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Abort, abort! I help devising a soothing "diet."

Ender

By Ender
in Food Intolerance & Leaky Gut

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Ender Apprentice
Ender
Posted

This is what I KNOW I'm intolerant to: 1) Gluten/Wheat (cutting it out reduced my symptoms by *pulls number from ass* 80%), 2) Corn (It caused mild gluten-like symptoms and asthma). 

This is what I THINK I'm intolerant to: 1) Wild Rice, 2) Kidney Beans 3) Evaporated Cane Juice or Chocolate :(

Basically, after I've eaten corn, rice, and evaporated cane juice (or chocolate), I ended up with neuropathic symptoms (numbness/tingling in my limbs) as well as stomach issues/pains, all milder and shorter lived than with gluten. After I ate rice yesterday, my insomnia also reared its b%$@#y head again. :angry: Kidney beans just made me constipated. I might try them again at a later date though.

So here's the opposite of those lists. This is what I THINK is okay for me to eat: 1) Meat, 2) Veggies, and 3) Fruit. I've seen a lot of diets on this site to help sensitive stomachs. I see things like Candida, Fructose Malabsorption, SIBO, SCD, paleo, etc. Do my lists look familiar to any of you experienced with these "diets*"? After reading through old threads and in responses to ones I've made, I know that if I've shown reactions to wheat, corn, and rice, I should probably just skip the rest, give it up, and not test any grains for a while, so I'm going to stay away from them for the foreseeable future and just eat pseudo-grains instead. I think I'm doing okay with quinoa, so I'll pick up some buckwheat and amaranth this weekend and try to eat those instead. I need the fiber.

^_^ TMI ALERT ^_^ My stools have gotten more normal over the last 2 weeks according to the Bristol Stool Chart. No more tiny rabbit poos for me. I go like Thor now. Often. :lol: END TMI :lol:

You totally read that didn't you? 

So anyway, I think I can eat sweet potatoes just fine. I suspect I could eat baking potatoes too, but I see them cut out of a lot lists so I'm unsure. I intend to test tree nuts and peanuts and bananas soon (I'd taken bananas out because I love them and eat them everyday, but I really, really need them for smoothies). I'd also like to switch back to regular milk at some point and I have a high threshold for lactose intolerance, but I realize that it might not be a good idea right now. Currently, I drink Lactaid. It sucks in tea. :( 

More than anything else though, I really need something sweet in my life. Does reacting to cane juice mean no sugar/sweet stuff at all? I see different sugars taken off different lists. Sometimes maple syrup is fine, other times its not. Sometimes molasses is okay, sometimes it not. Ditto to table sugar and honey. I need something sweet, or I'll cheat and I'll cheat with something stupid.

Any advice you can give me would be awesome. I'll be experimenting with my "diet", of course, I'm just trying to learn from the wisdom/experience of others so that my experimenting is less time consuming, less painful, and more successful. :) 

Thanks. 

*I'm using the word "diet" because calling it a meal plan sounds too clinical. :P

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bartfull Rising Star
bartfull
Posted

Meat, veggies and fruit don't bother you so that's what you should be eating. If you must have something sweet, make it fruit. Sweet potatoes most likely won't bother you so go ahead and try them. They are absolutely loaded with nutrition.

Do NOT cheat. Gather up some will power and stick to a diet you know doesn't bother you. Right now I am living on chicken, rice, broccoli and carrots with a drizzle of olive oil,  and soft boiled eggs. That's IT. I gave up ice cream, yogurt, cheese, butter and gluten-free bread because something has my psoriasis in a raging flare. I eat no sugar at all. I eat no snacks at all. I can do this because I've been through it before and I know that I need to look at eating as a necessary bodily function to be done, gotten over with, and then move on with my day, I don't cave in to temptation. I don't even GET tempted because my attitude about food has changed. It isn't a treat to eat, it's just necessary. After a meal I stop thinking about food until the next one. Instead I think about other things. I change the subject in my mind.

And it isn't that I'm superwoman with an iron will. It's that I really really want this psoriasis to go away. And I know that this super restricted diet is only temporary. Six months maybe. Maybe up to a year. But you can do anything if you know there is an end in sight.

Ender Apprentice
Ender
Posted
  • Author

Very blunt and good advice. ^_^

Thanks. :)

alscat Newbie
alscat
Posted

check out a web page called FODMAPFUN, until i found that web page FodMap stuff was a pain, mystery, and confusing. Good luck, and at minimum, as stated above, if you know that meat, veggies and fruit are safe and do not bother go, stay with it.

Ender Apprentice
Ender
Posted
  • Author

I tried FODMAP but didn't feel better on it.  Of course, this was before I realized I was gluten-sensitive or celiac and that I had an egg allegy. I'll have to look it over once again. Thanks. :) 

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    • cristiana
      Feel like I’m starting over

      By cristiana · Posted

      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
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      By Wheatwacked · Posted

      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      My only proof

      By NanceK · Posted

      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Feel like I’m starting over

      By Wheatwacked · Posted

      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
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