Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Glad I Found This Forum!


traveljunkie

Recommended Posts

traveljunkie Rookie

Hi everyone, I'm new to this forum and have found it to be very helpful. I have read through many threads and have learned a great deal on how to deal with such a limiting diet. I have found the support and advice you give each other very helpful. As I think back on my health, I realize I've had a problem with gluten my whole life. Doctors said it was...yes, I'll say it..I.B.S.!!! I always knew it had something to do with food but Dr. convinced me that's what causes I.B.S.

In Feb. of this year my son and I had bronchitis and were both put on antibiotics. That's when our bodies completely shut down. Through trial and error and no help from DR.s we realized we could no longer eat pasta, bread,etc. without having severe reactions. We are now gluten free and have never felt better. On occasion we have ingested gluten and right away we get diarrhea and a itchy rash. Ny ears also get red and hot!! Wierd!!

So anyways thank you all for the comments on this forum...they've helped tremendously!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Welcome. I too have gain a vast knowledge from this site. I am now teaching my doctor about Celiac Disease.

I'm impressed that you have solved your gluten intollerance on your own. Good for you.

Feel free to post anytime.

Lisa B.

nettiebeads Apprentice
Hi everyone, I'm new to this forum and have found it to be very helpful. I have read through many threads and have learned a great deal on how to deal with such a limiting diet. I have found the support and advice you give each other very helpful. As I think back on my health, I realize I've had a problem with gluten my whole life. Doctors said it was...yes, I'll say it..I.B.S.!!! I always knew it had something to do with food but Dr. convinced me that's what causes I.B.S.

In Feb. of this year my son and I had bronchitis and were both put on antibiotics. That's when our bodies completely shut down. Through trial and error and no help from DR.s we realized we could no longer eat pasta, bread,etc. without having severe reactions. We are now gluten free and have never felt better. On occasion we have ingested gluten and right away we get diarrhea and a itchy rash. Ny ears also get red and hot!! Wierd!!

So anyways thank you all for the comments on this forum...they've helped tremendously!!!

<{POST_SNAPBACK}>

I'm very thankful for this forum also. I was on my own for 9 yrs before breaking down and sought support online. Thank God I found this place!! My knowledge of celiac disease has improved considerably and so has my health. Welcome to the site, and please feel free to post any questions. None are to gross or silly! After all, it's only your health!

Annette

jenvan Collaborator

glad you've fount it helpful! don't know what i would have done without it :) ah, the dreaded IBS mis-diagnosis...join the club of those of us with the same experience!

traveljunkie Rookie

Thanks, everyone! I know this will be just the first of many posts. Look forward to chatting with you all!! Been through a lot and have lots of stories to share!

beelzebubble Contributor

welcome :)

i'm glad you found this site too. it's been a source of very necessary information and comfort to me these last few years. i know it will be to you too.

i just have to ask, just in case...have you done a round of probiotics to help your intestines get healthy after being on the antibiotics? i've found that it really helps. i know it was a while ago, but chances are you are still out of whack if you haven't taken steps to correct it.

anyway, be well.

bubble

traveljunkie Rookie

Hey Bubble,

Thanks for the warm welcome! Yes I do take probiotics, they seem to help a lot. In the beginning I never realized that gluten was making the situation worse. Now that I'm healing and watching my diet, taking vitamins and probiotics things are defineatly improving. The only problem I have is with cheese and I usually take a extra dose of probiotics if I do it eat. They usually curb the side effects of eating cheese.

Thanks again!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Hope you find the forum helpful. Welcome :)

stef-the-kicking-cuty Enthusiast

Diagnosed with IBS... Ha, doesn't that sound familiar :P . Welcome to the board and feel free to ask every question no matter how stupid it may seam to you.

Hugs, Stef

judyk Newbie

I'm new here, too. I've had this problem for years. My mother was

allergic to wheat but I don't think they knew about celiac then. I was

tested for gall bladder and then my doctor had the blood test done.

No celiac! But I still vomit. Although my diarrhea has improved the

last couple days. The up side is I'm losing weight.

I was disappointed that nothing showed in my tests but from what I

have read on this site..sometimes it doesn't show.

I cheated Thanksgiving and this a.m. Yes, I got sick so back to wheat

and milk free.

JudyK

stef-the-kicking-cuty Enthusiast

Hello Judy,

welcome in our little "celiac community". Just listen to your body. If the test results didn't show anything, but you feel better on wheat and milk free, then do it. You might have read this already somewhere in here, but here it is again. Celiacs are sometimes (especially at the beginning of their diet) intolerant to milk. In a couple of weeks (or months) though, when the little hair in your small intestines are fine again you might be able to drink milk again. You might wanna give it a try in 6 months or so.

Hugs, Stef

Claire Collaborator
Hey Bubble,

Thanks for the warm welcome! Yes I do take probiotics, they seem to help a lot. In the beginning I never realized that gluten was making the situation worse. Now that I'm healing and watching my diet, taking vitamins and probiotics things are defineatly improving. The only problem I have is with cheese and I usually take a extra dose of probiotics if I do it eat. They usually curb the side effects of eating cheese.

Thanks again!

Try raw milk cheese (unpasteurized). Also very aged cheese. See if you can handle this. No processed cheese. Claire

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.