Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Breast cancer


boysmom

Recommended Posts

boysmom Explorer

I'm in the process of being diagnosed with breast cancer. A punch biopsy showed cancer in one breast, but no information from the other, worse looking breast. I am very concerned about how to support my body through treatments. They're talking surgery as soon as this week, followed by chemo and that's as far as I know at the moment. I know chemo usually targets fast growing cells, including the lining of the intestines, which I've worked hard for the 7 years since my diagnosis to heal and repair. So now what?? Has anyone here gone through breast cancer treatments who would be willing to share strategies for protecting the gut while effectively fighting the cancer?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

I am so sorry to hear this. I will be sending all my strength & healing thoughts you way throughout your ordeal. I have no tips for you as thankfully I have not been through this.

I did want to give you my full support though.

I do have a dear, dear, friend who just went through a lumpectomy & radiation. She declined the chemo as she has lupus & already has enough troubles with low platelets. Lupus though does not involve the gut problems like celiac however it carries it's own set of challenges. I am very happy to say she is now doing great but the radiation was not pleasant for her & she did have a rough time of that part of it. I think her reactions to the radiation had a lot to do with her lupus though.

 

{{{{{{{{{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}}}}}}}}}}

Keep your chin up!

Fundog Enthusiast

I am so sorry to hear of your diagnosis.  Find yourself a good herbalist and find out what kind of plant medicines are available to help you.  Mallow and Slippery Elm are both effective at coating and soothing the lining of the digestive tract, and may offer some protection as well as healing.  Juniper berries have been shown in clinical studies to actively shrink tumors.  Keep us updated on what you find out, and how you are doing.

cyclinglady Grand Master

I am so sorry about your recent diagnosis.  I can not offer any advice, but I can offer hugs!  ?

Gemini Experienced

I am so sorry you are going through this, boysmom.  This must be so difficult for you. They are getting pretty good at treating this disease so I am sure you will be fine in the long run.  I would suggest asking for a referral to a nutritionist who specializes in cancer nutrition.  That can be a big help and I am sure whatever information they have to share could be adapted for the gluten free diet. Many places are integrating nutritional counseling with a cancer diagnosis.

My very best wishes to you for a speedy recovery! 

icelandgirl Proficient

Oh boys mom, I'm so sorry.  (((((Hugs)))))

I have not been through this either.  I would follow Geminis advice on a nutritionist.  I wish I could offer something more.  Hopefully your boys are surrounding you with love right now.  Do whatever you can to take care of yourself now.  Be good to yourself.  Pray, meditate, yoga, etc.

I hope that someone with more experience chimes in with advice.  We are all here for you.  (((((((Hugs))))))

manasota Explorer

Boysmom, my heart is breaking for you!  I want to wrap my arms around you and beat the DEVIL BC into the ground so nobody needs to endure the fear or pain associated with it.  I was diagnosed with BC 3 years before being diagnosed with Celiac.  I had surgery and radiation.  I thought I dealt with both very well--until other AI diseases started showing up.  In hindsight, for me, the radiation was the worst.

You are ahead of the game as you have gotten your gut into good condition.  This will serve you well.  I second the suggestion for getting in touch with a nutritionist familiar with these 2 diseases.  Again, you are ahead of the game as you are already educated in good nutrition.  Yea!  I didn't need chemo so I can't help you specifically with that aspect.

For me, the biggest help was realizing that any trauma (including BC) comes with pros and cons.  The cons are pretty easy to identify.  I was surprised to learn of many pros as a result of dealing with BC.

Things I learned:

1)  I am more than my breasts, or BC, or Celiac for that matter.  None of these things define me.

2)  I still have the same intellect, sense of humor, friends, loved ones, education, etc.  

3)  I am the same person, with the same good (and bad) traits.

4)  I have the same value that I did before.  

5)  I am just as sexy (and beautiful) as I always was.  (Maybe more so because of my new relaxed attitude!)

6)  I can relax because I no longer have to try to be perfect.  I can now simply be a "regular" human being like everyone else.  (Maybe you're lucky enough to never have been bitten by the perfectionistic bug!)

7)  I will never again have to sweat the small stuff because now I really know EXACTLY what is important.  I don't have to waste any time fretting over small decisions.  Phew!  Major relief!

8)  Life is so much easier now because choices are so much clearer!

9)  I always thought I knew how to make myself happy--no matter what.  But now, it is even easier to see clearly just how many things I have to be grateful for.  I can now find the positive in ANYTHING!

Boysmom, I wish you well on your journey.  Make no mistake, it is a journey.  You will come out stronger on the other end.  I am sending you so many hugs that you will become sick of them!!

One last thing.  It is very important for you and for your loved ones.  LET PEOPLE HELP YOU!  They want to help you.  Even if you could manage without help, let them help!  Everyone will feel better--and heal faster!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MrsChoplin Newbie

I don't have much enlightening to say but I wanted you to know that I am praying for you. <3

boysmom Explorer

Thank you for all your good wishes! I had bilateral mastectomy last weekend and have learned that I have 3 types of cancer in my breasts. I've been told I have 2 weeks to make decisions about follow up treatment, so I'm trying to dig into that now and see what I can learn so I can try to make the best decision going forward.

Gemini Experienced

I am happy the surgery is behind you, my dear.  My cousin just went through this and ended her chemo in June.
She is doing much, much better emotionally and physically and you will too!  You will receive good guidance with your options on treatment and I will send you positive healing prayers. Too many women go through this but do really well, long term. Please keep us updated.....we care!  :)

icelandgirl Proficient

Big ((((hugs)))) to you sweetie.  I'm glad the surgery is behind you...that's always tough.  I'm so sorry that you are facing this, but you sound ready to taking it on. Please do keep us updated.  As Gemini said, we really do care.  I will be praying for you.

cstark Enthusiast

I have never had to deal with cancer of any kind so far in my life, but I want to wish you well and I will be praying for you.

squirmingitch Veteran

You've jumped the first hurdle which is the surgery. Now you know exactly what you're dealing with. We're here for you at all times. {{{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}}}}}

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,156
    • Most Online (within 30 mins)
      7,748

    mike101020
    Newest Member
    mike101020
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.