Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Been Eating Wrong


Selfmom5

Recommended Posts

Selfmom5 Newbie

It started when we went on vacation. I went with a friend and it is hard trying to eat out especially fast food when you have to eat gluten-free. Others don't get it. I took along my food enzymes and told myself to limit myself to one meal a day max that had gluten. Things just kind of spiraled from there. Kids are home for the summer and I just wanted bread that didn't have that cardboard feel ect... I know better.. But I hit a week point.. So now I am trying to heal myself again.

for me it's easy to sneak gluten in when I'm not having those major symptoms like throwing up I'm feeling like Porky Pine Needles are coming out of your skin. But of course now my body is hurting,I'm having muscle spasms,whelps, headaches ect. So I am taking probiotics I have been taking magnesium calcium vitamin D vitamin D. Zeal helps me a lot where daily victim and didn't. I have been eating right for the last two weeks .... But what else do I need to be doing?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

currently available enzymes have no effect on gluten. Hopefully you have learned a lesson? There really is nothing you can do but eat completely gluten free and eventually, you will heal. But if you keep doing this, you will never completely heal and un- treated Celiac leads to lots of problems

cyclinglady Grand Master

It looks like you have two options: 1) consider a gluten challenge and get tested for celiac disease. It might help you adhere to the diet if testing is positive. 2) consider yourself a celiac (based on all your symptoms) and never consume gluten again! Like Karen said there is nothing you can take to prevent an autoimmune reaction from injesting gluten if you have celiac disease. Maybe someday........

I am formally diagnosed, but my hubby is not. He has been gluten-free for 14 years and he never cheats intentionally. We think he has celiac disease, but we will never know. He refuses to do the challenge. He knows he will get sick. He also knows that he does not want any autoimmune disorders. His Mom had MS and his aunts had Thyroiditis (Graves and Hashi's). Watching his Mom suffer with MS was a enough of an incentive to avoid gluten. Not saying that he would develop MS, but the risk is there.

Me? Hashi's, celiac disease, diabetes, opsteoporosis, fractures, I am fighting to avoid more autoimmune disorders!

kareng Grand Master

It looks like you have two options: 1) consider a gluten challenge and get tested for celiac disease. It might help you adhere to the diet if testing is positive. 2) consider yourself a celiac (based on all your symptoms) and never consume gluten again! Like Karen said there is nothing you can take to prevent an autoimmune reaction from injesting gluten if you have celiac disease. Maybe someday........

I am formally diagnosed, but my hubby is not. He has been gluten-free for 14 years and he never cheats intentionally. We think he has celiac disease, but we will never know. He refuses to do the challenge. He knows he will get sick. He also knows that he does not want any autoimmune disorders. His Mom had MS and his aunts had Thyroiditis (Graves and Hashi's). Watching his Mom suffer with MS was a enough of an incentive to avoid gluten. Not saying that he would develop MS, but the risk is there.

Me? Hashi's, celiac disease, diabetes, opsteoporosis, fractures, I am fighting to avoid more autoimmune disorders!

How can you tell she isn't a diagnosed Celiac? I guess, I just assumed she was? Maybe she said that in another thread?

Well... For the Celiacs reading along, don't cheat!

cap6 Enthusiast

Every time you cheat you do more damage to your body and each time it may take a little longer to heal. It's your choice.

cyclinglady Grand Master

How can you tell she isn't a diagnosed Celiac? I guess, I just assumed she was? Maybe she said that in another thread?

Well... For the Celiacs reading along, don't cheat!

SefMom5 posted last August (2014) that she had been gluten-free for a year in order to help heal her thyroid. She talked about getting tested, but not sure she has.

SelfMom5 did you get celiac testing?

kareng Grand Master

SefMom5 posted last August (2014) that she had been gluten-free for a year in order to help heal her thyroid. She talked about getting tested, but not sure she has.

SelfMom5 did you get celiac testing?

So I didn't miss it in the post ! You have a good memory. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748

    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.