate balls gluten free?

    4. - Dorothy O. commented on Scott Adams's article in Latest Research
      7

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    5. - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,402
    • Most Online (within 30 mins)
      7,748

    alanhlam
    Newest Member
    alanhlam
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
    • JoJo0611
      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.