Confused About My Test

[SweetDee]

Component  TISSUE TRANSGLUTAMINASE IgG 

Your Value  1.18 Index

Standard Range  <=0.90 Index 

Component  Tissue transglutaminase IgA 

Your Value  0.34 Index

Standard Range  <=0.90 Index

 

I asked my Primary doc for a celiac test because of early and long lasting (14 years) menopause and random symptoms like restless leg and skin rashes, milk protein intolerance. My Kaiser results are above. My doctor said I might have celiac and recommended celiac diet but no follow up biopsy. She sent me to a nutritionist but Ive learned most on my own. Now that ive realized how drastic this diet is, I dont want to do it unless i absolutely have to.  Ive read High Igg shows up when you have Herpes 1, (oral cold sores) , which ive had my whole life, so im wondering if this is the cause of my test results. Ive asked my primary, but honestly she doesnt seem to know much. Any help is much appreciated.

 

[cyclinglady]

Welcome!  

Your Kaiser doctor is completely and woefully mis-informed!  Insist on a GI referral.  In the Kaiser system, only a GI can order a complete celiac panel.  Your GI may skip this step and go to biopsy ASAP.  Find a GI doctor on the website and review their biographies.  Find one that actually states celiac disease, if possible.  

IMPORTANT!!! You must continue to consume gluten until all testing is complete.  Have a donut now!  Ha!  ?

You had a positive on the typical screening test.  More investigation is needed.  Read these links and print and show them to your PCP.  Stand up for your rights!  

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

The squeaky wheel gets the oil at Kaiser, but be nice!    At a minimum your doctor should be following a standard level of care.  I would also recommend getting a new PCP.  What else is this doctor overlooking?  Honestly, no GP is going to be an expert on everything.  That is why good doctors consult with Dr. Google and use other resources to help them make a proper diagnosis.   Geez, they can even ask another doctor in the same building!  

In the meantime, learn about celiac disease and the gluten-free diet.   We are here to help!  

[frieze]

can we spell m a l p r a c t i c e 

[SweetDee]

Thank you for sound advice....I e-mailed a gastro that I saw before for unrelated issue...I think I will insist on the biopsy and a clear answer to my question. I have to know where I really stand in order to be motivated enough to do this...I've had trouble with this pcp before and I ended up in dangerous situation. But it wasnt just her, I saw three doctors who ignored me before they finally found the cause by accident. Its crazy but we do have to fight for our health. Your reminder to "be nice" is great. It's easy to get snarky but better to not offend the person you want help from.