Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

pre diagnosed with celiac disease

brooklyn718

Recommended Posts

brooklyn718 Newbie
brooklyn718
Posted

Hey everyone so for the past 8 months to a year i have been losing weight and thinking nothing of it chalking it up to stress or whatever.until everyone i know told me i was losing weight so i started paying more attention, like getting stomach pains after i eat or using the bathroom more than usual. Knee joints pains among other symptoms. so i finally go to the doctor and with all the symptoms i been pre diagnosed with celiac. I get the results next week. Km not gonna lie i was devastated i went from being able to eat anything to having this problem. As a african american male i never really heard of this disease and it scared me.i just wanna know how to cope and if i ever will gain my weight back im 5'11 and a half and was weight roughly 190 to 200 now im down 167 .thank you for taking time out to read this .i appericate all the help. Sorry for the spelling errors lol.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Welcome Brooklin!  

You are fortunate that your doctor was savvy enough to test you for celiac disease. if you do get negative results make sure you doctor ordered the entire panel.  The screening panel the TTG IGA and the IGA deficiency test (this one is just a control test to see if the TTG IGA test is valid) catches most celiacs but not all (like me! ). Keep eating gluten until all testing is complete.  

Here is more information from the University of Chicago.  Their celiac disease website is great!  

Open Original Shared Link

If  you do have celiac disease, you should be able to gain weight back after six months to a year depending on your intestinal damage, adherance to the gluten free diet, and how you heal in general (other illnesses, etc.)

brooklyn718 Newbie
brooklyn718
Posted
  • Author

Thank u @cyclinglady i really appreciate it i felt lost and confused when i first heard what the doctor told me . good to know there is a supportive community out there

Estes Contributor
Estes
Posted

I am newly diagnosed and finding great options for food.  Restaurants and social events will take some planning but at home eating may actually make you feel good since fruits, veggies, and meat are all gluten free.

Best of luck to you in your journey.  I believe you will find lots of support as you progress.

GAJulie Newbie
GAJulie
Posted

Hi, brooklyn718! If you get your diagnosis, it will change your life. You'll be overwhelmed at first, but after awhile you'll get the hang of it and you'll eat better, heal your body and feel better. I suggest you find a local support group or maybe even a couple online, like on Facebook. Check out the smart phone apps, like ipiit. You can enter what food ingredients you want to avoid and then scan the bar code of products. WARNING! There are lots of yummy gluten-free products out there, but many have higher amounts of sugar. Best to eat clean (meat, veggies, fruits) and stay away from processed foods. Don't be afraid to ask ANYTHING! We have all been there. You can do this! :D

 

zenjess1980 Contributor
zenjess1980
Posted
22 hours ago, brooklyn718 said:

Hey everyone so for the past 8 months to a year i have been losing weight and thinking nothing of it chalking it up to stress or whatever.until everyone i know told me i was losing weight so i started paying more attention, like getting stomach pains after i eat or using the bathroom more than usual. Knee joints pains among other symptoms. so i finally go to the doctor and with all the symptoms i been pre diagnosed with celiac. I get the results next week. Km not gonna lie i was devastated i went from being able to eat anything to having this problem. As a african american male i never really heard of this disease and it scared me.i just wanna know how to cope and if i ever will gain my weight back im 5'11 and a half and was weight roughly 190 to 200 now im down 167 .thank you for taking time out to read this .i appericate all the help. Sorry for the spelling errors lol.

Hello and welcome. Firstly, so glad your doctor was in the know about testing you for Celiac. That makes a big difference! It can definitely be overwhelming, but you'll get in a groove. There are a lot of foods that are naturally gluten free, and you'll learn the decent gluten free options for the occasional carbish desire [ie, gluten free breads and such.] I was originally diagnosed via celiac panel several years back and learned pretty quickly. I had a biopsy which came back inconclusive which i understand is common. I'm gluten free a week now and having an easier time. There is a lot of information out there and people who have been there too. Celiac and gluten sensitivity actually is not as uncommon as some would say. In my experience, especially the medical community. Best of luck with everything, and i hope you begin to heal soon :)

 -Jessica 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748
    ZENken
    Newest Member
    ZENken
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Wheatwacked · Posted

      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.