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Nursing Home Care—The Great Challenge for the Celiac


Scott Adams

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Scott Adams Grand Master
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The woman's voice, polite but firm came over the line: "We cannot accommodate your mother." "You can't accommodate her?" I wondered if I'd heard wrong.

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cyclinglady Grand Master

This is my worst nightmare!  Forget my kid's college education, I'll need to save for caregivers!  

Gemini Experienced
36 minutes ago, cyclinglady said:

This is my worst nightmare!  Forget my kid's college education, I'll need to save for caregivers!  

Long term care insurance!  I am looking into the cost for this because if you buy the right kind, they will pay for in home care.  It has made all the difference with my father, who is suffering from dementia.......probably from undagnosed Celiac! 

squirmingitch Veteran

I seriously doubt my hubs & I can afford long term care insurance. He is a disabled Vietnam veteran & the disability compensation does not stretch very far.

This is something I have feared ever since finding out I have celiac and then another hit when we discovered the hubs does as well. I am terrified that nursing homes will not be prepared for a celiac and the diet we require without cross contaminating us left & right. I envision the return of the awful celiac rash and them putting me in restraints because I can't stop scratching myself. It's a nightmare that plays over & over in my mind. They'll probably rub Aveeno lotion all over me. Let's coat her lesions in oatmeal! Hell!!!!! Sheer hell!!!!

On top of requiring a gluten-free diet, what about those of us who can not tolerate certified gluten-free oats? Those of us who can not tolerate soy? The list goes on.

What about people who have anaphylactic reactions to peanuts or shell fish or eggs or dairy, tree nuts or any number of foods? Are these people being cared for now? I doubt it if they can't even handle diabetics or kidney diets.

Bleak. I see the future as very bleak.

SLLRunner Enthusiast

This article almost made me cry. 

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    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
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      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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