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heart issues get weirder

ironictruth

By ironictruth
in Coping with Celiac Disease

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ironictruth Proficient
ironictruth
Posted

Back in March I started getting some skipped beats, a bit unnerving but I figured I was just developing PVCs. In July I actually had some kind of arrhythmia at the gym. I had 2 stress tests, monitors and an ultrasound of the heart and all looks good except for some PVCs. They never caught the arrhythmia.

Fast forward 3 months from my cardiologist making me cry, I am finding that my heart acts very weird after eating. My stomach pain has increased since late August and my heart is much weirder then it was in the previous months. It seems to speed up and skip a lot and go out of rhythm after some meals. I can feel it stop in the pulse in my neck, then speed up, then go back to normal and it will do it again.  Usually begins 20-60 minutes after a meal or a coffee or tea (I am on low acid coffee).

Has anyone experienced this?  I know I had some inflammation in the intestine in late August which I thought would be better by now and I am wondering if perhaps when the food hits the inflammation it does something wacky to the heart? I am just waiting for it to go out of synch and not got back! And why does it NOT do it for my doctors? Argh.

My upper stomach is tender and I have not been able to lie on my right side for sometime due to pressure in the upper right area.

But this heart stuff is freaking me out. Just when I think I was bothered by symptoms before, they get worse!

 

 

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GFinDC Veteran
GFinDC
Posted

Hi IronicT,

I haven't had those symptoms exactly.  I've had faster heart rate at times, and feeling my heart beat against the inside of my chest.  I've even had my heart go all a flutter when seeing a pretty girl or a shiny new gun! :)

If your symptoms don't cooperate when you are at the doctor, maybe they can equip you with a monitor to record heart events.

Not being able to lay on your right side seems like it should point the doctors at something pretty quick IMHO.  At least it should give them a general area to examine.

I hope you get some  answers soon.

 

ironictruth Proficient
ironictruth
Posted
  • Author
19 hours ago, GFinDC said:

Hi IronicT,

I haven't had those symptoms exactly.  I've had faster heart rate at times, and feeling my heart beat against the inside of my chest.  I've even had my heart go all a flutter when seeing a pretty girl or a shiny new gun! :)

If your symptoms don't cooperate when you are at the doctor, maybe they can equip you with a monitor to record heart events.

Not being able to lay on your right side seems like it should point the doctors at something pretty quick IMHO.  At least it should give them a general area to examine.

I hope you get some  answers soon.

 

Thank you. We did a monitor months ago, just some pvcs. But things are nuch worse. 

obesiac Newbie
obesiac
Posted

Yes ! before self diagnosis I had full on magnesium defieceny symptoms. Palpitations, insomia, Increased heart rate, I couldnt eat. Found out about deficiency online. Took some magnesium and my heartrate went from 114 to 70 within a half an hour. 

Of course something like this is serious and needs to be looked into. Being celiac is complicated . Each case is different. Someone who has gone undiagnosed for a long time has to really take care of themselves and be vigilant about their nutrition. 

I have been battling the particular palpitation issues since self diagnosis, 15 years. When the palpitation episodes increased I took magnesium regularly.  And other supplements. I have made progress as now I hardly get them ( palpitations).

ironictruth Proficient
ironictruth
Posted
  • Author

Thank you. I do take magnesium

frieze Community Regular
frieze
Posted

ironic, what form of magnesium do you take, and how much?  are you on a PPI?  or other acid inhibitor?

ironictruth Proficient
ironictruth
Posted
  • Author

I was on a ppi for a couple of months in the fall. I did not want to take it but figured i would give it a shot. I was told to discontinue it and a GERD PH test revealed normal acid. So I have been off of it for about 2 months. Some zantac or pepcid following d/c of ppi and now totally off everything. 

400 mg mag oxide at bedtime since early August. 

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Caroles Newbie
Caroles
Posted

The funny thing with me, 2008 I had the fundoplication  done, where they tie your stomach closer to your esphagus. Last year I had an endoscopy done and I was definite celiac. Sometimes I wonder if it from the acid reflux operation. I do not take any medications for acid reflux because they cause more harm than good. What I have been doing is using a product called "intestinew" in my local vitamin store. This is a powder that I mix with EmergencC, it helps...I also drink green tea with a few drops of frankincense. I feel wonderful! Please read up on the oil of frankincense. I also take a probiotic called THRIVE and I have to Magnesium (glycincate) 120 mg. I take the Magnesium 4 times a day all day. Make sure you take the Thrive at night because it gets all the old stuff out of there.

 

ironictruth Proficient
ironictruth
Posted
  • Author
12 minutes ago, Caroles said:

The funny thing with me, 2008 I had the fundoplication  done, where they tie your stomach closer to your esphagus. Last year I had an endoscopy done and I was definite celiac. Sometimes I wonder if it from the acid reflux operation. I do not take any medications for acid reflux because they cause more harm than good. What I have been doing is using a product called "intestinew" in my local vitamin store. This is a powder that I mix with EmergencC, it helps...I also drink green tea with a few drops of frankincense. I feel wonderful! Please read up on the oil of frankincense. I also take a probiotic called THRIVE and I have to Magnesium (glycincate) 120 mg. I take the Magnesium 4 times a day all day. Make sure you take the Thrive at night because it gets all the old stuff out of there.

 

Thank you!

  • 3 weeks later...
aliciahere Apprentice
aliciahere
Posted

Wouldn't be a bad idea to get full bloodwork done. Cbcd, vitamins, thyroid, etc. Thyroid in particular, it can do funny things with your heart if it's low or high. 

ironictruth Proficient
ironictruth
Posted
  • Author
10 hours ago, aliciahere said:

Wouldn't be a bad idea to get full bloodwork done. Cbcd, vitamins, thyroid, etc. Thyroid in particular, it can do funny things with your heart if it's low or high. 

Thank you. My thyroid was normal in August except a nodule and enlarged lymphnode. But I know it needs to be run again. Am waiting on an appointment with an endo. 

Estes Contributor
Estes
Posted

What problems were caused by the PPI?  

I have heart pain that I thought might be anemia since I have tiny red blood cells (caused by celiac and my malabsorption).  I end up very fatigued every year late January-March.  I sometimes wonder if it could be even be related to vitamin D since I live in a cold climate.  Always trying to heal myself.  I don't feel comfortable taking so many vitamins, I feel like I might OD on something.

I am strict gluten free and have been since last March when I was diagnosed.  I thought I would have it all figured out by now with acid, anemia, vitamin levels.  I am currently feeling fatigue again and wondering if it might be the PPI.  Any words of wisdom on that would be appreciated.

I am on the PPI also because I have eosinophilia esophagitis.  Likely caused by 40 years of eating gluten.  I would like to heal all that and go off the PPI if possible.

cyclinglady Grand Master
cyclinglady
Posted
21 minutes ago, Estes said:

What problems were caused by the PPI?  

I have heart pain that I thought might be anemia since I have tiny red blood cells (caused by celiac and my malabsorption).  I end up very fatigued every year late January-March.  I sometimes wonder if it could be even be related to vitamin D since I live in a cold climate.  Always trying to heal myself.  I don't feel comfortable taking so many vitamins, I feel like I might OD on something.

I am strict gluten free and have been since last March when I was diagnosed.  I thought I would have it all figured out by now with acid, anemia, vitamin levels.  I am currently feeling fatigue again and wondering if it might be the PPI.  Any words of wisdom on that would be appreciated.

I am on the PPI also because I have eosinophilia esophagitis.  Likely caused by 40 years of eating gluten.  I would like to heal all that and go off the PPI if possible.

Tiny red blood cells may be related to Thalassemia (a genetic anemia which can produce minor symptoms in many cases).  I have Thals and had iron-deficiency anemia.  Was never an issue until I could not keep up with my iron stores (due to celiac disease and menopause)  and my normal hemoglobin levels (which are always slightly below range) dropped very low.  But bodies often adapt.  I just wasn't going to get an Olympic medal!  BTW, Iron will not help with Thalassemia.  Your doctor should run a vitamin panel on you.  Standard  follow-up care for celiacs (includes Celiac antibody testing to help see if you are dietary complaint too).  

I am not suggesting you have Thals.  Just something to consider.  

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frieze Community Regular
frieze
Posted

mag oxide is the  cheapest and least utile of the magnesium preparations, try mag 64/ mag delay.  or mag citrate caps, or glycinate as some one else mentioned.

kenlove Rising Star
kenlove
Posted

Glycinate always worked best for me

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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