Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

If you have withdrawals going off gluten, is that a sign of sensitivity or celiac?

pjeaston

Recommended Posts

pjeaston Newbie
pjeaston
Posted

I have lived a life of migraines/headaches, extreme tiredness and sometimes bloated/gas type pains.  Recently, I have been even more tired than normal and more migraines.  I decided to see if going gluten free would make a difference and will try it for a couple of months.  On day 2 of being gluten-free, I started to get even more tired, major migraines and the most cranky I have ever been!  

I am wondering if anyone knows if reacting this way to going gluten free is a sign I'm sensitive to it/possibly celiac OR is it perfectly normal to feel this way even if I don't have a gluten problem?

I am seeing my doctor in two weeks.

Thanks!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Before going gluten free, celiac experts recommend getting tested first as celiac tests require a person to be consuming gluten daily.  Going gluten free for as little as a few  weeks can cause false negatives.  

Read more about celiac disease from the University of Chicago.  They have an excellent website!  

Open Original Shared Link

 

pjeaston Newbie
pjeaston
Posted
  • Author

Thanks for sending the link. I knew about making sure you're eating gluten before testing, but I'm feeling so horrible I just wanted to try. It wasn't the right way to do it.  I believe they tested me years ago and it was negative. 

cyclinglady Grand Master
cyclinglady
Posted

You might not have received the full celiac panel  or you could have developed celiac disease since then.  Best to test and rule out celiac disease.  If everything  is negative, you can try the gluten-free diet.  

Why really bother?  celiac disease is a genetic autoimmune disorder that is triggered by gluten and set off by something in the environment.  So, family members should be tested.  Also, it is easier to really stick to this really hard diet, if you have a diagnosis.  I could go on, but I need to get some sleep.  Only 5 more days of school left!  

Hang in there.  I hope you get it figured out.  It is awful to feel bad!  

 

Newly Diagnosed Apprentice
Newly Diagnosed
Posted

I have celiac disease and when I began the gluten free diet I did have withdrawal symptoms.  I felt really awful for about five or six days, and it gradually got better.  I don't know whether withdrawal symptoms are indicative of having celiac, or just because it can be a major dietary change to suddenly eliminate gluten which is in a LOT of foods!  I agree with cycling lady, you need to continue to eat gluten until you have a diagnosis.  If I didn't have a diagnosis I am sure I would have "cheated" on the diet.  There are tons of wonderful gluten-free foods and in my own home it is simple to be gluten free.  It's the social aspect of the diet that is very difficult sometimes and if I didn't know for sure I absolutely need to be gluten free I am sure I wouldn't stick to it when everyone is having pizza!  Good luck! 

squirmingitch Veteran
squirmingitch
Posted

I would recommend you go back to gluten TODAY!!!! Reason? Because celiacs almost always react more strongly to gluten when they have been off it. Soooooooooooooooooooooooooooo many people have done what you have & gone gluten free BEFORE getting tested & they end up regretting that because when they go back to gluten for the challenge for testing many, many, many times they get SO sick they can not complete the challenge & then they go without a diagnosis for life.

I'm just saying.......

pricehome Newbie
pricehome
Posted
 

I would recommend you go back to gluten TODAY!!!! Reason? Because celiacs almost always react more strongly to gluten when they have been off it. Soooooooooooooooooooooooooooo many people have done what you have & gone gluten free BEFORE getting tested & they end up regretting that because when they go back to gluten for the challenge for testing many, many, many times they get SO sick they can not complete the challenge & then they go without a diagnosis for life.

I'm just saying.......

That describes me. I have been strictly gluten free for over three years and it has helped me so dramatically, that I cannot go back on gluten for the test. If I have a cross-contamination I have a reaction. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pjeaston Newbie
pjeaston
Posted
  • Author

Thanks everyone so much. I will be patient and eat gluten again and wait for my doctors test. It seems like a lot of tests are false negatives. Is there a specific test I should request the doctor to test for? She always has me do the lab work before the appointment. Thanks. 

cyclinglady Grand Master
cyclinglady
Posted
 

That describes me. I have been strictly gluten free for over three years and it has helped me so dramatically, that I cannot go back on gluten for the test. If I have a cross-contamination I have a reaction. 

Yep, that's my hubby.  15 years of being gluten free and there's no way in !@#$ he'd go on a three month gluten challenge for a proper diagnosis.  Weird, thing is that I was diagnosed 12 years  with celiac disease after he went gluten free.  Nice though.  We are both in the boat!  

cyclinglady Grand Master
cyclinglady
Posted
 

Thanks everyone so much. I will be patient and eat gluten again and wait for my doctors test. It seems like a lot of tests are false negatives. Is there a specific test I should request the doctor to test for? She always has me do the lab work before the appointment. Thanks. 

Yes, read the link I provided earlier.  Ask for the complete test as indicated on the link.  Only one of them needs to be positive in order for the doctor to refer you to a GI for an endoscopy/biopsy.  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,539
    • Most Online (within 30 mins)
      7,748
    Josiemc
    Newest Member
    Josiemc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.