Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Have any of you got anxiety problems as well?


Zachm

Recommended Posts

Zachm Contributor

Hey guys, the last year and a month of transitioning to totally gluten free was hard, but I now seem to be healthy. The first six months I got horrible cramps that would suddenly come and hit hard, but I really havent seen any of those since about February-March. One thing that I wouldnt say has gotten better is my psyche. I was always sort of an anxious person (hard not to be when you dont feel well yet you have "IBS" and you're just "nervous", which all of you probably know), but I am borderline hermit now. I finally went to the doctor today and was prescribed prozac, so hopefully that helps, but I was just wondering about you guys? Thanks :) 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ironictruth Proficient

I never had any major anxiety issues, other then some over-thinking nail biting stuff. But since my health went down hill I have been horribly anxious. 

Can you pinpoint any thought process that makes you this way? For me, it is a combo of symptoms (pain, dizziness, nausea, skipped heart beats, pain behind the eyes) and thinking the worst, cancer, that gets me worked up. Plus, my doctor is useless so then I get really upset. 

I also noticed that when my magnesium is low I get really anxious. I had liquid magnesium in the hospital once and it was like an instant xanax. Serum magnesium is not a great indicator of deficiency in early stages though as your body will take it from your tissues to keep the blood level elevated.  It may be worth monitoring or talking with a doctor about it. I think your body gets depleted of vitamins and minerals due to the celiac but the gluten-free diet can also be low in some nutrients. 

On top of all that, many of the neurotransmitters involved in depression and anxiety are located in your gut. So it makes sense that many folks with GI issues suffer from anxiety. 

Zachm Contributor
3 hours ago, ataglance said:

I never had any major anxiety issues, other then some over-thinking nail biting stuff. But since my health went down hill I have been horribly anxious. 

Can you pinpoint any thought process that makes you this way? For me, it is a combo of symptoms (pain, dizziness, nausea, skipped heart beats, pain behind the eyes) and thinking the worst, cancer, that gets me worked up. Plus, my doctor is useless so then I get really upset. 

I also noticed that when my magnesium is low I get really anxious. I had liquid magnesium in the hospital once and it was like an instant xanax. Serum magnesium is not a great indicator of deficiency in early stages though as your body will take it from your tissues to keep the blood level elevated.  It may be worth monitoring or talking with a doctor about it. I think your body gets depleted of vitamins and minerals due to the celiac but the gluten-free diet can also be low in some nutrients. 

On top of all that, many of the neurotransmitters involved in depression and anxiety are located in your gut. So it makes sense that many folks with GI issues suffer from anxiety. 

I totally feel you on the doctor that's pretty much useless because mine can be hit or miss. The process which makes me anxious is just the thought of going anywhere and worrying about the violent diarrhea spells hitting. It's a typical panic attack, trying to catch my breath, having to go to the bathroom, etc. I had a doctor prescribe me back in 2010 prozac when I was in high school, which at the time I didnt know about the use of serotonin in the gut and honestly was worried he though I had depression so I stopped taking it. Good luck to you getting better :)

ironictruth Proficient

Good luck to you too! Maybe cymbalta, it is for anxiety, depression and neuropathic pain. But, comes with its own risks. 

 

miguel54b Explorer

Could MSG be the problem? After eating a gluten free meal at the restaurant; I felt very anxious, a muscle in my arm felt like it was hit with a stick (sore muscle), the joints in my fingers felt swollen/arthritics, and the joint in my right shoulder became painful. The fish was seasoned with a lot of spices, it tasted very good. I remember that being the taste of Monosodium Glutamate (MSG), I stopped eating it since I went gluten free because I notice that it had bad effect on me. You can research it and do a self-test to see if that is the cause. The Truth in labeling website has a lot of info on MSG problems.

mathieml Apprentice
On 8/31/2016 at 6:30 PM, Zachm said:

Hey guys, the last year and a month of transitioning to totally gluten free was hard, but I now seem to be healthy. The first six months I got horrible cramps that would suddenly come and hit hard, but I really havent seen any of those since about February-March. One thing that I wouldnt say has gotten better is my psyche. I was always sort of an anxious person (hard not to be when you dont feel well yet you have "IBS" and you're just "nervous", which all of you probably know), but I am borderline hermit now. I finally went to the doctor today and was prescribed prozac, so hopefully that helps, but I was just wondering about you guys? Thanks :) 

My daughter (age 13) has severe anxiety. In fact, that's what her doctors originally thought was causing all of her symptoms, so she was misdiagnosed for months. She has been on Citalopram since June, but we will be weening her off of it soon because I think it contributes to her nausea. I have also read that anxiety is a symptom of Celiac disease, so I'm hoping the anxiety will get better as she heals. 

Celiacinthesea Newbie
On ‎8‎/‎31‎/‎2016 at 1:30 PM, Zachm said:

Hey guys, the last year and a month of transitioning to totally gluten free was hard, but I now seem to be healthy. The first six months I got horrible cramps that would suddenly come and hit hard, but I really havent seen any of those since about February-March. One thing that I wouldnt say has gotten better is my psyche. I was always sort of an anxious person (hard not to be when you dont feel well yet you have "IBS" and you're just "nervous", which all of you probably know), but I am borderline hermit now. I finally went to the doctor today and was prescribed prozac, so hopefully that helps, but I was just wondering about you guys? Thanks :) 

I was diagnosed March of this year and I continue to have moments of anxiety. Prior to my dx it was really bad and I too became a hermit. I locked myself in my apartment. My doctor prescribed a sleeping pill and I started counseling which helped so much. My insurance covers the counseling. I continue to struggle with food anxiety. Like when I leave my apartment, I get really anxious about having food to eat while I'm at work. I turn down staying over many times because I run out of food that I brought from home. If I plan to go ANYWHERE, I must have a food plan or I will just stay home. Anxiety is a very real struggle, you are not alone my friend.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 weeks later...
Forman337 Apprentice

I have horrible anxiety from my symptoms. I have celiac and IBS. It's so bad that I went diagnosed for 4 years. All the doctors thought it was in my head and never bothered to test me for celiac. When I finally figured it out and the symptoms improved the anxiety was easier to deal with, but I still struggle with it. I've been gluten-free for about a year and I still have anxiety attacks, mostly because I developed a fear of eating because I was sick for 4 years. Most people are able to overcome anxiety over time so hang in there, work at it, and you'll get through it! 

I did become a hermit for a long time, especially because when I was having the symptoms from celiac and panic attacks I had no idea what it was. Easier said than done, but stay strong, tell yourself you're strong, and with practice it can get easier. I take xanax for my anxiety, but only because it's so severe nothing else works for me and I typically have bad reactions to most medications.

notme Experienced

i also take xanax for my anxiety.  very small doses and when needed.   the script was easier to get than my celiac dx lolz :D 

cristiana Veteran

I got terrible anxiety prior to my celiac diagnosis, like a bolt from the blue.  Didn't even know what it was, it felt so alien. My doctor diagnosed citalopram. I then found my B12 and iron was low so supplemented these, and I am quite sure that especially the B12 made a difference sometimes within the hour of taking it.  It is worth checking you are not low on these.

But what I would also say is that it is quite a good idea to understand how anxiety works.  This book really helped:

Open Original Shared Link

I really cannot recommend it enough. There is a website founded by the author, again, very helpful:

Open Original Shared Link

The other thing that helped me so much is this book by Dr Steve Llardi. Understood, anxiety and depression are different but the tips in this book really helped me with anxiety, such as avoiding 'rumination' and getting enough sunlight.

Open Original Shared Link

I hope this is of help.  

 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      5

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

    5. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,257
    • Most Online (within 30 mins)
      7,748

    KariNoMoreGluten
    Newest Member
    KariNoMoreGluten
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.