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Not Sure If Celiac Or Not, Going To Dr. Next Week


Bea

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Bea Newbie

Hello, I'm new here and want all the information I can gather before seeing my doctor next week. I was told by a friend that I need to ask my doctor about celiac. Is it diagnosed by EGD or by blood tests. I have had off and on nausea for the last 3-4 years. Also some pain around my ribs on both sides but occasionally sensation of a ball behind right ribs. Two years ago, gallbladder studies were normal. EGD showed mild inflammation. For the last 6 months, I've also had several bouts of diarrhea but no cramps, just urgency to move bowel, not constantly though. Just three weeks ago, I had another EGD which again showed mild inflammation and colonoscopy was normal. I also do get a small rash on my right palm, not sure if it is that skin rash related to celiac. It starts out as what seems to be a few pimples, then they dry up, turn red, and go away for a few weeks. It's always the same spot on my palm. Does drinking milk cause symptoms of celiac? I drink maybe 3-4 glasses a week and really don't notice any problems. Any other info you have for me is really appreciated. Thanks.


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RiceGuy Collaborator

The range of symptoms is quite large, though there are many problems common to most sufferers. The pimples and such you describe sounds like something my mother had on her wrists, which turned out to be a yeast infection. She is also sensitive to wheat, dairy, and a host of other things, not the least of which are nightshade foods like tomatoes. Those in particular give her rashes as well.

I know you will learn a lot even with just the recent discussions on this board from the past week or so. Scan through them, even ones that don't seem interesting or applicable to you. The wealth of information is serving me well. I'm sure it will for you too. You'll also be reminded of various things which you can use as search terms to locate threads on the board, so don't forget the search :)

Does drinking milk cause symptoms of celiac?

Dairy products are commonly found to be a problem for the gluten intolerant individual. From what I've read, one of the first problems from the damage to the small intestine is lactose intolerance. That may subside over time as the gut repaires itself. It depends on the person.

traveljunkie Rookie

Hi Bea,

I would like to welcome you as many have welcomed me..I'm new here as well. Celiac has many symptoms..some of which you mention but you could also be gluten intolerant. Do you notice when the diarrhea and itchy palm occur.? Did you eat pasta, bread or anything with gluten in it? My son and I are gluten intolerant after a round of strong antibiotics. Our bodies react to gluten like its a foreign invader now! lol It sucks but its our reality and have adjusted quite well. We tested negative in blood tests but we were gluten free at the time for 5 months. I would ask for a blood test but just moniter your diet and keep a food diary. Its amazing how much we forget what we ate and when and don't even realize what the offending food may have been. Good luck and keep us posted!

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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