Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dr NYC who takes HealthFirst

Elli-

By Elli-
in Doctors

Recommended Posts

Elli- Apprentice
Elli-
Posted

Hey guys!

I'ec long used these forums for info over the years.  First post ever!

I know this has probably been covered but for some reason the search is not working for me on this device.  I am looking for a dr who is more open minded abt celiac in NYC who takes HealthFirst.

 

My story is I've been sick for years and in like 2006 a chiropractor suggested I might have a gluten issue.  I thought he was totally full of it but my car was broken and I was bored so I tried the diet...lo and behold I stopped getting sick 3-4 time a week!  I stayed gluten free from that time to today and I guess that is 10-11 yrs now!

Over the years I've mainly been on the heavier side with occassional situations where I have rapid weight loss and cannot stop losing weight.  Then I'm all "oh thank god I was fat!"  Hahahahahha!  Although I don't get sick as often as I used to, I do ocassionally still get sick.  I always thought it was cause of cross contamination or something.  But I feel like something has changed.  

I just got this awesome health ins through the ACA and I can totally see a dr now.  I saw a Gastroenterologist today but he was less than thrilled with the idea I might have celiac.  He ordered a colonoscopy.  He told me celiac is "trendy" and that it was "very hard to have a gluten free diet".  I told him I have had one for 7 years (I had not done the math for a while until a few minutes ago).  I really liked the guy - he was super sweet and awesome!  But I felt like he was close minded.  I mean, maybe it IS trendy to be gluten-free but still that doens't stop the fact that some ppl will have celiac/GS et alias.  

I know I've been gluten-free for a long enough time that maybe the gut has healed, but I did want to talk to a dr that is not ready to exclude the Gluten Diseases out of hand.  Like maybe a specialist.  I have only this health insurance Healthfirst Managed Medicaid.  Does anyone have any advice as far as doctors in the area?  I am a musician so Im a little tight on funds and it would be better if it could be in my plan.  

Thanks you guys!  <3. Ellie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted
3 hours ago, Ellie!!!!!!!!!!!!!!!! said:

Hey guys!

I'ec long used these forums for info over the years.  First post ever!

I know this has probably been covered but for some reason the search is not working for me on this device.  I am looking for a dr who is more open minded abt celiac in NYC who takes HealthFirst.

 

My story is I've been sick for years and in like 2006 a chiropractor suggested I might have a gluten issue.  I thought he was totally full of it but my car was broken and I was bored so I tried the diet...lo and behold I stopped getting sick 3-4 time a week!  I stayed gluten free from that time to today and I guess that is 10-11 yrs now!

Over the years I've mainly been on the heavier side with occassional situations where I have rapid weight loss and cannot stop losing weight.  Then I'm all "oh thank god I was fat!"  Hahahahahha!  Although I don't get sick as often as I used to, I do ocassionally still get sick.  I always thought it was cause of cross contamination or something.  But I feel like something has changed.  

I just got this awesome health ins through the ACA and I can totally see a dr now.  I saw a Gastroenterologist today but he was less than thrilled with the idea I might have celiac.  He ordered a colonoscopy.  He told me celiac is "trendy" and that it was "very hard to have a gluten free diet".  I told him I have had one for 7 years (I had not done the math for a while until a few minutes ago).  I really liked the guy - he was super sweet and awesome!  But I felt like he was close minded.  I mean, maybe it IS trendy to be gluten-free but still that doens't stop the fact that some ppl will have celiac/GS et alias.  

I know I've been gluten-free for a long enough time that maybe the gut has healed, but I did want to talk to a dr that is not ready to exclude the Gluten Diseases out of hand.  Like maybe a specialist.  I have only this health insurance Healthfirst Managed Medicaid.  Does anyone have any advice as far as doctors in the area?  I am a musician so Im a little tight on funds and it would be better if it could be in my plan.  

Thanks you guys!  <3. Ellie

You are like my hubby.  He has been gluten-free for 15 years per the poor advice of his GP and my allergist (I was formally diagnosed 3 years ago).  Does hubby have celiac disease?  We will NEVER know because he refuses to do a gluten challenge.  I can not blame him.  Eating three months of gluten for the blood tests would make him very sick and he is the breadwinner of the family.

 

caretothepeople Newbie
caretothepeople
Posted

Hi Ellie! Maybe the Celiac Disease Foundation can point you in the direction of a doctor in NYC. Take a look at their site - they have a doctor finder tool. Many of the major medical centers here have centers that specialized in Celiac Disease, so those could be a potential resource.

Also, I think using ZocDoc you can enter what insurance you have and it'll bring up specialists who take your insurance (call to confirm). You can read reviews from other patients which can be helpful.

There's a meetup group in NYC called New York City Celiac Disease Meetup which could be another place to connect with others in the community.

Hope this helps and maybe others have specific referrals!

  • 1 year later...
Elli- Apprentice
Elli-
Posted
  • Author

Hey guys!  Thanks for the answers!  Still looking - hahahahha, I know it’s been a year and a half by now.  Things have changed for me a bit.  I did see a doctor I got through Zocdoc who was supposed to be a celiac expert (although he takes all kinds of GI issues) and he told me to like eat a donut a few days ahead of a stomach biopsy and then he could tell if I had celiac.  [eyeroll].  I’ve been gluten-free for 11 yrs so.  These guys just do NOT ant to even talk about celiac.  It is so weird.  Ima hit that meetup maybe!  Thanks so much for you guys’ helpl. Sorry it took so long - I forgot my credentials! 

  • 3 weeks later...
squirmingitch Veteran
squirmingitch
Posted

Ellie!!!!!!!!!! has found a great doc in NYC. His name is  Dr. Andrew Blank in NYC.

You can see her post in this thread:

 

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers?
    2. Scott Adams
      - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger...
    3. Wheatwacked
      - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide. Both linked to cancers. Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers. A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor. Sourdough...
    4. jenniber
      - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    5. RMJ
      - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means. However, the way the result is presented does look like it is below the limit of what their test can measure, so that is good.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,125
    • Most Online (within 30 mins)
      7,748
    AndreaY
    Newest Member
    AndreaY
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Blood Test for Celiac wheat type matters?

      By trents · Posted

      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      Blood Test for Celiac wheat type matters?

      By Wheatwacked · Posted

      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      Celiac support is hard to find

      By jenniber · Posted

      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      need help understanding testing result for Naked Nutrition Creatine please

      By RMJ · Posted

      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.