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Breaking out badly and feeling worse after going gluten-free

Madalyn.hope

By Madalyn.hope
in Coping with Celiac Disease

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Madalyn.hope Newbie
Madalyn.hope
Posted

I'm on week three of going gluten free and I've started breaking out horribly and my Insomnia and fatigue are much worse. I don't have celiac, just a gluten intolerance and leaky gut, and since cutting out gluten, milk, corn, soy, and most night shades my stomach pain every time I eat has gone away. I've been scanning the boards here, and it seems like fatigue is sometime that sometimes takes people longer to heal then other symptoms, but I haven't seen much about acne. My worry is what if this isn't a detox, but maybe I'm missing something else? Does anyone have any insight? 

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kareng Grand Master
kareng
Posted

Maybe you are eating foods you didn't eat as much of before?  

Madalyn.hope Newbie
Madalyn.hope
Posted
  • Author

My diet manly consisted before of bagels and chocolate, constantly junk food and fast food, I had a horrible diet and my skin looked great. Now I definitely  eating some foods more now, more meat, veggies, fruits, dried fruits, nuts. Most of the things I eat I had someone muscle test me to see if it reacts well with me. My diet is so much healthier now. I'm eating some cheese, but not a ton. 

kareng Grand Master
kareng
Posted
1 hour ago, Madalyn.hope said:

My diet manly consisted before of bagels and chocolate, constantly junk food and fast food, I had a horrible diet and my skin looked great. Now I definitely  eating some foods more now, more meat, veggies, fruits, dried fruits, nuts. Most of the things I eat I had someone muscle test me to see if it reacts well with me. My diet is so much healthier now. I'm eating some cheese, but not a ton. 

You might want to just eat what makes you feel good.  There is no real scientific evidence that a " muscle test" tells you what foods to eat.  

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Anytime you drastically alter your diet, it can take a while for your body to figure it all out.  

Newly Diagnosed Apprentice
Newly Diagnosed
Posted

I broke out for a while after going gluten free.  It was probably the shock to my system.  Eventually my skin cleared up, better than it was before going gluten free.  I've been gluten free for nine months now and I would say it took two to three months for the skin issues to resolve. 

notme Experienced
notme
Posted

i am still avoiding iodine.  and if i eat fish or shellfish, my scalp will break out (i'm assuming because of the ioding)  the same places every time.  takes about a week to clear.  

keep a food journal.  it's tedious, but the best way to figure out what's causing your discomfort.  good luck!

  • 2 weeks later...
Forman337 Apprentice
Forman337
Posted

Everyone has different symptoms and lengths of time it takes to heal. If you're only a month or so in it could still take a while for all the symptoms to go away while your digestive system heals and your body adjusts to the changes. It should get better with time. It took months for my symptoms to go away completely

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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