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Guilt

Redhead03

By Redhead03
in Related Issues & Disorders

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Redhead03 Newbie
Redhead03
Posted

I got married about 2 years ago and was diagnosed about 1 year ago. My husband and I have been talking about trying to have kids. But I can't get passed this feeling of guilt. I have a genetic disease and I know I have a genetic disease. Can I really ask someone else to shoulder the burden of this disease? I know having a child does not guarantee a child who will develop Celiac disease. But I cannot imagine the guilt if I had a child who did develop Celiac disease. Has anyone else dealt with this? If so, how did you overcome it?

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notme Experienced
notme
Posted

o, redhead, i feel your guilt!  but, we didn't know where my daughter's r.a. and son's type one diabetes came from until i got diagnosed in my 40's.  nothing i can do about it now, and they are pretty awesome people.  i don't think i would want to miss knowing them :)  plus, maybe you won't pass it on or they can actually inherit the gene and never have it be 'active'.  i also like to think that science is going to make some pretty awesome breakthroughs and make it easier for all of us with a.i. diseases.  my opinion?  don't miss out because of 'what ifs' (if you think too hard about it, that's really all life is:  what if this and what if that.  nothing is really guaranteed and it's up to us to make the best of it)  annnnd, if your kid *does* end up with celiac, you will be so awesome at feeding him/her because of your experience.  good luck with whatever you decide and welcome to the forum :)

Gemini Experienced
Gemini
Posted

Hi I'm Eloise and 14

You seem a littel worried to hav children and scared butt don't feel guilty.I think you shoulld hav children somone to love and spoil and hug and giv loads of kisses to.They mightt not gett coelliac you no and if they do you will hellp them gett better and if you don't hav children you will spend your hole liffe wishing you had children if you don'tt hav them now.

I hav celiac and cystic fibrosis and my CF is real bad butt I hav my daddy to giv me lotts of kisses and come to the rescue when I need to go to hosspital my mummy is real sick with MS.I hav two sisters in heaven and one still here.I hope my mummy and daddy never fellt guilty or worried abot having children.I no my life and my families life has been verry very verry hard at times but I am glad I am alive and so glad mummy and daddy had me.i think they ar glad they had me too.My mummy and daddy ar the bestist mostt amazing peopell ever and I no if you hav a son or daughter and if they ar sick or nott they will love you so much no matter what.

Eloise

Well...there you have it, redhead!  This advice comes from the smartest 14 year old in the history of the world so listen to Miss Eloise...she knows only too well how things really work in life.  ;)  :)

caro7 Newbie
caro7
Posted

DITTO GEMINI. What a girl!!!!!!!!!

bartfull Rising Star
bartfull
Posted

Think about this - because celiac is genetic there is a very strong likelihood that you inherited it from one of your parents. Would you have rather THEY didn't have YOU?

 

Life is so GOOD, even with celiac! As Not Me said, with scientific advances it's only going to get easier, and as Eloise said, she is glad her parents had her. GO FOR IT! :)

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    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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