Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not getting enough food, malnourished?


Victor10

Recommended Posts

Victor10 Rookie

Okay so I haven't been officially diagnosed but I'm pretty sure I have celiac. I went a few weeks off Gluten and I felt amazing. My face cleared up, my digestive problems disappeared. My stools were finally normal after so many years. I had energy.

 

A few days ago at a wedding I made the stupid mistake of eating alot of Gluten. Needless to say I felt horrible. Stomach cramps, gas and bloating. Diarrhea and fatigue. I've slowly been getting better but my stomach is still very sensitive after being glutened. So I have to eat light till I recover.

But my question is it possible to feel weakish and as if I'm not getting the right amount of nutrition and vitamins. I feel by cutting out Gluten I haven't been eating much and its starting to affect me. I guess you can call it like brain fog also. I can tell my body wants more food. I have barely eaten protein at all, you think the lack of it is making me feel weak and malnourished?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Getting tested is your best bet on staying on the gluten-free diet.   It is possible to go gluten-free on your own (like my hubby did) but it is hard.  Not just the diet, but the possible lack of support from medical family and friends.  Ask your doctor to test you vitamin and mineral levels.  No need to guess.  

Next time notify the the bride to see if the caterer can accommodate you or bring your own food.   But I bet you already have figured that out!  

I am sorry that you got sick.  Why are you not eating?  Do you cook?  It might be time to learn.  Start with plain meat, fish and poultry and lots of cooked veggies as they are easier to digest.  Hopefully you will feel better soon!  

 

mamaw Community Regular

Is  there a reason you can not  get  tested  for  celiac  first?It  is always  best  to be tested  when possible....Why are  you not  eating protein? yes, it is possible to feel  very weak  when not consuming  the  correct  balance  of  food  &  enough  food..even if  you get  dx'd  celiac  one  must  maintain  a balance  of  foods (  healthy foods) so  the  gut  can heal....When a person does not  consume  enough food their  blood  sugar  can  drop.....

 

Victor10 Rookie

I just haven't had a chance to go get tested yet but since being off Gluten i dont know if it will come up positive.

To be honest I'm still young and never really cooked for myself. This is all still new to me. So I I've just been eating little here and there that I see isn't Gluten. Today I went with my mother and we bought alot of fruits and vegetables, meats and fish and alot of other Gluten free foods so I can eat a healthy meal and get the proper nutrition now.

bartfull Rising Star

Victor, get yourself some disposable baking pans. You can cook things like chicken and fish in the oven in big batches. Then cook up a huge pot of rice. Then mix the meat with the rice. Chop up the vegetables really fine and throw them in raw. Now put individual servings into ziplock bags and throw them in the freezer. Then at mealtime (or a little before so it thaws a little), put it in a bowl and microwave it. Add a little butter or cheese or whatever you want, and you've got a quick, easy meal.

I am not a good cook and I don't particularly like to cook either. So I do it this way. I only cook once a week and it makes life so much easier. Once you've done this a few times with different foods you'll have a variety in your freezer to choose from. :)

Victor10 Rookie

That's a great idea, I will definitely do that and will save me time being a student. 

 

I'm making an appointment with a doctor to get tested for celiac, see what happens.

But since the wedding I've been off and having upset stomach and nausea. Ugh this sucks. 

squirmingitch Veteran

You will have to be eating gluten to get tested. Here are the rules:
Open Original Shared Link

I don't care if the doc says you don't have to follow those rules because the doc will be wrong & you will get a negative result. 

Also, for when you go full on gluten free you will need to know these rules to prevent cross contamination. Read this thread & follow all the links in it. It would be good for your mom to read it too so she knows.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.