Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Have Blood Test Results, but waiting to see doc still


Donna-R

Recommended Posts

Donna-R Newbie

These results mean nothing to me yet, as my doctor's appointment is still a week away.  Can anyone help me with what these levels mean?

IgA = 255

Tissue Transglutaminase Antibody IgA = 6.14

Tissue Transglutaminase Antibody IgA Result = Negative

Gliadin (Deamidated) Antibody IgA = 56.69 H

Gliadin (Deamidated) Antibody IgA Result = Postive

I've been dealing with IBS for the past 30 + years, Fibromyalgia, and hypothyroidism.  My symptoms now feel different than IBS, which is what prompted the blood work and an abdominal ultra-sound.  The ultra-sound showed gallstones, so I saw a surgeon who ordered an upper GI.  The upper GI looked good, but with the results of the Celiac panel I'm waiting to talk to my regular doc before I even think about having my gall bladder removed unnecessarily.  

I'm hoping for the best, but since this blood work is flagged on my report I'm assuming this isn't good news.  

Any insight would be helpful.  Thanks!

Donna :)

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran
7 minutes ago, Donna_R said:

These results mean nothing to me yet, as my doctor's appointment is still a week away.  Can anyone help me with what these levels mean?

IgA = 255

Tissue Transglutaminase Antibody IgA = 6.14

Tissue Transglutaminase Antibody IgA Result = Negative

Gliadin (Deamidated) Antibody IgA = 56.69 H

Gliadin (Deamidated) Antibody IgA Result = Postive

I've been dealing with IBS for the past 30 + years, Fibromyalgia, and hypothyroidism.  My symptoms now feel different than IBS, which is what prompted the blood work and an abdominal ultra-sound.  The ultra-sound showed gallstones, so I saw a surgeon who ordered an upper GI.  The upper GI looked good, but with the results of the Celiac panel I'm waiting to talk to my regular doc before I even think about having my gall bladder removed unnecessarily.  

I'm hoping for the best, but since this blood work is flagged on my report I'm assuming this isn't good news.  

Any insight would be helpful.  Thanks!

Donna :)

 

Hi Donna,

The DGP (Gliadin (Deamidated) Antibody IgA) Result = Positive means you were positive on one of the antibody tests for celiac disease.  You only need to be positive on 1 antibody for a diagnosis.  Usually though a doctor will request and endoscopy with 4 to 6 biopsy samples for microscopic examination of gut lining damage to confirm celiac disease.  Since you already had an endoscopy I don't know what they will do.  If they took biopsy samples already or if there was visible damage, they may go ahead and diagnose you with celiac disease.

You should keep eating gluten until the testing and results are complete.  Which they may be but only your doctor can say for sure.

If it is celiac disease you may have found the answer to your long years of digestive symptoms.  Celiac disease is the only autoimmune disease where the trigger is known.  Eating wheat, rye or barley triggers the autoimmune reactions that causes the damage to the gut (and possibly other body organs).  the treatment is simple, stop eating all gluten (wheat, rye, barley).

Since celiac disease interferes with the ability of the gut to absorb nutrients, you may begin to feel much better after your gut is healed.  That can take some time though.  The immune system is very determined not to let us die from noxious invaders, and the reaction (antibodies) take time to taper off and stop damaging the gut.

If you've had the mumps or measles or any other immunity shot, you know they protect you for life in most cases.  That's because the immune system learns but doesn't forget.  So the immune system always knows to kill mumps and measles germs.  In our case, it also learns to kill gluten and part of our intestinal lining.  That's no fun for us, but can't be helped.

There is a newbie 101 thread post at the top of some forums.  It has a lot of info for people new to celiac disease.  We can also try to answer your questions, although we aren't doctors.  We still like to help and we charge a lot less, as in nothing.

Welcome to the forum! :)

 

cyclinglady Grand Master

GFinDC said it well!  I just want to emphasize that you only need one positive on the celiac panel.  I also was just positive on the DGP, yet my biopsies revealed moderate to severe damage (my visual on my endoscopy was normal, it was the biopsy that revealed the intestinal damage).  

I hope you are able to save your GB.  Mine was removed 10 years ago (well before my celiac disease diagnosis) because it was at 0% functionality and became infected.  I am glad of the surgery (I would have died without it), but I always wonder if I would have been able to save my GB.  It is nice to keep all body parts, if possible!  
 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Product Labeling Regulations
      2

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    2. - Scott Adams replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      nothing has changed

    3. - Scott Adams replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Is it gluten?

    4. - Seaperky replied to lizzie42's topic in Traveling with Celiac Disease
      2

      Trip to Anaheim/Disney

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,350
    • Most Online (within 30 mins)
      7,748

    Sarah S
    Newest Member
    Sarah S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.