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Opinions And Help Please

MommaBear

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MommaBear Newbie
MommaBear
Posted

Hi,

 

New to the board. I have been googling my symptoms and it brought me here. I have recently had blood work for Celiacs and all of my numbers came back in the normal range. However, I am at a loss on where to go from here. If anyone has any info that can lead me in the right direction I would be forever grateful. My currently symptoms are:

-Anemia & Vitamin D Deficient (am currently taking 50,000mg of D2).

-Have diarrhea with bouts of constipation. (tmi sorry)

-My stomach hurts after I eat, sometimes my mouth actually burns/tingles also.

-I have eaten bagels and gotten a large lump in my throat (like it was closing up) but most times its like I am out of breath.

-I get bloated after I eat.

-Wheat seems to get me more than anything else, but sometimes after I eat gluten thing free things I get a metal taste in my mouth. Also am lactose intolerant.

-I get really tired after I eat. (last week I had pasta for lunch and dinner, I literally became so tired I slept from Friday night to Sunday morning only waking up for about 5 hours on Sat). I have no energy at all.

-Cannot lose weight. I work out 6 days a week for months and am not losing any weight. I have remained at this weight for years.

 

That's all I can think of now. If anyone knows where I should look next I would appreciate the help.

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LookingforAnswers15 Enthusiast
LookingforAnswers15
Posted

Hi MommaBear,

 

sorry that you are feeling this way. I really do not know nearly as much as some people on here and I am sure that they will give you a great advice. Inability to loose weight, vitamin D deficiency, feeling tired could be connected with thyroid. If I am not mistaken people with Hashimoto may feel this way. Look it up and see if your symptoms match and get tested. As I said, some incredible people on here will be able to help you better since they truly know more than some doctors.

 

Hope you feel better soon. 

cyclinglady Grand Master
cyclinglady
Posted

Exactly what celiac tests were given? Often just an IGA deficiency and a TTG iga screening tests are given. Some people (like me) test negative on the TTG tests. I only had one positive on the DGP IGA, yet I had moderate to severe intestinal damage based on my biopsies. Here is the complete panel:

-Tissue Transglutaminase (tTG) IgA and (tTG) IgG

-Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG

-EMA IgA

-total serum IgA and IgG (control test)

-AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests

-endoscopic biopsy - make sure at least 6 samples are taken

(Source: NVSMOM -- )

Welcome to the forum!

MommaBear Newbie
MommaBear
Posted
  • Author

Thank you for your responses. They have tested my thyroid (twice) and my numbers were normal. For the blood tests my results were:

 

Immunoglbln M Serum 91 - 414 mg/dL 300 Gliadin IgA 0 - 19 units 6 Gliadin IgG 0 - 19 units 3 Transglutaminase IgA 0 - 3 U/mL <2 Tissue Transglut Ab 0 - 5 U/mL

<2

 

I am waiting for a referral to an allergist. If that doesn't help, I really don't know where else to turn.

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