Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Protein shakes


Donna73

Recommended Posts

Donna73 Apprentice

 I am 2 months post diagnosis.  I am somebody who did not have chronic stomach issues before my diagnosis (other than the 3 months before i was diganosed). But, i gained over 50 pounds in 3 years before that.  I lost about 25 of that in the 3 months before my diagnosis.  I still need to lose about 25 pounds.  I have zero interest in food.  I eat because I have to eat, but Im not eating very healthy -- most picking here and there, or eating some gluten free granola. I have no interest in fruit. I have no interest in meat.  I have no interest in really anything.  I live on salad, and granola.  My weight loss has really come to halt, and I am having some muscle cramping.  Im thinking if I just start adding a protein shake into my routine, I can throw in some fruit and spinach, and get some nutrients in me.

Before I was diagnosed, i was using beach body shakeology, but started breaking out in a rash on my face, and its super expensive.  I can't really aford $100 a month on a shake .  Any recommendations on some gluten free vanilla protein mixes out there?  


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Positron Newbie
1 minute ago, Donna73 said:

 I am 2 months post diagnosis.  I am somebody who did not have chronic stomach issues before my diagnosis (other than the 3 months before i was diganosed). But, i gained over 50 pounds in 3 years before that.  I lost about 25 of that in the 3 months before my diagnosis.  I still need to lose about 25 pounds.  I have zero interest in food.  I eat because I have to eat, but Im not eating very healthy -- most picking here and there, or eating some gluten free granola. I have no interest in fruit. I have no interest in meat.  I have no interest in really anything.  I live on salad, and granola.  My weight loss has really come to halt, and I am having some muscle cramping.  Im thinking if I just start adding a protein shake into my routine, I can throw in some fruit and spinach, and get some nutrients in me.

Before I was diagnosed, i was suing beach body shakeology, but starting breaking out in a rash on my face, and its super expensive.  I can't really aford $100 a month on a shake .  Any recommendations on some gluten free vanilla protein mixes out there?  

If you want to be healthy you need to eat real food, not protein shakes that were not helping you in the first place.  Try tuna on Udis hotdog rolls, it's delicious and healthy too.

Donna73 Apprentice

I know that food is better for me.  I have no interest in eating food.  None right now.   I have no interest in eating meat.  I have no interest in eating Tuna, and have no interest in eating gluten free bread.  In fact, it was recommended that I stay away from the gluten free products until my stomach heals.  

Food still makes me sick.  Even food without gluten makes me sick right now.  So, could i down tuna on bread if I liked tuna?  yes, I could, and then I would spend the next 4 hours with heart burn, acid reflux, and indigestion.  I don't mean to sound snippy, but I come here for support. I get enough of oh, just go and eat in my real world.  If I could eat real food without feeling awful, trust me I would.  My entire life before this was centered around going out with friends and trying new restaurants.  If I could do that I would.  I can't.  

Im just looking to get some protein shakes until I can get over this hump and can enjoy eating real food.

Positron Newbie
37 minutes ago, Donna73 said:

I know that food is better for me.  I have no interest in eating food.  None right now.   I have no interest in eating meat.  I have no interest in eating Tuna, and have no interest in eating gluten free bread.  In fact, it was recommended that I stay away from the gluten free products until my stomach heals.  

Food still makes me sick.  Even food without gluten makes me sick right now.  So, could i down tuna on bread if I liked tuna?  yes, I could, and then I would spend the next 4 hours with heart burn, acid reflux, and indigestion.  I don't mean to sound snippy, but I come here for support. I get enough of oh, just go and eat in my real world.  If I could eat real food without feeling awful, trust me I would.  My entire life before this was centered around going out with friends and trying new restaurants.  If I could do that I would.  I can't.  

Im just looking to get some protein shakes until I can get over this hump and can enjoy eating real food.

Are you taking an acid blocker such as Prilosec under a doctors care? this will decrease acid letting your stomach heal, this was very important for me.  Bye the way, it takes 2 full years for healing to be complete.  Are you also lactose intolerant due to the gluten issue like me? If so milk will cause similar symptoms, and a protein shake with whey is just as bad as gluten.  It took me 2 full years to sort everything out.  Good luck

cyclinglady Grand Master

Hi Donna!  

I am sorry that you are feeling so poorly!  Whole foods are best, but I understand your lack of appetite.  I do not know and have not taken any protein shakes, but I did notice that you were consuming gluten-free granola.  Did you know that about 10% or more of celiacs have issues with even certified gluten-free oats?  You might consider giving that up for a while.  It could be impacting your appetite and your healing.

Open Original Shared Link

I am also a diabetic and that occurred after my celiac disease diagnosis.   So, I eat few carbs (mostly veggies grown above ground) and have added lots of fat to my diet.  My diabetes is in check (belong to the HA1c Club of 5%) and I actually found that I finally felt better not consuming so many carbs.  

I hope your feel better soon!  

CeliacMommaBear Newbie

I would recommend the following protein powder, PlantFusion Vanilla Bean. It's very good and I think what you are looking for. 

Also,  Inttroduce each week, give at least a few days between introductions, cod liver oil capsules with lemon, desiccated liver capsules, coconut oil (a tablespoon a day), and grass fed beef gelatin, and probiotics. You can find all of these items on Amazon.

best of luck to you as you heal. 

 

ravenwoodglass Mentor

I agree you should think about dropping the granola if it contains oats. Maybe look for one that doesn't have oats or oat fiber if you feel you must have granola. Have you tried Cream of Buckwheat? That is high in easily digestable protein and quite easy on the tummy.

Have you tried Hemp milk? You could use hemp milk combined with a hemp protein powder for your shakes. A banana added to the chocolate flavor is quite tasty but if you don't like chocolate they do make vanilla.

Be sure to be taking a good gluten-free multi while your diet is less than ideal. The muscle cramps could be telling you that you need more magnesium (a banana a day may also help with that need).

Try to add a bite or two of any tolerated food whenever you think of it throughout the day.  Your body needs nutrients to heal and getting those nutrients can be hard when you really don't feel like eating anything.  It can be difficult to overcome a food aversion when eating makes you feel ill and it is a slow process but you can do it in time as you find more and more things that you can tolerate.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Donna73 Apprentice

Thanks everybody.  I did not know that even gluten free granola can cause issues.  I'll cut that out immediately.  I eat it every day so that could be why I feel so horrible.  

I am not lactose intolerant and handle milk fine (at least I think so), although I am not a big fan of milk, and switched to Almond Milk a few years ago, even before my diagnosis.  I have not tried Hemp milk, but I will check it out and see how I tolerate it. 

 I will also check out the protein powders and see if i tolerate any of them.  

 

squirmingitch Veteran

Donna, if cutting the granola does the trick for you then when you get to the point of eating gluten-free processed foods (& breads) then be cautious & only add 1 at the time to make sure you don't react. I am 1 of those who has a real reaction to even cert. gluten-free pure oats & apparently I react a great deal to them. So much so that I was reacting to Udi's gluten-free bread & Glutino items. Took me the longest kind of time to figure that one out! When it dawned on me, I called Udi's (they also make Glutino products) and they said since the only oats they use in their gluten-free facility are cert. gluten-free oats then they don't clean the lines between runs unless they've run 1 of the top 8 allergens & there is most certainly cross contamination with oats in their products. I quit those items & went back to whole foods & everything went back to rights for me again.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,912
    • Most Online (within 30 mins)
      7,748

    westman3d
    Newest Member
    westman3d
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.