Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

DH?! Please help!

Judesmom

By Judesmom
in Dermatitis Herpetiformis

Recommended Posts

Judesmom Newbie
Judesmom
Posted

Hi all,

My 6 year old has been suffering from this incredibly itchy rash for years.  We tried gluten free a while ago and symptoms seemed to fade quite a bit, but circumstances changed and he slowly weaned back into eating gluten with little consequence.  It has come back with a vegence.  Pediatrician says to avoid gluten if it seems to help the rash, but in desperate for a definitive diagnosis.  For people suffering from DH, does this look similar to you??  Thanks so much!  

 

 

 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Welcome to the forum!  I am so sorry that your son is sick.  A DH rash is horrible!  I encourage to read through the DH section of the forum.  A skin biopsy from a celiac-savvy dermatologist is probably your best bet.  

  • 2 weeks later...
Ouch Newbie
Ouch
Posted
On 11/22/2016 at 0:25 AM, cyclinglady said:

Welcome to the forum!  I am so sorry that your son is sick.  A DH rash is horrible!  I encourage to read through the DH section of the forum.  A skin biopsy from a celiac-savvy dermatologist is probably your best bet.  

Hi, I'm new to the forum, have appreciated the stories being shared. I've been gluten and wheat free for two months and 10 days ago the DH came back in s horrific way. Already went to alkergeust , another 2 biopsies done and prednisone shot plus meds for 7 days. Why has it come back worst than months ago after being gluten and wheat free? I don't understand..-:)

Ouch Newbie
Ouch
Posted
On 11/22/2016 at 0:25 AM, cyclinglady said:

Welcome to the forum!  I am so sorry that your son is sick.  A DH rash is horrible!  I encourage to read through the DH section of the forum.  A skin biopsy from a celiac-savvy dermatologist is probably your best bet.  

 

2 hours ago, Ouch said:

Hi, I'm new to the forum, have appreciated the stories being shared. I've been gluten and wheat free for two months and 10 days ago the DH came back in s horrific way. Already went to alkergeust , another 2 biopsies done and prednisone shot plus meds for 7 days. Why has it come back worst than months ago after being gluten and wheat free? I don't understand..-:)

Thank you. I had a biopsy done at the Allergist Allergist ..went to two Derms and they don't do biopsies. At the allergist only a PA does it. I'm so mad at all these doctors.they just want  to sell products . Can't wait to get the results next week..?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,822
    • Most Online (within 30 mins)
      7,748
    Patty Andres
    Newest Member
    Patty Andres
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Newly diagnosed

      By trents · Posted

      As Plumbago mentioned, bleeding in the upper end of the GI track tends not to show up as bright red in color because it gets acted upon by the digestion process and more thoroughly mixed in with food residues that are passing through the intestines.
    • plumbago
      Newly diagnosed

      By plumbago · Posted

      @Bronwyn W Working with your medical provider, you could do a complete blood count test. If you were bleeding say from an ulcer in the stomach (and let's hope not), your red blood cells could be low and your hemoglobin low as well. Your stools may show up as the proverbial "dark and tarry," indicative of a bleeding site further away from the anus. Basically, you may be anemic. Your heart may be beating extra fast as a way to compensate for the decreased number of blood cells, your oxygen saturation may be lower than normal on a pulse oximeter, and so on. But talk to your doctor.
    • Bronwyn W
      Newly diagnosed

      By Bronwyn W · Posted

      Thank you for this insight. I have had rectal bleeding after glutening and subsequent constipation (+ IBS-C) and always attributed it to internal hemorrhoids (diagnosed). What I wasn't aware of is the possibility of bleeding further up the digestive tract. Please can you elaborate on the causes and symptoms to watch for?
    • Scott Adams
      Still unsure.....

      By Scott Adams · Posted

      Be sure to be eating gluten daily until all of your celiac disease tests are completed (at least 2 slices worth of wheat bread per day for at least 6-8 weeks before any blood tests, and 2 weeks before an endoscopy).
    • knitty kitty
      4 Years and very little progress

      By knitty kitty · Posted

      @maylynn, No, I took over the counter thiamine supplements, thiamine hydrochloride, Benfotiamine, and TTFD (tetrahydrofurfuryl disulfide).  My doctors were not very knowledgeable about nutrition and vitamins, and they missed my symptoms being connected to vitamin deficiencies.  I studied nutrition before earning a degree in Microbiology because I wanted to know what vitamins were doing inside the body.  My doctors just prescribed pharmaceuticals to cover the symptoms of poor health due to malabsorption of nutrients. We need more thiamine when we're physically ill, physically active, emotionally stressed and work outside in hot weather.  Thiamine works in concert with the other B vitamins, so all should be supplemented together.  Vitamin D needs to be activated by thiamine.  Vitamin D helps regulate the immune system.   Don't take Thiamine Mononitrate because it is not bioavailable.  The body has difficulty absorbing and utilizing it.   Do keep us posted on your progress!
×
×
  • Create New...