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Synthyroid For Thyroid Contains Gluten

Karli bose

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Karli bose Newbie
Karli bose
Posted

Hello all, I have been diagnosed with celiac last September and I should admit it is a hell road for me .. From severe acid reflux to difficulty in breathing, brain fog and fatigue... Beside that once I got diagnosed with celiac I did my best to go for gluten free but I lost 20+ pounds and look sick . I am trying my level best to eat more calories but seems it is not helping.. Last week I went for a check up and then the doc said " let me change your medicine synthyroid... The binding of the medicine contains gluten.. She prescribed me some gel form capsules... Also seems dairy brings my breathing issue and after all this it seems to start over from beginning and I am already tired ... With two kids and job everything seems to be so hard...I feel like it's like never ending.. Can anyone of you tell me what should I include in my diet that given me energy and extra calories and also gluten and dairy free.

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cyclinglady Grand Master
cyclinglady
Posted

So you have been taking a thyroid replacement all this time and it contains gluten? No wonder you are so sick! Please make sure to call the manufacturer each time you get a prescription filled or purchase an OTC supplement/med. Hard to do when you are so sick, I know!

You should feel better soon. In the meantime eat fat! Add coconut oil to your coffee. Eat the fattiest cuts of meat, eat that crispy chicken skin, add oils where you can (olive oil on roasted asparagus, for example). Do not worry about cholesterol levels now. You need to gain weight! Your thyroid meds should help you with the fatigue. Try to rest as much as possible. Not sure how old your kids are, but get them to help even with little tasks.

Hang in there!

bartfull Rising Star
bartfull
Posted

And avoid dairy at all costs! While it's true that many of us can't digest dairy until we are healed, it sounds to me that you may have an allergy to dairy. It often does cause problems with folks who have asthma and is known to increase mucus in the respiratory system.

StephanieL Enthusiast
StephanieL
Posted

Synthroid isn't not gluten free- it's just "not guaranteed" to be gluten-free any more.  I don't think there was gluten in it from my memory and checking the list but I think they have just gone CYA and are now saying they won't guarantee it. 

 

FWIW- We use Mylan brand here.  There are also many adults on here who really prefer the more natural (Thyroid Shield I believe) for thyroid issues. 

etbtbfs Rookie
etbtbfs
Posted

Use.levoxyl. Guaranteed gluten-free. See glutenfreedrugs.com. Add T3 if necessary, to get your FT3 at least to mid-range. I use T3 as cytomel, cuz it is also gluten-free.

Karli bose Newbie
Karli bose
Posted
  • Author

So you have been taking a thyroid replacement all this time and it contains gluten? No wonder you are so sick! Please make sure to call the manufacturer each time you get a prescription filled or purchase an OTC supplement/med. Hard to do when you are so sick, I know!

You should feel better soon. In the meantime eat fat! Add coconut oil to your coffee. Eat the fattiest cuts of meat, eat that crispy chicken skin, add oils where you can (olive oil on roasted asparagus, for example). Do not worry about cholesterol levels now. You need to gain weight! Your thyroid meds should help you with the fatigue. Try to rest as much as possible. Not sure how old your kids are, but get them to help even with little tasks.

Hang in there!

Karli bose Newbie
Karli bose
Posted
  • Author

Thank you so much @cyclinglady... Yes they says most of the binding in medicine contains gluten so she changed it to Tirosint gel capsules... It does feel a little good now and but the blood work came with the result of low iron she ashes me to work with the pharmacist and get a glutenfree supplement for 300... Do you know any brands that is good iron supplement and glutenfree

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cyclinglady Grand Master
cyclinglady
Posted

Country life is at least certified gluten-free. I am sure there are others, but with what you have been through, I think an iron tablet that is certified is best instead of relying on the statement "no gluten". Just my opinion.

kareng Grand Master
kareng
Posted

I am just going to remind people that saying something is gluten free doesn't mean it is " certified" or even tested. Some companies do their own testing. Some just label things with no gluten ingredients " gluten free".

Also, according to a recent study, and it made sense to me, almost no medications use gluten as a binder. I will see if I can find that.

https://www.celiac.com/forums/topic/110762-chance-of-gluten-in-meds-very-low/

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    • Oliverg
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      By Oliverg · Posted

      Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar.   2 hours later I was throwing up violently on my hands and knees over the loo.  .horrendous stomach pains,  My hair was wet from sweat every part of my body was wet. What an awful experience, just had a bad headache today  fortunately.    Is their any products/pills anyone takes if they have realised they have just been glutened to make the symptoms a little less worse.  thanks  
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