Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Rant....


CMCM

Recommended Posts

CMCM Rising Star

I don't get this....I just today bought a bag of wheat/gluten free cookies. The "glutin Free" stuff was plastered all over the package in huge letters. Then you read the fine print on the side and it states "made in a facility that processes wheat." WHY...WHY do they do this? If they're going to make glutin free products, don't they understand cross-contamination?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Most mainstream brands that have gluten free products and alot of specialty items even have them run on the same lines but clean them thoroughly in between.

mytummyhurts Contributor

I think they just say that to cover their butts, but I still eat it.

bluelotus Contributor

I don't think its fair either. To be gluten free means zero gluten. That may be the case (that the item is gluten-free), but seems that there is always that risk in 'shared' facilities - its definitely a personal decision, that is to avoid that risk or not. Sorry about your cookies.

tarnalberry Community Regular

They cannot guarantee zero gluten because you can't test down to the atom. These words have legal significance, and the legal significance is convoluted and crazy at times. Given the cost of production equipement, items do not get their own production lines - and resources are pooled whenever possible. There are standards for line cleaning which are designed to deal with contamination sources, so I do think they're trying to do their best. The product itself doesn't have gluten containing ingredients, but they're being upfront with you by telling you that they can't preclude cross-contamination. If you don't want to risk cross-contamination, you'll have to go without the products until there is enough of a market to justify the price of dedicated lines for manufacturers.

killernj13 Enthusiast

I think its a CYA. Not related to gluten but I was checking Chips Ahoy and Keebler cookies. (Son is allergic to tree nuts) and all bags state "may contain peanuts".

VegasCeliacBuckeye Collaborator

Unfortunately, it is not financially possible to have "dedicated lines" for all of these companies...

The disclaimer on the package is there for legal reasons. I am actually happy that they do that -- it lets you know there is a possibility of cross-contamination.

Would you rather them say on the front of the package, "This item has no gluten containing ingredients, but it is used in the same plant as other gluten containing items, hence we cannot technically guarantee there is no gluten in the item" ?

I look at it as a good thing, not a bad thing...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast
I don't get this....I just today bought a bag of wheat/gluten free cookies. The "glutin Free" stuff was plastered all over the package in huge letters. Then you read the fine print on the side and it states "made in a facility that processes wheat." WHY...WHY do they do this? If they're going to make glutin free products, don't they understand cross-contamination?
I know... I am also annoyed by this, since I have been contaminated by at least one or two companies that have gluten free on the package. My worst gluten contamination ever was from Bob's Red Mill Flaxseed, which had gluten free on the label. I learned later on their website that they continously detect gluten in all their gluten free products. Go Figure <_<
codetalker Contributor

I've given up on products that have the disclaimer. Now, whenever I see it, I translate it to say "May contain gluten and probably will from time to time".

My last gluten accident was from bionaturae pasta. Their disclaimer says:

This product is manufactured in a facility that produces other products which contain wheat. Therefore we test for the presence of gluten during each production cycle.

One thing that helped me decide to avoid all products with similar disclaimers was the realization that these disclaimers all share one glaring omission. That omission is:

Sure, they test but what do they do when they get a positive test result?

Do they throw out hundreds, maybe thousands, of dollars of ingredients and start again?

Do they have an elf sitting at the end of the production line with a magic marker crossing out "Gluten-free" on the package label?

Or, do they say, Oops! I guess we need to be more careful next time.

Based solely on the disclaimer, there is no way to know.

That's why I've started practicing a better-safe-than-sorry philosophy.

Chuck

Rachel--24 Collaborator

For now I don't eat anything that says its processed in a facility with wheat. I had the same problem as Carrie with Bob's Red Mill Flaxmeal and also buckwheat flour....both labeled gluten-free. Because of cross-contamination I dont think I've ever been totally gluten-free yet. I've been glutened numerous times the past few months and now I'm going to stick to whole foods until I get all this gluten out of my system and actually start healing. Everything has been very confusing to me...especially since I *thought* I was 100% gluten-free. For example I felt sick everytime I ate Blue Diamond gluten-free crackers. I stared at the ingredients over and over and decided it must be the dairy. I gave up dairy but nothing changed. Now I notice the box states that its processed in a facility with wheat. I wasnt looking for this info. before because I thought gluten-free meant no possibility of cc.....I am thankful that this information is there though. I wish every product had this info. on it. It would make life easier for me now that I know to look for it.

bluelotus Contributor
They cannot guarantee zero gluten because you can't test down to the atom. These words have legal significance, and the legal significance is convoluted and crazy at times.

I don't know if you were replying to me, but I never implied testing to the atom, that's rediculous - I was talking about cross contamination, in which case, b/c of the risk, it is not going to be gluten-free all the time. I have experienced similar things as all these people below and have been unintentionally glutened for months. I solved this problem by only eating in whole foods prepared at home and by eating limited packaged foods made in gluten-free facility.

codetalker Contributor

In regard to testing, the following link might be an interesting read, even to those who are not beer drinkers.

Open Original Shared Link

The interesting part mentions that wheat, rye and barley have their own particular type of gluten: gliadin (wheat), hordein (barley) and secalin (rye). The web page asserts that current gluten testing tests for gliadin only and not for the other glutens that cause problems for celiacs. I cannot verify this but, if that is correct, then it raises a disturbing issue when manufacturers say they have tested for gluten. They could be doing everything possible to ensure their products are indeed gluten-free and nevetheless could still miss contamination from barley and rye.

Chuck

Carriefaith Enthusiast
The interesting part mentions that wheat, rye and barley have their own particular type of gluten: gliadin (wheat), hordein (barley) and secalin (rye). The web page asserts that current gluten testing tests for gliadin only and not for the other glutens that cause problems for celiacs. I cannot verify this but, if that is correct, then it raises a disturbing issue when manufacturers say they have tested for gluten. They could be doing everything possible to ensure their products are indeed gluten-free and nevetheless could still miss contamination from barley and rye.
wow, I never thought about that before. If that is true, it could explain a few things :unsure:
floridanative Community Regular

Whole Foods products which are labeled gluten free are made in a dedicated gluten-free facility a few miles from their reg. bakery. A few years ago their head baker got dx'd with celiac disease, and hence his quest for gluten-free bakery items began. They did start in the reg. bakery in the beginning, baking only one day per week, cleaning the lines before and after the gluten-free day. In two years the demand for the gluten-free products were so great that they were able to move to the current facility. So maybe there's some hope that other manufacturers will follow.

:rolleyes:

jenvan Collaborator

There are a few products I trust that are not made on dedicated lines...but most I try and stay away from. Some may be a justified warning...others are probably okay, and just use the CYA for legal purposes. Since its hard to tell, its up to you to decide your protocol.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,811
    • Most Online (within 30 mins)
      7,748

    Brianiceno
    Newest Member
    Brianiceno
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the  forum @maylynn! Have you had a follow-up endoscopy/biopsy of the small bowel to check for healing of the villous lining? If not, it's about time one was done. As Scott mentioned, I also wonder if you have food intolerances in addition to gluten. Oats (even gluten free oats), dairy, soy, corn and eggs are some of the most common ones in the celiac community.
    • Scott Adams
      Is your gluten-free diet strict? Do you eat out in restaurants? If so, you could be getting contamination, and over time that can slow recovery. You may want to get a follow up celiac disease antibody panel done to make sure that your levels have gone down since your last tests. Also, have you had various nutrient levels checked via a blood test, and have you been taking vitamin & mineral supplements since your diagnosis?  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.    Do you still have celiac disease symptoms?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • maylynn
      Hello!  I am here as a last result, hoping for some advice, similar stories, etc. When I was 17, I was diagnosed with Celiac disease. By the time we figured it out my iron levels were so low I had to get infusions, and I had lost 20lbs. in two weeks going from a 5'11 130lbs woman to a 110 lbs. Now, I am 21 and have gained 4 lbs since. Every time I eat a meal, I get three bites in and feel so full that I feel sick. I can't eat a full meal. Something else has to be wrong right? This can't just be more "normal" right? I have done test after test and no doctor in my area can figure anything else out. They have told me I most likely have shrunken my stomach by now with how little I am eating so that has to do with some of the sick feeling. What have you done to gain the weight back? Foods? Workouts? 
    • Bronwyn W
      Thank you so much, Scott. I find it incredibly daunting navigating this celiac space and I find comfort in your wealth of knowledge. Thank you 🙏🏻
    • Scott Adams
      I am not sure about that brand specifically, but this article may be helpful:  
×
×
  • Create New...