healthy bread recipe?

[Sign]

Hello,

This is my first post. My 12yr old daughter was diagnosed with ?celiac disease. Her blood test was positive, genetic screen positive and her biopsy abnormal but they are not ready to say she is celiac because her villi are damaged but not gone. We are to adhere to a strict gluten-free diet for 6 months. So far (1 month) we have adjusted well. I am learning to bake again using many many many different flours lol. However I cannot find a good sandwich bread. There are good tasting breads with little or no fiber or heavy dense breads that don't make good sandwiches or toast. She has become very constipated on this gluten-free diet because of the low fiber content of the cereal,rice and breads. We were told no oats for the first year? and no or little dairy for the first month. She has been on a low histamine diet for 4 months now as well. My question is what is the best way to make gluten free bread, oven or bread maker? Does anyone have a good healthy recipe for sandwich bread that a kid would like? We normally eat a soft 5 grain bread before gluten-free. Thank you!

[cyclinglady]

One month into the diet and she's probably very constipated because she HAS celiac disease.  She needs more time to heal.  Maybe six months to a year.  Why so long?  In theory, she should heal within weeks, but it takes a long time to really master the gluten free diet and learn about cross contamination and shared manufacturing lines.  Plus, consuming lots of gluten-free items right off the bat, may be contributing more to her health problems.  We had kids on this forum who did not drop their antibody levels until they eliminated processed foods.  20 parts per million may just be too much for her to handle right now.

I would recommend reading our Newbie 101 section under "Coping".  It has some nice tips.  I would strongly recommend feeding her whole foods.  She can get plenty of fiber from fruit and veggies.  I do not even eat any grains at all, but that's my choice because grains spike my blood sugar just the same as cane sugar (I have diabetes too).  

After she has healed, you can introduce breads and all kinds of junk food!     By then you will not remember what real bread tastes like.  Ask my non-celiac kid.  She's likes gluten-free pasta now.  She admits that she has forgotten what real pasta tastes like.  She adores all my baked-from-scratch gluten free cakes and cookies (that I can not eat! )

When I was diagnosed, my learning curve was easy.  My hubby had been gluten free for 12 years!  So, I ate like him.  Turns out that I was reacting.  Found out that because I was in the healing stage, I could not tolerate additives like Xanthan Gum (really needed to replace gluten in bread), preservatives, etc.  found in commercial breads and baking flour mixes.  I had lots of food intolerances that eventually resolved and some did not!  

Okay. Villi damaged but not gone?  Is your doctor crazy?  Your daughter has celiac disease!  I strongly recommend getting her records and lab results and getting a second opinion.  She should have been diagnosed by now.  You should be looking into keeping her safe at school with a 504 plan (but a 12 she shouldn't be playing with playdough, but colleges will have to accommodate her diet and that's coming up faster than you think!)  

Welcome to the forum!  I hope this helps.  

[squirmingitch]

  On 5/27/2016 at 9:34 PM, cyclinglady said:

Okay. Villi damaged but not gone?  Is your doctor crazy?  Your daughter has celiac disease!  I strongly recommend getting her records and lab results and getting a second opinion.  She should have been diagnosed by now.  You should be looking into keeping her safe at school with a 504 plan (but a 12 she shouldn't be playing with playdough, but colleges will have to accommodate her diet and that's coming up faster than you think!)  

Welcome to the forum!  I hope this helps.  

Expand Quote  

Absolutely, absolutely, absolutely!!!!!!! Your doctor seems to think all her villi have to be completely wiped out for her to be celiac. Like cyclinglady says.... get the records & get a second opinion.

BTW, I happen to agree with all the rest she said too but I just wanted to emphasize the second opinion part.

 

[Sign]

Ok thank you for the input! I am happy to hear what you think about her biopsy. Her GI is actually getting a second opinion from the celiac specialist. Our appointment is in a week. I have always thought she had celiac too. I asked them to do a biopsy years ago and they did but it was normal. She has more neurological symptoms than GI. She has headache and POTS. But she was reacting to all kinds of foods all of the sudden a few months ago. The low histamine diet really helped and she tolerates more foods now. I make almost everything from scratch, there is no gluten anywhere in the house and I don't use gums because she and I react to them. Breakfast is the hardest. Eggs are high histamine, she can't have oats, can't have fermented foods (yogurt), Breakfast is a nightmare. Many fruits and veggies are high histamine. She eats the ones she can tolerate. That's why I was asking about breads. What do you eat for breakfast? Are flax seeds safe or are they like oats? I can't find any flax seeds that say certified gluten free.

[cyclinglady]

Eat what you eat at lunch or dinner.  I am happy with a fried hamburger patty, fish, or chicken (I know it needs to be fresh or frozen for the histamine diet).  Yes, I eat veggies for breakfast!  

Wanted to add that I was glutened in July (GI ordered follow-up antibodies testing and it was high)  and it took me 3 months to recover.  Picked up a histamine intolerance and became lactose intolerant again.  Luckily, when I healed, the histamine thing went away (or  Diminished ) and the lactose intolerance resolved.    I was getting hives, rashes and itching (not DH), vomiting, etc.  So, her intolerances may be just temorary!