small burps and other weird stuff

[ironictruth]

So, after being gluten-free for 8 months, and fairly gluten light before, I did a 6 week challenge with a negative biopsy. I had a slightly elevated DGP in 2015, the gene, and a family history. After the challenge, I went gluten-free for a month In January. I then began eating it again in early February because my GI forgot to do bloodwork and you need to be on it 12 weeks. Finally, about a month ago, after having all sorts of wacky symptoms, my primary doc basically asked me to stop eating it to see if that was the cause of my fluttering heart beats, pain between my shoulder blades, shooting pain near my right carotid artery, dizziness, feeling like I might pass out, chest pain, hands falling asleep at night, right ear ache and days when I feel my whole body aches, like the flu, but with no flu. 

Yes, I did the routine cardio tests and am seeing one in a couple of weeks. 

After a freaking month gluten-free this stuff is still going on, except the chest pain has vanished. They gave me antibiotics, claritin, flonase, xanax, prilosec. I even went to the ER. I have never been on so many meds in a short time. I am off all except the flonase for my ear, (?) pepcid as needed, and a half a xanax when all the symptoms hit at once and it freaks me out.

The one symptom that kicked in full gear 4 weeks into the challenge was burping. Not like a 13 year-old boy burping, but little ones, constantly. It is small enough that I can hide it from my co-workers and boyfriend but it is obnoxious. I suppose it has gotten a bit better but not at all gone. 

Does anyone else get this burping? How long were you gluten-free before it went away? It is hard for me to believe all of this is caused by gluten with a negative biopsy.  I was sort of hoping that because it's been a month things would be significantly better by now. I do have days where I  feel better than I did a few weeks ago, but then I have days that are still pretty bad. I will say that both during the six-week gluten Challenge and in the month of February I probably Ate more gluten than I have in the last two years. I seriously thought the biopsy would come back positive and I would need to give up donuts forever so I just went for it!

[Irene Joanne]

3 hours ago, ironictruth said:

So, after being gluten-free for 8 months, and fairly gluten light before, I did a 6 week challenge with a negative biopsy. I had a slightly elevated DGP in 2015, the gene, and a family history. After the challenge, I went gluten-free for a month In January. I then began eating it again in early February because my GI forgot to do bloodwork and you need to be on it 12 weeks. Finally, about a month ago, after having all sorts of wacky symptoms, my primary doc basically asked me to stop eating it to see if that was the cause of my fluttering heart beats, pain between my shoulder blades, shooting pain near my right carotid artery, dizziness, feeling like I might pass out, chest pain, hands falling asleep at night, right ear ache and days when I feel my whole body aches, like the flu, but with no flu. 

Yes, I did the routine cardio tests and am seeing one in a couple of weeks. 

After a freaking month gluten-free this stuff is still going on, except the chest pain has vanished. They gave me antibiotics, claritin, flonase, xanax, prilosec. I even went to the ER. I have never been on so many meds in a short time. I am off all except the flonase for my ear, (?) pepcid as needed, and a half a xanax when all the symptoms hit at once and it freaks me out.

The one symptom that kicked in full gear 4 weeks into the challenge was burping. Not like a 13 year-old boy burping, but little ones, constantly. It is small enough that I can hide it from my co-workers and boyfriend but it is obnoxious. I suppose it has gotten a bit better but not at all gone. 

Does anyone else get this burping? How long were you gluten-free before it went away? It is hard for me to believe all of this is caused by gluten with a negative biopsy.  I was sort of hoping that because it's been a month things would be significantly better by now. I do have days where I  feel better than I did a few weeks ago, but then I have days that are still pretty bad. I will say that both during the six-week gluten Challenge and in the month of February I probably Ate more gluten than I have in the last two years. I seriously thought the biopsy would come back positive and I would need to give up donuts forever so I just went for it!

My dad had the burping problem and it was his gall bladder causing the problem. 

[ironictruth]

Ah, nope. They took that one from me in 1997. Thanks!

[SLLRunner]

Ironictruth, have you asked your doctor about the burping?

You said your doctor asked you to stop eating gluten to see if your symptoms went away:  was this after the blood tests, which came back as negative? Or, what it the endoscope biopsies that showed negative results? 

I know the frustration of not finding answers. Have you talked to your doctor about further testing? I suggest talking to your doctor about further testing.

I am currently doing the gluten challenge prior to blood testing, and I have the heart flutters you talked about, as well as other symptoms, including burping. 

[ironictruth]

My primary care suggested to go gluten-free despite a negative biopsy. I did have 2 tests, DGP IGA, that came up weak positive, plus the DQ2 gene and a family history. My GI had forgotten to do the bloodwork after a 6 week challenge so I planned to resume eating gluten for the suggested 12 weeks until the primary suggested I stop. 

I actually have not mentioned the bUrping. Mostly because when I go to my doctor I feel like she is already overwhelmed with all of my symptoms. So sometimes I forget some.

Yes, we are doing neuro testing next and an ENT if my ear/neck issues continue. It has been 6 weeks with those now. 

The only thing I could think of is the vagas nerve got irritated and now there are accessory nerves that are equally pissed of. The vagas nerve interacts with the celiac plexus. It basically runs from your gut to your brain. My GI doctor thinks this is nonsense. My Primary Care thinks it's definitely a possibility. I do not really trust my GI doctor because he forgot to run the blood work and one of the tests he was not even familiar with and it has been around for 10 years.

I never had all of this crap before! Wish I had just stayed gluten-free instead of accepting the donut challenge! But with a negative biopsy, it's really hard to believe that it's all from gluten. I hate to blame everything on gluten And miss something serious.

Runner are you doing a 12 week challenge? Have you done the genetic test? What Led you to a gluten-free diet? I hope at the very least you are making the most of your choices during the gluten challenge. I figured I could have afforded to put on 5 pounds and enjoy myself as much as possible in case I could never eat it again! I was lucky to only put on about 2 or 3 which is amazing considering all the crap I ate!

[PeterBSimmons]

Had issue of excess burping and heart skips one hour (feels weird and scary having heart go crazy), then the next hour fine. Especially after eating. Sometimes at its worst, heart skips would actually hurt and gas would cause heart burn. I purchased a heart monitor from Amazon ($125) after running to doctor numerous times failed to catch it in time. Tracked and recorded the abnormal heart beats to show doctor. Turns out, it was caused alone and in combination (Allergies and dehydration). Not excess dehydration. If you eat a food that you suddenly become allergic to, this concentrates in the blood depending on fluids. Drinking water will dilute this in blood. I have always itched slightly when eating red pepper items (Buffalo wings, shrimp, barbecue, etc), horseradish, etc.     Itch depended on eaten quantity and dilution with drink.

It started when: Getting older and slightly over weight, I went on a diet, stopped drinking sodas, juices, milk, etc and started on water and coffee. (Too much coffee and not enough water). One fine day after drinking lots of coffee in the morning, followed by buffalo wings at lunch (Adkins diet) and not enough water, I start with the severe heart problems and when it persisted for hours I went to doctor (they stopped after a few hours in the waiting room). Went from just fine all my life to "can't have". Drank lots dragon tea one day (did not think it had caffeine) and it just about kill me, literally. Doctor looked at monitor readings I took and said I came close to a heart attack. FYI Doctor had me drink coffee and come in to compare my monitor to his .They were exact. Find your allergy (mine is now caffeine and hot spicy foods), drink lots of water.  By the way the body will and can filter out enough allergens in a few hours to make you feel fine again. Apparently there is a threshold. Certain diseases can also trigger this type of allergic reactions. This may not help all but may help some, The symptoms get better with control and every once and a while I will have a caffeine drink or a few hot wings. Then again I will sometimes feels the skips and burp for a few hours when I have just one wing too many and one glass of water too few. 

[ironictruth]

Thank you. I will look into the allergy issue.