Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Join Our eNewsletter:
    Support Our Content
    eNewsletter
    Donate

Our Eloise In Uk For Organ Transplant This Pm


ravenwoodglass

Recommended Posts

squirmingitch Veteran

HAPPY, HAPPY, HAPPY NEWS!!!!!!!!!!!!!!!!!!!!!!!

This news from Eloise's sister:

"Prayers are being answered!

The doctors wanted to try again to wean my sister off ECMO today.
They have been decreasing flow from ECMO(heart and lung bypass)every few hours today and my little sister is doing well!!!!!!!!!!yay!!!!!!!!!At last!!!!!! Her new lungs are starting to work a bit on their own her heart is getting better too.Her new pancreas is good but her liver and kidney aren't good but crrt and medicine is helping. At 8pm Eloise is going to be clamped off ECMO for a short time and put on full ventilation to see how she does. If she does good then goodbye ECMO.goodbye hopefully forever!!
Thank God!!At last!!"

 

Our little Earth Angel has decided nap time is over & it's time to fight again. Go Eloise GO!!!!! I'm sooooooo proud of you sweetie!!!! Keep up the good work baby doll!! 

Meanwhile we are still praying. This is going to be a tough fight little one but you came through the transplant surgery with flying colors. We have faith in you. Miracles DO happen. xxxxooooo


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LookingforAnswers15 Enthusiast

Great news!!! Eloise you can do it! Prayers will continue coming your way.

ravenwoodglass Mentor

Great news and thanks for sharing. Prayers are continueing for the whole family.

psawyer Proficient

The moderation team would like to let everyone know that a recent member was posing as multiple family members of someone with serious medical issues.  This person was not being genuine and stole information and pictures from other websites.  We have learned that this person has been using the same story on other websites to solicit money and gifts.  We would like to remind our members to please guard themselves on the internet and not give out personal or financial information freely.  Here are some links to internet safety information we recommend reading:

 

General Internet Safety Information:

Open Original Shared Link

Open Original Shared Link

 

What are catfishing hoaxes?:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

 

How to conduct a google image search to see what the original source is:

Open Original Shared Link

The celiac.com moderating team

psawyer Proficient

To add to my post just above, we have a very compassionate and caring community here at celiac.com who help each other. It is troubling to me, and I am sure to many others here, when an outsider tries to take advantage of us. But please continue to participate and help. I have been a member here for more than ten years, and a moderator for more than eight, and this event is exceptional.

Scott Adams Grand Master
The moderation team and admin would like to let everyone know that this thread is an elaborate hoax and the person who started it has been banned. "Miss Eloise" was posing as multiple family members of someone with serious medical issues.  Miss Eloise was not being genuine and stole information and pictures from other websites.  We have learned that Miss Eloise has been using the same story on other websites to solicit money and gifts.  We would like to remind our members to please guard themselves on the internet and not give out personal or financial information freely.  Here are some links to internet safety information we recommend reading:
 
General Internet Safety Information:
Open Original Shared Link
Open Original Shared Link
 
What are catfishing hoaxes?:
Open Original Shared Link
Open Original Shared Link
Open Original Shared Link
 
How to conduct a google image search to see what the original source is:
Open Original Shared Link (Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Stegosaurus replied to HectorConvector's topic in Related Issues & Disorders
      349

      Terrible Neurological Symptoms

    2. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      349

      Terrible Neurological Symptoms

    3. - Aretaeus Cappadocia replied to Irishgirl5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Digestive symptoms yet negative celiac screening

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fiber-Metabolizing Bacteria Could Boost Gut Health in Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,995
    • Most Online (within 30 mins)
      10,442

    Jody Booker
    Newest Member
    Jody Booker
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Stegosaurus
      I've been following a low carbohydrate Keto AutoImmune Protocol diet.  It's all I can handle.  I'm so excited to learn about thiamine from you.  The benfotiamine should arrive today.  I sure hope it's my missing piece!!!
    • knitty kitty
      I respectfully disagree, @Scott Adams.   Thiamine deficiency (and deficiencies in other B vitamins) can cause unintentional weight loss.  The body will use stored fat and muscle to provide energy in thiamine deficiency.  This results in muscle wasting, fat loss, fatigue, and difficulty putting on muscle mass.  Using stored fat and muscle for energy requires less thiamine than the amount of thiamine required to process carbohydrates.  Thiamine deficiency causes gastrointestinal Beriberi, a localized thiamine deficiency in the digestive tract, which results in dysbiosis, inflammation, and abdominal pain.  Carbohydrates can remain undigested in the intestinal system, which bacteria feed on, encouraging SIBO, and prompting dysbiosis, leaky gut, and inflammation.  Following a low carbohydrate Keto diet, like the AutoImmune Protocol diet, can help because it removes excess carbohydrates that the bacteria feed on.  SIBO can cause weight gain due to inflammational edema of the intestines (water retention in the tissues of the intestines), gas, and slowed transit times.  SIBO bacteria can absorb nutrients from your food before you can, resulting in additional deficiencies of other B vitamins and nutrients.   Thiamine deficiency is corrected with high dose Thiamine Hydrochloride, Benfotiamine and/or Thiamine TTFD (tetrahydrofurfuryl disulfide).  High dose thiamine in the form Benfotiamine has been shown to promote intestinal healing.  It improves "leaky gut".  High dose Benfotiamine will improve the gut microbiome in favor of beneficial bacteria.  Thiamine TTFD is beneficial for neurological issues.  Thiamine TTFD improves brain function and is beneficial for mental health issues such as depression and anxiety, and other neurological problems like Ataxia and Brain Fog.    Methylated (activated) B Complex vitamins help correct Thiamine deficiency because all eight B vitamins work together.  Vitamin C and the four fat soluble vitamins (A, D, E, and K) are needed as well.  Minerals like Magnesium, Calcium, Iron,  Potassium, and others may need to be supplemented as well.  Thiamine and Magnesium make life sustaining enzymes together.   Supplementing with high doses of Thiamine and other water soluble B vitamins will lower pain and inflammation, improve fatigue, improve muscle mass gain, as well as regulate the intestinal microbiome!  So, @Stegosaurus, you can get healthier while improving gut dysbiosis at the same time! References: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Dietary Vitamin B1 Intake Influences Gut Microbial Community and the Consequent Production of Short-Chain Fatty Acids https://pmc.ncbi.nlm.nih.gov/articles/PMC9147846/
    • Aretaeus Cappadocia
      You may know this already, but in addition to what you've described, you may also want to get a genetic test. About 1/3 of people have one of the genetic markers that are necessary (but not sufficient) for getting celiac. If your son is one of the 2/3 of people that don't have the marker then it is almost certain he does not have celiac. (The genetic test won't tell you if he has celiac, it can only tell you whether or not he is susceptible to getting celiac.)
    • JennMitchell79
    • Scott Adams
      That is really interesting, especially because it points to how the gut microbiome may still stay altered in celiac disease even after going gluten-free. The idea that a fiber like inulin could help feed beneficial bacteria and reduce inflammation is encouraging, although I imagine some people with celiac disease or other gut issues might still need to introduce it carefully depending on tolerance. It definitely feels like an area worth watching, because anything that could help support healing beyond just avoiding gluten would be valuable.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.